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Has anyone ever heard of glycothymoline? I have a friend who is reading about Edgar Casey and it stated that Glycothymoline is supposed to relieve MS symptoms. I have found it online as a mouthwash for about ten dollars. Is it worth trying?
Read more : Glycothymoline? | Views : 2071 | Replies : 14 | Forum : General Discussion

MS Neurologist Rating Website

I came across a very interesting website that I think has a tremendous potential to be a very valuable resource for the worldwide MS community. It's a place were you can post info, both positive and negative, about MS neurologists you've had experiences with. Of course, you can also read what others have posted about a neuro you might be considering seeing.

It would be great if this could become a comprehensive database that could ...
Read more : MS Neurologist Rating Website | Views : 1267 | Replies : 0 | Forum : General Discussion

w-five last night on tv

Read more : w-five last night on tv | Views : 1819 | Replies : 10 | Forum : General Discussion

Allergy to mannitol?

I am a longtime thisisms fan but this is my first contribution. I am very grateful to the regular contributors who have helped me through many struggles along my journey.

I was diagnosed 5 years ago and was on Copaxone successfully up until a few months ago when I began to have an allergic reaction in the form of hives. It took a long time for me to associate the hives with the Copaxone because ...
Read more : Allergy to mannitol? | Views : 2671 | Replies : 10 | Forum : General Discussion

general anaesthetic and MS

Hi guys, just curious after reading a few posts, is there a problem with a person who has MS to go under General Anaesthetic?

I know that I am not diagnosed yet but after having my last general anaesthetic in November it took a while to get me back steady and strong on my feet.
I was so weak and walking snail pace, couldn't work out why. It continued for days and days.
It was ...
Read more : general anaesthetic and MS | Views : 1661 | Replies : 1 | Forum : General Discussion

having kids

i have been on copaxone treatment for about 6 months
and my g/f and i are thinking about having kids
i just want to know if anyone is on copaxone and had kids before
Read more : having kids | Views : 2114 | Replies : 3 | Forum : Copaxone


Many here have dealt with MS a lot longer than I have, so I'd figure I solicit some advice on something I've been considering.

Just a little background: I'm 38 years old, and was diagnosed last August, and started having symptoms that lead me to the doctor last mid-April. I started on Copaxone in October. My symptoms have been mostly sensory, some nerve pain, but I do feel my legs and arms get tired more ...
Read more : Advice | Views : 2090 | Replies : 14 | Forum : General Discussion

Contact info

Anyone have a number or who to contact for revimmune? I am looking into the North Western treatment as well right now. Problem is I was told it is in phase II and randomized study. Some would get chemo and some would get chemo with the stem cells.

Have not contacted anyone at Rush hospital yet. I amnot quite sure what their treatment is.

Interestined in looking into revimmune.
Read more : Contact info | Views : 1809 | Replies : 4 | Forum : Revimmune (cyclophosphamide or cytoxan)

Not taking all my doses

I have discussions with patients every day about the importance of taking all of their doses of meds. I never missed a dose of Rebif for two years. Lately, however, I find that I am skipping 2 of the three doses per week because all of my injection sites are so tender and painful. Has anyone else done this? I am feeling guilty for missing doses, and I don't want to be a bad patient, ...
Read more : Not taking all my doses | Views : 3828 | Replies : 12 | Forum : Rebif

Breast Feeding Trumps DMDs in Reducing Post Partum Relapses

Lots of news coverage today on this topic--

87% of the women who did not breastfeed after pregnancy had relapses (one year follow up)

while only 36% of the women who did breastfeed exclusively after pregnancy had a relapse.

Can Breastfeeding Reduce Multiple Sclerosis Relapses?
Sixty percent of the women reported their main reason for not breastfeeding exclusively was to start taking MS treatments again.

Women who began taking MS treatments within the first two ...
Read more : Breast Feeding Trumps DMDs in Reducing Post Partum Relapses | Views : 3523 | Replies : 23 | Forum : General Discussion


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