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Hello from France

Hello every body
I hope you will excuse my poor english language...
I just discover your site today
I discovered I have MS six months ago
I use Rebif since october 2007
I have made a blog about MS, it is in French but you can click to translate it
I'll come back to read you more
Pat
Read more : Hello from France | Views : 1731 | Replies : 5 | Forum : Introductions


Thoughts on Placebo effect

Hi, I have been wondering the last week or so regarding the placebo effect. There is lots of material where they talk of the 30% or so of unwarranted improvement people get on sham treatments (ie the placebo arm of studies).

What I have yet to read is about people on the actual treatment who *lose* 30% effectiveness due to the same effect? ie The placebo effect working in reverse. Logically, I would expect it ...
Read more : Thoughts on Placebo effect | Views : 1776 | Replies : 6 | Forum : General Discussion


Avonex while sick?

I know that we have discussed the issue of taking Avonex while being sick in the past. At that time, I had only one prior experience in this area and that was that I had Avonex within roughly 24 hours of feeling a cold start to come on and the Avonex seemed to help such that I did not feel any of my cold symptoms the next day. However, I have recently had a very ...
Read more : Avonex while sick? | Views : 8022 | Replies : 14 | Forum : Avonex


Any fellow cyclobenzapriniacs?

The baclofen by itself, even at 20 milligrams, 3 times a day, did not fully help my abdominal hug.

A couple months ago, the cyclobenzaprine was added to the mix. I have to admit, it helps quite a bit with the abdominal spasm, but woooo boy does that stuff make you tired.

It's a good thing I no longer drive or work. I wouldn't be able to cope, taking this medicine. Not to mention I ...
Read more : Any fellow cyclobenzapriniacs? | Views : 1134 | Replies : 0 | Forum : General Discussion


Chris Young's diary info

www.chrishasms.com www.number5.org

Hello folks I'm Chenell and I have been taking care of this bum for the last 2 years . :D :P

Chris is going to be sick for the next few months we hope. We hope he will throw up then be anemic and ...
Read more : Chris Young's diary info | Views : 3691 | Replies : 10 | Forum : Revimmune (cyclophosphamide or cytoxan)


John Hopkins Info...Who to contact.

Carrie Trecker
Departments of Psychiatry and Neurology
Johns Hopkins University School of Medicine
Johns Hopkins Hospital, Meyer 113
600 N. Wolfe St.
Baltimore, MD 21287-7121

410-502-2574 (Office)
410-614-1530 (Fax)

Dr. Douglas Kerr / Mary Brown
Johns Hopkins Hospital
600 N. Wolfe Street, Pathology 627C
Baltimore, MD 21287
Read more : John Hopkins Info...Who to contact. | Views : 2603 | Replies : 4 | Forum : Revimmune (cyclophosphamide or cytoxan)


To those who remember what their spinal MRI looked like

Can anyone here explain what their spinal looked like?

When my neuro pointed out "lesions" it looked more like one long snake, from my neck, to the middle of my back.

My previous post was about Devics syndrome. In reading about the comparison of an MS spinal to a Devic's spinal, I litterally get chills up my spine. No pun intended
Read more : To those who remember what their spinal MRI looked like | Views : 2099 | Replies : 6 | Forum : General Discussion


Do any of you know anyone with Devics Syndrome?

I've been reading qutie a bit about Devics Syndrome. It is thought by some that it is a varient of Multiple Sclerosis that is very very very bad, with bad prognosis.

The reason I ask is that I have been reading that spinal lesions in MS don't usually cover more than 2 vertebrae.

It was my understanding that the lesions in Devic's cover more than two.

I am frightened to death of this. Even though ...
Read more : Do any of you know anyone with Devics Syndrome? | Views : 1886 | Replies : 2 | Forum : General Discussion


Placebo

I've often wondered why doctors don't use placebo more often for MS, especially if they do it as described in the article below where, "34 percent said they told the patients the substance was something that "may help and will not hurt."

My vote would be for doctors to prescribe vitamin D or omega-3 as they are widely available, won't hurt, might help and aren't expensive.



Doctors say placebo use common

Jan 3, 2008 - ...
Read more : Placebo | Views : 1792 | Replies : 9 | Forum : General Discussion


Tips for working out

I am trying to get into a good exercise routine. The way MS has manifested itself in me I do lose control of my left leg if I get overheated and the exertion really makes me extremely tired but I need to get into better physical shape. I used to run pre-MS and really miss the endorphin rush after running for an hour and as wierd as it sounds I miss getting sweaty from a ...
Read more : Tips for working out | Views : 6736 | Replies : 37 | Forum : General Discussion


 

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