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Freiguy....

Freiguy, if you happen to be checking in, I sent you a PM.
Read more : Freiguy.... | Views : 1538 | Replies : 0 | Forum : Campath (Lemtrada, Alemtuzumab)


10 sec's of our ms poster boy

http://www.youtube.com/watch?v=v0G2__5q9Wo
if he had a gun in his mouth where he is with his ms good luck to him.
Read more : 10 sec's of our ms poster boy | Views : 3220 | Replies : 26 | Forum : General Discussion


MS - May & September

This article appeared in the local newspapers yesterday. $10 mill. for a study of MS birthdays. I read somewhere that many people with MS in the northern hemisphere have birthdays in May and therefore perhaps many in the southern hemisphere are born after winter here eg me in September.

To shortcut the study, maybe we could have a straw poll on this site to see if winter pregnancies has lead to a higher incidence of ...
Read more : MS - May & September | Views : 2877 | Replies : 23 | Forum : General Discussion


New member

Hello everyone. I've just signed up to the site. I am a Brit living in the San Francisco bay area. I was diagnosed with MS in 2005. To date I have been very fortunate - my MS has been relatively benign with only infrequent relapses. I went on Tysabri when I was first diagnosed but only had 1 infusion before it was pulled from the market following the first PML report. Since then I have ...
Read more : New member | Views : 1547 | Replies : 3 | Forum : Introductions


New Wheelchair Kamikaze Video Posted: The Quest for Bagels

Hey folks, I posted a brand-new Wheelchair Kamikaze video, "The Quest for Bagels". This edition of Wheelchair Kamikaze has us heading up Broadway to my favorite bagel shop, and then for a ride through Central Park on the way home.

Hope everybody enjoys my latest adventure...

http://www.youtube.com/watch?v=RM0GjqwrwHs
Read more : New Wheelchair Kamikaze Video Posted: The Quest for Bagels | Views : 1715 | Replies : 8 | Forum : General Discussion


Newbie Question

Hi,
I just discovered this site today!! I was dx with RRMS 7/05, based on my workup we believe I had symptoms as early as 1996. I started Rebif 44mcg 3xs/wk and stayed on that therapy until I was diagnosed with Ewing's Sarcoma (bone cancer) 11/20/06. I had 1 exacerbation (4/06) between my MS dx and my cancer dx. Nystagmus - solumedrol resolved it.

I took a TON of chemo from 12/06 - 9/14/07. Adriamycin, ...
Read more : Newbie Question | Views : 2413 | Replies : 9 | Forum : Revimmune (cyclophosphamide or cytoxan)


Bartonella induced MS

http://www.uvaldeleadernews.com/article ... /news1.txt

Our 17 yr old is thought to have been infected with two strains of this bug....which in her case caused a lot of psychiatric symptoms. Luckily her mri's were normal, but they did show "enlarged perivascular spaces" and treatment has helped her VERY much.
Read more : Bartonella induced MS | Views : 1678 | Replies : 1 | Forum : General Discussion


Tysabri + Copaxone trial results

The double blind phase-II results indicate that the combination might be safe and effectivenes was signifficatly higher in the combination group.
Abstract

--Frank
Read more : Tysabri + Copaxone trial results | Views : 1877 | Replies : 0 | Forum : Tysabri (Antegren or Natalizumab)


This is a letter I got this morning for Ploymyositis

Hi Chris,

I did HiCy at Hopkins this November for my Polymyositis and am doing very well. I hope you are as well. I have a friend with MS that would like to do HiCy but she said Hopkins wouldn't have anything to do with her because she is not recurring and remitting and not in a wheelchair. I am not sure if she talked to the right person. Did you remember any of these ...
Read more : This is a letter I got this morning for Ploymyositis | Views : 1414 | Replies : 2 | Forum : General Discussion


I have a date

My first infusion will be March 26th. I got a box of stuff from Biogen today. A tote bag and blanket to take to my infusions. :roll:

I'll let y'all know how it goes.

CF
Read more : I have a date | Views : 1961 | Replies : 5 | Forum : Tysabri (Antegren or Natalizumab)


 

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