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I am beginning to think the rituxan is working for me. Last weekend I spent most of my time either fishing or working in the yard. The fishing isn't out of the ordinary but the heavy duty yard work is. It was hot and I was running a chainsaw all day. This is the first time in a long while that I have been able to do something like this. It feels so good to ...
Read more : MY RITUXAN | Views : 1388 | Replies : 1 | Forum : General Discussion

Still learning about this disease

So today, I woke up, felt pretty good. 3pm, I get this burning in both sides of my face, under my eyes to my top row of gums. It's so bad, I consider going to the hospital (was making my eyes burn, and I had no fever).

By 5pm it was beginning to go away. 6 pm, gone. 8 pm... coming back.

Is this honestly what MS can do?? I have not began my DMD ...
Read more : Still learning about this disease | Views : 2683 | Replies : 12 | Forum : Daily Life

newbe here

Found this group today.
Have had "possible MS" since 1969. Relapse and new tests 2004 with definite DX of MS. Was on Betaseron for almost 4 years. Really bad relapse in Dec. 2007. Changes to Copaxone and had a bad reaction on day 4 & 5 of it.
Was told to stop it. Then it took several months and new MS neuro specialist to get me started on Tysabri. Had my first infusion on April ...
Read more : newbe here | Views : 1337 | Replies : 0 | Forum : Introductions

Hello from Pennsylvania

Hi Everyone,

I am a mom with MS. My kids are wonderful and they keep me going every day. Without them and my husband I don't know if I could make it day to day.

I am glad to have found this forum. I have 2 reasons for joining. First to talk with other about MS and day to day things. The other is I am always raising money for MS.

We are doing the ...
Read more : Hello from Pennsylvania | Views : 1140 | Replies : 0 | Forum : Introductions

MRI's, lesions and black holes for dummies.....

Hi All, ... i_94040948

I found this very useful when I was starting out learning about MS and lesions etc.

Hope you do too.


Read more : MRI's, lesions and black holes for dummies..... | Views : 1702 | Replies : 2 | Forum : General Discussion

What´s this?

Hi there.

I´ve joined the board today only after spending a few weeks reading some information in here and i would like to ask you about the symptoms i´m having.

I´m not diagnosed with MS yet, and i really hope never but it looks like there is something going on.

So my history started in November 2007 with double vision. I´ve gone first to the oftamologist to check what this was and he sent me ...
Read more : What´s this? | Views : 2083 | Replies : 12 | Forum : General Discussion

I´m new here

Hi there

I´m looking for some answers to the symptoms i´m having at the moment therefore i found this forum which looks very good with plenty of information. :)
Read more : I´m new here | Views : 1274 | Replies : 2 | Forum : Introductions

Rebooting Melissa

Phew. What a week.

I'm exhausted and it's only officially day two but on *MY* timeline it's day seven already.

I will be updating everyone daily on chris's site, but due to my tardy response to Chris's wife's email I'm a bit behind, I'm posting what I've got so far here on this site but will probably just post on Chris's site going forward - this is current ...
Read more : Rebooting Melissa | Views : 2615 | Replies : 8 | Forum : Revimmune (cyclophosphamide or cytoxan)

Has a doctor ever looked at.....

your tongue?
This was a first for Jeff the other day. The new holistic doc studied his tongue for awhile.
"Hmmmm.....", he said.
"That's interesting. You have a geographic or fissured tongue. It happens in about 15% of the population. Could be genetic, might be related to a virus. We'll have to look into that."

Not to be too navel-gazing, just wondering how many folks have ever had their tongues scrutinized. It used to be ...
Read more : Has a doctor ever looked at..... | Views : 2568 | Replies : 5 | Forum : General Discussion

NMSS Ohio Valley 150K Bike Run

My brother is raising funds for the NMSS. He did it last year for the first time and raised $10,000 on his own. If you click on this link there is a picture of me with him (I know a bunch out here are starting to share pictures and here's one with me in and I didn't have to do the work to put it there).
I can only hope that everyone with this ...
Read more : NMSS Ohio Valley 150K Bike Run | Views : 1546 | Replies : 2 | Forum : General Discussion


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