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Hi all
Im new here, hope you dont mind me asking a question.

My husband was diagnosed with ms last year...he gets tired alot, cold hands, pins and needles and it does affect his vision sometimes, but at present we do lead normal life as possible.

I am not sure if I have fully taken it all in and am very scared of what the future may hold.

My main reason for this topic though, ...
Read more : SHOULD WE HAVE MORE KIDS?? | Views : 3923 | Replies : 1 | Forum : Friends and Family

Sharon's post op CCSVI

What an adventure!! My "bucket list" (you know the movie with Jack Nicholson and Morgan Freeman), did not have this adventure listed on it, but it does have "fight the MS with everything positive". Even though I feel pretty crappy right now, I think I can put a check mark alongside that entry.

THE TESTS The tests are basically the same thing we have all been through before except for the breathing exercise in the ...
Read more : Sharon's post op CCSVI | Views : 9608 | Replies : 52 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

HydrangeaRoot Shows Promise In Treating Autoimmune Disorders

Hydrangea Root Shows Promise In Treating Autoimmune Disorders
Featured Article
Main Category: Immune System / Vaccines
Also Included In: Arthritis / Rheumatology; Diabetes; Multiple Sclerosis
Article Date: 05 Jun 2009 - 7:00 PDT

US researchers found that a drug made from the root of the hydrangea plant, which has for centuries been used in Chinese medicine, showed promising results in treating autoimmune disorders such as rheumatoid arthritis, multiple sclerosis, inflammatory bowel disease, type 1 diabetes, ...
Read more : HydrangeaRoot Shows Promise In Treating Autoimmune Disorders | Views : 2799 | Replies : 9 | Forum : General Discussion

Going on LDN

I have made my mind up to go on this. I am in England and have found a Dr who will let me have this. There is an inital fee then I pay for a 1 month suppy. I have nothing to lose I feel and have stopped totally the Avonex as the side-effects were like entering hell and being spat out again.
Had another ropey week and am hoping so hard that this will ...
Read more : Going on LDN | Views : 1263 | Replies : 2 | Forum : General Discussion

My new MRI

Some lesions are now completely gone with all of them healing now.

Seems to be working on the AI side of MS.
Read more : My new MRI | Views : 2473 | Replies : 1 | Forum : Revimmune (cyclophosphamide or cytoxan)

CCSVI patients' log

Hoping each patient can post the following information in this format, so we can keep track here. Please go ahead and add any other pertinent info Marie, Sharon, Holly and the gang....

patient: Jeff
diagnosis: RRMS 3/07 (at age 43)
lesions: multiple brain lesions, 20 or so, small, round and scattered ("Steiners' splashes")
one lesion on cervical spine
symptoms: fatigue, bladder issues, depression, occasional numbness and tingling in feet, leg pain, heat intolerance
EDSS: 1.5 ...
Read more : CCSVI patients' log | Views : 37166 | Replies : 168 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Anyone experience this annoying little symptom? The first time I had it, it lasted for 24 hours and it was really just annoying and didn't cause any other issues.

Yesterday it popped up again. My son had an assessment test for his new school next year and I ended up having to run to the restroom to vomit. The only positive is that I made it to the bathroom. I ended up vomiting 5 times ...
Read more : Vertigo-away | Views : 2129 | Replies : 12 | Forum : General Discussion

Immun-regulation using a diabetes drug

It seems they are currently thinking more about employing this for cancer treatment and vaccination but might also have some importance for autoimmune disseases: ... 131433.htm

Read more : Immun-regulation using a diabetes drug | Views : 1291 | Replies : 0 | Forum : General Discussion

CCSVI- just the facts, ma'am

CCSVI, Just the facts, ma’am

1. What is CCSVI?

Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood ...
Read more : CCSVI- just the facts, ma'am | Views : 89560 | Replies : 114 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

In the Phase 3 Campath study!

So I needed to switch tx after 4 years on copaxone. Doc recommended I choose between tysabri and Campath, as he is involved in the study. It was a really hard decision, especially since I was dead set against taking an interferon. The research nurse said that if I was randomized onto the rebif I could drop out. So I went thru the entire process, then on randomization day - hooray!!!
I got my five ...
Read more : In the Phase 3 Campath study! | Views : 1794 | Replies : 0 | Forum : Campath (Lemtrada, Alemtuzumab)


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