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Hughes Syndrome

I'd never heard of this before either until I saw this on the BBC web site.

http://news.bbc.co.uk/1/hi/england/suffolk/5273968.stm

John Simper, 60, from Ipswich, is convinced he has been suffering from Hughes Syndrome which thickens the blood and slows down the brain.

This condition, discovered in 1993, mimics MS but can be easily treated with blood thinning drugs or aspirin.

Mr Simper has now started a crusade to make the condition more well known.
Read more : Hughes Syndrome | Views : 2025 | Replies : 7 | Forum : General Discussion


Immune system

Dear all,

Here is an easy to read intro about the immune system and MS - with some nice pictures.

Ian

http://www.nationalmssociety.org/IMSAug ... nflict.asp
Read more : Immune system | Views : 1266 | Replies : 5 | Forum : General Discussion


Sept. '06 Vitamin D Article

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Read more : Sept. '06 Vitamin D Article | Views : 873 | Replies : 0 | Forum : General Discussion


good info on genetics and MS

Don't know if this has been posted before, but the link below goes to a long, dense webpage on genetics and other aspects of multiple sclerosis courtesy of the "Online Mendelian Inheritance in Man" site from Johns Hopkins. It's good bedtime reading if you're trying to get over insomnia...but a good reference anyway.

http://www.ncbi.nlm.nih.gov/entrez/disp ... ?id=126200
Read more : good info on genetics and MS | Views : 959 | Replies : 1 | Forum : General Discussion


Getting appointments for Infusions

I know this has been going on with other posts in this forum. Just thought I would start a new thread so others may see. If you haven't been keeping up on the "Extremely Restless" thread, you are unaware that there are problems to actually getting your Tysabri appointments set up.
Here is Gary's latest update:
Nurse of Neuro called this morning. They are setting up MRI's of the brain for everyone trying for the ...
Read more : Getting appointments for Infusions | Views : 3190 | Replies : 9 | Forum : Tysabri (Antegren or Natalizumab)


NABs study

First Patient Enrolled in Study to Evaluate Impact of Regular Neutralizing Antibody (NAb) Testing on Multiple Sclerosis Treatment Patterns

Largest Study of Its Kind Will Examine Changes in Treatment Management of Tested and Non-Tested Patients Receiving a High-Dose Interferon.

Teva Neuroscience, Inc., announced today the initiation of the first-ever study designed to examine how the implementation of regularly scheduled interferon beta (IFN-(beta) ) neutralizing antibody (NAb) tests in multiple sclerosis (MS) patients receiving high-dose IFN-(beta) ...
Read more : NABs study | Views : 1021 | Replies : 0 | Forum : Drug Pipeline


BCP article

Article from the Boston Cure Project website on CPn


Hollie writes "Like many other areas of study in MS, research into whether Chlamydia pneumoniae (Cpn) is associated with the disease has generated many conflicting results. Some studies conclude that people with MS are more likely to be infected with Cpn while others report no differences between people with MS and controls. A team of scientists in Greece have taken steps to understand and resolve these ...
Read more : BCP article | Views : 1314 | Replies : 0 | Forum : Antibiotics


ECTRIMS 2006

Dear all,

The ECTRIMS conference takes place at the end of September. The Boston Cure Project attends the conference and produces a summary which I will copy across to this site. The number of subjects covered in the conference is mind-boggling. Clicking on 'scientific programme' provides details of the presentations and posters. In terms of treatments, data will be presented on a range of drugs including new formula Rebif, FTY720 and Mitoxantrone.

<shortened url>


Just ...
Read more : ECTRIMS 2006 | Views : 1711 | Replies : 3 | Forum : General Discussion


Hi from a sad and frustrated MS mom

You all seem like such a helpful, friendly, well-informed group! My reluctantly diagnosed daughter and I have so many questions about alternative treatments! I'e been lurking here for a while now and I've finally worked up the courage to get my questions out there.

My now 24-year-old daughter was diagnosed (relapsing remitting) about a year ago now after a horrific bout of double vision that was initially misdiagnosed as stroke and then as a mass ...
Read more : Hi from a sad and frustrated MS mom | Views : 2076 | Replies : 9 | Forum : Introductions


vacay within adventure

ok cure i am now officially in sydney! arrived last night around 11pm and roamed the town with my friend til about 1:30 am then came home and gabbed til 3am, so tired today! but generally feeling fine. my C7/C8 hurt SO BAD on the plane but it wasn't intolerable with it just being a 3 hr flight. LA to auckland was 12 hours of hell! anyway beautiful day today, we are going to royal ...
Read more : vacay within adventure | Views : 1962 | Replies : 6 | Forum : Daily Life


 

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