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Plasmapheresis (plasma exchange)

Just curious if anybody has done this. And what the process is like and if has helped anybody. I havent responded well to solumedrol and im thinking of suggesting this to my nuero. I appreciate any input and opinions. thanks
Read more : Plasmapheresis (plasma exchange) | Views : 1707 | Replies : 7 | Forum : General Discussion


New, and Terrified

Hello all.

I'm new to the site, and a little bit (read: a lot) terrified at the moment, while I try to reach out and find some answers for myself regarding MS. I just returned home from a three day hospital stay where 99% diagnosis was made for MS. No lesions found on brain in contrast and non-contrast MRI; pending C-spine MRI (as they think it's originating there, or possibly brain stem) and neuro-ophthalmology assessment ...
Read more : New, and Terrified | Views : 1470 | Replies : 6 | Forum : Introductions


My Final Decision...

OkayI am starting,
1- vit B super complex (w/vit C)
2- (2) vit D w/ calcium
3- (3) 1000mg omega 3 fish oil
4- Rebif
5- Lipitor
6- Monster energy drink (for fatigue)
7- High Protien Diet
8- Exersize
9- Hope and prayer

Do yall think I need anything else?
Read more : My Final Decision... | Views : 3415 | Replies : 12 | Forum : Regimens


Just curious...

Just curious about something...

If you were involved in a clinical trial, it stopped, lost funding, numerous people had absolutely no luck on the medicine, or something else was out there that has shown darn near 100% effectiveness, would you continue to try to get the drug financed or would you admit defeat and move on?

The reason I ask is I know of some folk who are pretty high up in some MS groups, ...
Read more : Just curious... | Views : 5590 | Replies : 59 | Forum : General Discussion




Tysabri / Copaxone combo

As a major shareholder in Teva and Biogen, this will make Harry Z very happy - a combo trial of tysabri + copaxone. Harry has managed to talk both of these drugs down which have seen the share prices fall in both companies - crafty Harry then bought up more shares at low prices.

Do you hear him denying it? No - he's enjoying another cruise with his lady friend off the coast of Cuba. ...
Read more : Tysabri / Copaxone combo | Views : 1759 | Replies : 0 | Forum : Drug Pipeline


WORKING DURING TREATMENT

I MAY HAVE TO GO THROUGH A ROUND OF 3 DAY IV SOLUMEDROL SOON FOR OPTIC NEURITIS.

MY QUESTION IS, HAVE ANY OF YOU ACTUALLY WORKED WHILE BEING ON THIS STUFF? IS IT POSSIBLE TO DO IT AND FEEL OK?

I STARTED WORKING FULL TIME IN SEPTEMBER. I HAVE A LAID BACK JOB. NO OFFICE WORK. I AM FULLY ABLE EXCEPT FOR MY EYE ISSUE.

HAVE ANY OF YOU WORKED THROUGH TREATMENT?
Read more : WORKING DURING TREATMENT | Views : 1661 | Replies : 3 | Forum : Daily Life


HI ALL, JUST JOINING.

HI ALL. I WAS DX IN OCT OF 2003 WHEN I AS IN NURSING SCHOOL. I QUIT RIGHT AFTER I WAS DX.

I AM DOING WELL ON COPAXONE &LDN.

HAVING SOME RIGHT SIDE ISSUES WITH LEG AND EYE. WENT 6 YARS WILL ALOMOST NO PROBLEMS.

LOOKING FORWARD TO MEETING EVERYONE. DEANNA
Read more : HI ALL, JUST JOINING. | Views : 1438 | Replies : 4 | Forum : Introductions


Goodbye Rebif - Hello Tysabri!!!

I posted this on the Rebif thread also:

Went to my Neuro yesterday for a check-up after 9 months on Rebif.

I have tried to be upbeat and positive but some days I just want to cry. I have a constant fever and I am so fatigued I can hardly move. Well he took one look at me yesterday and said it's time for a change.

My options as far a drug therapy are:

Rebif ...
Read more : Goodbye Rebif - Hello Tysabri!!! | Views : 4043 | Replies : 15 | Forum : Tysabri (Antegren or Natalizumab)


Goodbye Rebif - Hello Tysabri

Went to my Neuro yesterday for a check-up after 9 months on Rebif.

I have tried to be upbeat and positive but some days I just want to cry. I have a constant fever and I am so fatigued I can hardly move. Well he took one look at me yesterday and said it's time for a change.

My options as far a drug therapy are:

Rebif at 1/2 dose .22mcg ...
Read more : Goodbye Rebif - Hello Tysabri | Views : 3126 | Replies : 4 | Forum : Rebif


 

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