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Need Advice

My daughter has been in a coma for a month now and her doctor just got back results from a second biopsy. His Official Diagnosis: Inflammatory Disease of Brain-Inflammatory driven by B & T cells. He said no antibodies where found so he was not going to start her back on plasmapheresis which she was on for about 6 days with steroids. She is currently on 1000 mg of steroids per day. The doctor has ...
Read more : Need Advice | Views : 1745 | Replies : 8 | Forum : General Discussion

Chronic Cerebrospinal Venous Insufficiency (CCSVI)-

« Moderator's Note: This is the original thread that began the discussion of CCSVI here at ThisIsMS. Its status was changed to "sticky" to make it easy to find for people to get a historical perspective on the development of the discussion here. There are also several good references cited which may or may not be available in the other threads. NHE »
Dignan recently posted the link to Dr. Paolo Zamboni's abstract on ...


I stopped taking Mirapex about three days ago to see what it would be like not to take it. Well the last two nights I have had night sweats so bad that I had to get up during the night and change. I usually take three 5 mg Mirapex a day to control my RLS. For the life of me I can't figure out why this is happening. Has anyone else had these night sweats ...
Read more : Weird | Views : 1480 | Replies : 1 | Forum : General Discussion

Possible MS dx

Awaiting appt. with Neurologist and gathering all the information I can. It feels soooo overwhelming!

so glad there are places like this to help!
Read more : Possible MS dx | Views : 1209 | Replies : 0 | Forum : Introductions

Pain after shot

I'm wondering if anyone experiences pain after a Copaxone shot. Not the normal bee-sting type feeling. Occasionally, after I give myself a shot, I get a sharp pain, which will become a dull ache, and it usually lasts at least a day. I got it again last night after injecting into my abdomen. It was pretty painful, and is still tender this morning. I don't think it was because I hit a nerve or muscle, ...
Read more : Pain after shot | Views : 2310 | Replies : 3 | Forum : Copaxone

Copaxone \ HiCy Reasearch

This video explains evrything about why Copaxone is being used after HiCy treatment. The Speakers are the resaerch team at Johns Hopkins.

This video is VERY VERY informative ... 0908357407

Chris S.
Read more : Copaxone \ HiCy Reasearch | Views : 2726 | Replies : 7 | Forum : Revimmune (cyclophosphamide or cytoxan)

Original HiCyers

Sorry to hear the bad news Keri and Chris. Glad to hear that Mel's MRI turned out ok.

Could anyone who is in touch with Dr Kerr or Dr Gladstone please find out how the partcipents of the original Johns Hopkins and Stony Brooks trials are faring now? It would shed a lot of light on the speculations surrounding reactivation.

Read more : Original HiCyers | Views : 2597 | Replies : 6 | Forum : Revimmune (cyclophosphamide or cytoxan)


I feel very very sad :cry: Yesterday night me and my boyfriend wanted to go out and have fun,as every Saturday happens here in Greece.So,i wore nice clothes to be prety and also wore 'high 'shoes(i do not know the english word...).That was mistake,bad choice because i could not walk on them!i felt AWFUL!... :cry: ...
Read more : FOR WOMEN | Views : 1965 | Replies : 8 | Forum : General Discussion

Bowel Health - Cause and Effect

For me, from when I was diagnosed six years ago I was convinced of the link to my bowel.
This has been confirmed without any doubt when after a particularly stressful time at work I came out in nasty itchy rashes.
I went to a Kinesiologist who looked at what was causing me such allergic reactions. This guy has identified and confirmed the whole problem. He maintains that, every person he has ever met or ...
Read more : Bowel Health - Cause and Effect | Views : 9223 | Replies : 28 | Forum : Regimens


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