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Anodyne therapy

Met with a friend who is a nurse practitioner and has just started her own practice. Great news for me... I now have someone to who is willing to go any direction that I feel would work for me. In our meeting today one topic we discussed was Anodyne Therapy. Pulsed inferred to treat pain. Could it help other conditions as well. The vascular part of ms? or at least some of the issues like ...
Read more : Anodyne therapy | Views : 2340 | Replies : 6 | Forum : General Discussion

Patterns in MS Lesions

In researching why some people respond to steroids, and others do not, I've come across research by Drs. Lucchinetti/Lassmann/Bruck on the Subtypes of Multiple Sclerosis Lesions. These doctors have studied MS lesions for many years, in vivo and on autopsy, and have catagorized lesions into four distinct patterns:

Pattern I
-Centered around venule with sharp, demarcated edges
-T-cell/macrophage associated
-extensive remyelination
-oliogodendrocytes in lesion center

Pattern II
-Antibody/complement associated, lesions contain large quantities of immunoglobulin ...
Read more : Patterns in MS Lesions | Views : 4927 | Replies : 17 | Forum : General Discussion


so, I'm talking with Drs. Brodsky, Kerr, and Hammond....

I am seriously thinking that I will re-dose.... just need to decide when and how soon, I guess...

Very upset by all of this.... but as I sit here with an IV in my arm....I'm pretty darn miserable all around.

Read more : re-dosing | Views : 1510 | Replies : 0 | Forum : Revimmune (cyclophosphamide or cytoxan)

neuropsychology ques.

Has anyone been evaluated by a neuropsychologist?? Why has it been recommended at this time? What are they looking for? what can I use the results for??
I know I'm not function ing anywhere near 'my old self' so it's way too late to have a baseline study.
Are they looking for markers that can be used to gauge disease advancement?
I always thought it was the 1st step in the SS process, makes me ...
Read more : neuropsychology ques. | Views : 1361 | Replies : 6 | Forum : General Discussion

AAN Abstracts for April Meeting

Hi all

The American Academy of Neurology (AAN) abstracts for the April meeting are up and not embargoed. :) The general web site is here. Some that quickly caught my eye (and there are lots of them) that might be of interest.

Examining the Association between High-Density Lipoprotein Levels and Disability in Patients with Multiple Sclerosis
CONCLUSIONS/RELEVANCE: The results of this study demonstrate a significant ...
Read more : AAN Abstracts for April Meeting | Views : 3175 | Replies : 7 | Forum : General Discussion


After doing ALOT of reading, it seems to me that I am changing my mind on what drugs to start on. I figured I would get a few opinions from ya'll. Now when the doctor was giving me a choice, I dont remember LDN being one of them. However, I have (I think) narrowed my choices down to two from copaxone, and they are:
1. LDN & Lipitor (statins)
2. Avonex
3. Rebif

I know ...
Read more : Question???? | Views : 1542 | Replies : 13 | Forum : General Discussion

Alot of kids

I just wanted to rant a bit about how much this irritates me. It is just me blowing of steam and nothing more.

Last month I noticed this growing trend or maybe it has been around for some time and I never really noticed it. Now that I have, it really irks me, a lot. It's the over use of the word "lot" or worse the use of "alot" which, by the way, isn't a ...
Read more : Alot of kids | Views : 1587 | Replies : 4 | Forum : Daily Life

finally OUT part 1

Well the fine folks at Genzyme have given me the boot. I am apparently not treatment naive because of the 28 days I was in the open label with Tovaxin and I am not eligible for Care 2 because I wasn't on treatment??? The clinical Neuro went to bat for me and still, NO. The only thing more frustrating than MS is trying to find a useful treatment for it. I would like to once ...
Read more : finally OUT part 1 | Views : 2141 | Replies : 9 | Forum : Campath (Lemtrada, Alemtuzumab)

ESR raised

Has anyone had a raised ESR level during an excerbation?

Read more : ESR raised | Views : 2431 | Replies : 4 | Forum : General Discussion

*FINALLY!!* - I have my new appointment dates.

I see Dr. Kerr on July 29th and Dr. Brodsky on August 4th.

I picked summer dates because I will be in school until the end of May.

Thanks, Chris (and everybody else) for encouraging me to be persistent!!



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