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hi all

i hope all r well/ i ve been trying 2 keep up with all/ our desktop is fried and i m trying 2 learn the laptop and every1 wants it 2 / so how are marie and jeff/ seems like this thing has really got legs/ from very new 2 people getting stents/ i would love 2 no abt how the stent thing went/ THIS REALLY IS THE DEAL/ STAY STRONG ALL ...
Read more : hi all | Views : 1754 | Replies : 7 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Ohio State's MS Center

Anyone have any experience there?
Read more : Ohio State's MS Center | Views : 3283 | Replies : 16 | Forum : General Discussion

Marie's Stents CCSVI

I m going to copy and paste my long stanford story into this hread so I can have a place to journel recovery stuff related to my stent placement.

I got home friday night at 10 pm after 15 hours of driving, three days after my Tuesday May 19 surgery. I would like to chronicle my experience here.

Previous to asking for assessment at Stanford I had gone to my local university and had gotten ...
Read more : Marie's Stents CCSVI | Views : 36417 | Replies : 180 | Forum : Regimens

Lil Red Ridinghood

Little Red Riding Hood is skipping down the forest road when she sees the big bad wolf crouched down behind a log.

'My, what big eyes you have, Mr. Wolf.'

The wolf jumps up and runs away.

Further down the road Little Red Riding Hood sees the wolf again and this time he is crouched behind a bush.

'My what big ears you have, Mr. Wolf.'

Again the wolf jumps up and runs away.

About ...
Read more : Lil Red Ridinghood | Views : 1357 | Replies : 1 | Forum : Humor


Marie's PCP read Zamboni and said "OMG this is IT," that gives me freakin goose bumps.

My situation: 45 yrs old, minor right-sided weakness and bladder issues, probably have to start IC in a few months. Symptoms started 2 yrs ago. MRI is clear, except for narrow syringomyelia T7-T9. Spinal tap says MS. Haven't been to a specialist so I haven't been diagnosed but I think it's very likely to be PPMS. I don't have ...
Read more : craziness | Views : 1962 | Replies : 4 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

imaging for neuroprotection and repair

I think this is significant progress in standardizing the measurement of neuroprotection and repair.

Imaging outcomes for neuroprotection and repair in multiple sclerosis trials

Frederik Barkhof, Peter A. Calabresi, David H. Miller & Stephen C. Reingold

Multiple sclerosis (MS) is commonly regarded as an inflammatory disease, but it also has a neurodegenerative component, which represents an additional target for treatment. The use of MRI to evaluate the inflammatory disease component in 'proof-of concept' clinical trials ...
Read more : imaging for neuroprotection and repair | Views : 1189 | Replies : 0 | Forum : General Discussion

May 27th World MS Day

NMSS is asking us to write our congress persons regarding the healthcare system from the MS view.

Dear Holly,

World MS Day GOAL:
50,000 letters to Congress
by midnight on
Wednesday, May 27th!

Demand quality, affordable health care for Americans living with MS.

May 27 marks the first-ever World MS Day and over 100 nations around the globe are joining together to build awareness for multiple sclerosis. One of the greatest overarching needs around the ...
Read more : May 27th World MS Day | Views : 1419 | Replies : 1 | Forum : General Discussion



Throw a few good days in the mix and I think it results in a net negative. No I wouldn't trade the good days for the world, but a few days without ON and dizziness just make it worse when they come roaring back. It just lets you down. OK, I'm done. I freakin' hate this shitty ass disease. I go almost two weeks where I really (except for bladder and bowels) did well. ...
Read more : Venting | Views : 1750 | Replies : 5 | Forum : Daily Life

false negatives?

hi I have not been diagnosed I had an mri 6 years ago at the age of 29 and there were multiple lesions but when they used the contrast ( gadolidian) it did not look like MS nor did the lumbarpunctur or the vep. my symptoms during that bout were; weakness, numbness, pain and cramps behind the eyes, burning cramping pain in the muscles and a horrible pain in the neck and back all these ...
Read more : false negatives? | Views : 1442 | Replies : 2 | Forum : Introductions

vitamin D?

Does anyone know how much vitamin D (and what kind? d2 or d3??) the people who did hicy @ Rush are currently taking?


Read more : vitamin D? | Views : 6192 | Replies : 11 | Forum : Revimmune (cyclophosphamide or cytoxan)


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