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At Stanford

I arrived after a lovely trip down the coast watching the redwoods etc. IT was nice, it is also very HOT, like 95.. You guys all know what I mean, I wlked into my hotel with the greatst difficulty and my rollator. step by painful nearly tripping step. I was glad to get to our room without breaking my aram again!

We're staying at the Sheraton right across the street. Disabled rooms on the top ...
Read more : At Stanford | Views : 9993 | Replies : 61 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

lhermitte's sign confusion..?

If one were to experience the lhermitte's sign, when they put their head to their chest does it take a few seconds and then you can start feeling it to set in and just becomes more and more intense while the head is to the chest, or, is it just when the head is put down to the chest (OR what ever else sets off the lhermitte's sign) is it just a quick zap like ...
Read more : lhermitte's sign confusion..? | Views : 15983 | Replies : 15 | Forum : General Discussion

white count 110 and dropping...

I was 210 yesterday (Saturday) and 110 today. Yest's neuts were 168. Didn't stay long enough for today's results (I'll get them tomorrow). Today was a "wasted" trip to IPOP in my opinion and the nurse's, too.

Tomorrow I start the growth factor. I'm nervous b/c apparently now they are using a shot - I don't like shots!!! Last time they just used my hickman line....isn't that the point of having this thing hang out ...
Read more : white count 110 and dropping... | Views : 2128 | Replies : 1 | Forum : Revimmune (cyclophosphamide or cytoxan)

tell me

give me some news abt the stent/ when i was in italy they were trying 2 figure 1 out/ now there seems 2 be 1/ who invented it/ seems like this thing really has wings/ STAY STRONG ALL --PEACE :?: :?: :?:
Read more : tell me | Views : 1749 | Replies : 5 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Immune system activation in CCSVI

Marie is on the road, and NHE brought up some important points regarding the immune system, autoimmunity in MS, and how this may fit in the model of CCSVI. Here are NHE's thoughts...

I am of the opinion that the immune activation is secondary to venous insufficiency , that it is a response, and the "autoimmune" reaction of MS will be halted once venous insufficiency is corrected. It ...

sorry if this is too rude, it's funny

Read more : sorry if this is too rude, it's funny | Views : 2048 | Replies : 4 | Forum : Humor

weed pollen allergies

I have read in thisisms that during the pollen seasons, a relaspe may occur..

Stinging Nettle and quercetin will help
Read more : weed pollen allergies | Views : 1784 | Replies : 1 | Forum : Natural Approach

too young to retire

I'm a 53 year old male. My GP says I have MS, My Neuro says POSSIBLE MS. I've had all kinds of tests, including 2 MRI's, 3 CT's, multiple blood tests, a VEP test (still waiting for report). I have a 2cm lesion on my brain which was thought to be a tumor (I had a brain biopsy which proved it's a lesion)
I'm wondering if it's my age that makes the Neuro reluctant to ...
Read more : too young to retire | Views : 6003 | Replies : 12 | Forum : MS in the Golden Years

Food sources for E, Pot, Cal, A & Mag

according to june issue of prevention mag

Vitamin E = need 15mg/day

sunflower seeds, wheat germ, red bell pepper, white beans, dark leafy greens

Potassium = neeed 4700mg/day

baked potato w/skin, edamame, spinach, lentils, and ofcourse banana

Calcium = 1000-1200mg/day

low fat plain yogurt, sardines, low fat cheese, tofu, bok choy

Vitamin A = 720 mcg/day

sweet potato, pumpkin, baby carrots, dried apricots, cantaloupe

Magnesioum = 320 mg/day

black beans, brazil nuts, okra, brown rice, ...
Read more : Food sources for E, Pot, Cal, A & Mag | Views : 1524 | Replies : 0 | Forum : Natural Approach

FTY720 Trial for PPMS took an interesting turn today

May 20th was the date I was scheduled to enter the FTY 720 trial for PPMS patients with an intensive day of screening tests. I was trying not to be too hopeful about it because it is 1.25 mg vs placebo. (50-50 chance). I had arranged my ride, scheduled the time off work and started worrying about my lymphocytes level getting too low.

Today, I get a call from my study coordinator who says something ...
Read more : FTY720 Trial for PPMS took an interesting turn today | Views : 2635 | Replies : 3 | Forum : Drug Pipeline


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