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canadians

first of all i should say sorry for not writting sooner
it's been an off and on nightmare since coming back

my major MS issue is pain, not rare but not too common either
my neck, hands, arms, shoulders and ribs are agony i haven't been able to walk because of pain, i've had very little to no relief in 3 years

so my first visit was to the ms clinic in kingston
saw the ...
Read more : canadians | Views : 2411 | Replies : 10 | Forum : Revimmune (cyclophosphamide or cytoxan)


Stony Brook (NY) results in an easy to read format.....

This has possibly been posted before but when I look for it I can only find outdated links etc, so forgive me if I am being redundant:


This is what JH sent to us:


ORIGINALCONTRIBUTION

High-Dose Cyclophosphamide for Moderate
to Severe Refractory Multiple Sclerosis

Douglas E. Gladstone, MD; Kenneth W. Zamkoff, MD; Lauren Krupp, MD; Robert Peyster, MD; Patrick Sibony, MD;
Christopher Christodoulou, PhD; Emily Locher, RN; Patricia K. Coyle, MD

Background: High-dose cyclophosphamide is ...


A Smart Guy on Our Side

There's quite a bit of background, but near the middle there's some detail on the research he's doing.

A rising star

Twenty-two-year-old Fulbright scholar Joseph (Joey) Oved came all the way from the US for an academic year at the Weizmann Institute of Science in Rehovot to research an animal model of multiple sclerosis (MS) - even though he has never met anyone in the throes of the autoimmune disease.
Read more : A Smart Guy on Our Side | Views : 1556 | Replies : 0 | Forum : Drug Pipeline


MS hug?

Anyone ever have a MS hug? This was one of the first symptoms of a flare up. It all started with a little numbness in the toes and feet. Then it moved up one leg. To the point that I could walk but wasn't sure were my feet where. Then it skipped over my waist line and went from my belly button to under my chest. Now when it got that far is when it ...
Read more : MS hug? | Views : 2047 | Replies : 13 | Forum : General Discussion


Awaiting Prognosis Looking For Advice From MS Patients

I'm 26 yrs old going on 27 w/in the month.

Just this past week I've had an MRI done as my neurologist suggested. Both brain and spinal MRI's were attained and I'm currently waiting to hear back from my Neurologist. I was wondering if people that have been diagnosed with MS can weigh in on my current condition (outlined below) to see if these were some of the early symptoms you've had before you were ...
Read more : Awaiting Prognosis Looking For Advice From MS Patients | Views : 3571 | Replies : 17 | Forum : General Discussion


JH has my records!

Hi everyone,

I'd like to thank those of you who have shared their experience of the HiCy treatment.

Carrie at JH received my records on Friday. I'm very "excited" - okay, it feels weird to think that I "want" to have chemotherapy and that I'm excited about doing this.

Some people in my life, including my neuro, thinks this is a drastic move. Of course, my neuro makes no sense - in one breath he ...
Read more : JH has my records! | Views : 4185 | Replies : 21 | Forum : Revimmune (cyclophosphamide or cytoxan)


"New" to it all


Hi everyone,

Well, "cheerleader" mentioned I should post here....so here I am!

I recognize some names here from another forum...so hi!

This is long...but I realize as I sit here, nearly 4 months into this out-of-the-blue random diagnosis....I will share...

Let's see - I'm new to ThisIsMS and MS altogether.

On December 22, 2007, the right side of my face started feeling weird - within a few days, it was entirely numb from chin ...
Read more : "New" to it all | Views : 2157 | Replies : 11 | Forum : Introductions


placenta stem cells used for Acute Lymphoblastic Leukemia

Celgene Cellular Therapeutics Announces Clinical Transplant of Human Placenta-Derived Stem Cells

Celgene Cellular Therapeutics (CCT), a wholly owned subsidiary of Celgene Corporation (NASDAQ: CELG), today announced the clinical application of a human placenta-derived stem cells (HPDSCs) for hematopoietic reconstitution. The groundbreaking transplant occurred at the LSU Health Sciences Center Children’s Hospital (LSU) on March 28, 2008 to treat a pediatric patient with Acute Lymphoblastic Leukemia (ALL), a cancer of the bone marrow and blood. Following ...
Read more : placenta stem cells used for Acute Lymphoblastic Leukemia | Views : 1665 | Replies : 0 | Forum : Stem Cells


immunopathogenesis

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Read more : immunopathogenesis | Views : 1478 | Replies : 2 | Forum : General Discussion


rebooting at JHH

As of May 6,2008 I will be at JHH for the HiCy treatment for MS.
My intention is to try and keep those interested informed of the procedure and my experience with the procedure.

5/6/08

At 7:15 am I went to JHH The email that I received prior to leaving Chicago was detailed and gave step by step instructions. First I signed in and was issued an orange card which one sweeps at specific stations. ...
Read more : rebooting at JHH | Views : 13722 | Replies : 86 | Forum : Revimmune (cyclophosphamide or cytoxan)


 

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