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No Strength After Novantrone Treatment

My wife just started Novantrone.
Her MS has been getting much worse for 3 years now. She doesn't have relapses or remission, she has constant, daily problems walking. She falls alot even with her walker. She is in a freefall towards a wheelchair and she's only 38. The neurologist started her on Novantrone after several other drugs failed to do anything.
She got her first Infusion on Friday. All was fine. Saturday morning she could ...
Read more : No Strength After Novantrone Treatment | Views : 4278 | Replies : 3 | Forum : Novantrone


Question about pain...

Okay, last question...

Pain, am I alone with the whole pain thing? Pain in the hips with any activity, pain to the touch on the arms, sacrum and hips? Pain behind the eye and migraines that kill?

I think that the fatigue comes form all of the pain...any thoughts?

:?:
Read more : Question about pain... | Views : 1750 | Replies : 6 | Forum : General Discussion


Is there any connection with a positive ANA and MS?

Hi~I am wondering if there is any connection with a positive ANA and having MS? Also wondering about elevated liver enzymes (or auto immune liver disease)? How about Iron deficiency Anemia?

Are these common things among the MS diagnosed?

I look forward to hearing from you all~
birdie33
Read more : Is there any connection with a positive ANA and MS? | Views : 3170 | Replies : 4 | Forum : General Discussion


New, Betaseron, and depressed

Hi. I'm new, just started Betaseron with Betaject, my belly is bruised and my mood is crappy. I read all these technical posts and I think 'what'? Do I really have this? I don't know what my vitamin count is, don't recall how many lesions I have (memory issues), don't get tingling or burning in my legs, didn't get a baseline liver enzyme count...Flailing around...
Read more : New, Betaseron, and depressed | Views : 1431 | Replies : 3 | Forum : Introductions


Just diagnosed...

Hi All-

I am Kevin in Colorado and on Tuesday received the word that I have RRMS. Have had 2 bouts of optic neuritus and currently have left eye double vision with severe numbness on the entire right side for 4 weeks now. MRI showed 3 lesions.

While I am completely overwhelmed with information, and the decisions for therapy, I am eager to 'Have MS' and not let MS 'have me.'

Since I am not ...
Read more : Just diagnosed... | Views : 1954 | Replies : 4 | Forum : Introductions


Copaxone and Lipoatrophy - when to stop?

Hi
for those of you who don't know me, been dx with MS 10 years. First 5 years frequent severe relapses, classified as an "interferon failure" on Rebif after 5 years. Switched to Copaxone against my neuros advice (he wanted me on Mitoxantrone but I said no because I wanted children) and to his surprise I have done fabulously well on Cop. I've had maybe 1 relapse a year in the last 5 years, very ...
Read more : Copaxone and Lipoatrophy - when to stop? | Views : 2083 | Replies : 6 | Forum : General Discussion


First MS hospitalisation

It would appear that tuesday/wednesay's fatigue was building up to something bigger. On thursday things were feeling 'off', friday I took a half day at work so I had some relax time and by the evening both feet and my right leg were numb and weak, along with right arm weakness & increased difficulty walking.

Because it was both feet I was worried so I called the out of hours doctors - they admitted me ...
Read more : First MS hospitalisation | Views : 2002 | Replies : 10 | Forum : General Discussion


GM atrophy related to longterm (20yrs) disability

Gray matter atrophy is related to long-term disability in multiple sclerosis.
Ann Neurol. 2008 Jun 20

Nuclear Magnetic Resonance Research Unit, Institute of Neurology, University College London, United Kingdom.

OBJECTIVE:
To determine the relation of gray matter (GM) and white matter (WM) brain volumes, and WM lesion load, with clinical outcomes 20 years after first presentation with clinically isolated syndrome suggestive of multiple sclerosis (MS).

METHODS:
Seventy-three patients were studied a mean of 20 years ...
Read more : GM atrophy related to longterm (20yrs) disability | Views : 1376 | Replies : 0 | Forum : General Discussion


IV steroids protocol success in PPMS

Its only a small cohort of 11 PPMS patients but still encouraging because disability got actually better over a treatment period of 11 years.

The full text of the study can be found here.

--Frank
Read more : IV steroids protocol success in PPMS | Views : 4807 | Replies : 13 | Forum : Drug Pipeline


Curious about a failed physical & MRI

Hey there, I am curious as to why my neurologist wants an MRI? I guess that I failed the physical, so what does that really mean?

I have migraines, fatigue, body hurts to touch (doc said it is like fibro...but not) I have morning stiffness, and after any activity stiffness. In the last year I have lost vision and in the past had a "curtain" of gray over vision on hot days. This year I ...
Read more : Curious about a failed physical & MRI | Views : 1858 | Replies : 7 | Forum : General Discussion


 

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