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Post subject: Aches and pains Posted: Wed Sep 15, 2004 1:56 am |
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I was diagnosed in May 2004 and am on no treatment at present. However, I'm getting fed up with stiffness and aches and pains (legs / arms / back etc) - particualrly in the morning. Does anyone know of anything that might help? My neurologist made no suggestions and didn't seem very bothered (do they have their hearts taken out at medical school?).
The other problem I have is sleep - I keep waking at ...
Read more : Aches and pains | Views : 1903 | Replies : 2 | Forum : General Discussion
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Post subject: IgA antibodies and MS Posted: Tue Sep 14, 2004 3:00 pm |
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This is a very interesting excerpt. I have had ELISA testing for IgG and have no antibodies to gliadin and gluten. So I think I can discount it as having much of an affect on me. My IgG levels are on the low side of normal.
If, however, the we are looking at MS as a syndrome then one can speculate that this may be a trigger for some people. Coeliac disease can cause very ...
Read more : IgA antibodies and MS | Views : 1756 | Replies : 0 | Forum : General Discussion
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Post subject: some ideas for next neuro visit Posted: Tue Sep 14, 2004 12:13 pm |
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Hello to everyone. My first time to ask a question here. I saw our family Dr. yesterday for results from last MRI of brain and it has not changed from one 6 months ago. Have had one MRI of spine and lumbar puncture, both OK, first MRI of brain showed two lesions but inconclusive for MS, (seems being 57 it could just be my older brain), overactive reflexes, dropped foot, muscle twitches, burning sensations, numbness, ...
Read more : some ideas for next neuro visit | Views : 1572 | Replies : 4 | Forum : General Discussion
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Post subject: If you're interested in drug discovery and clinical trials Posted: Tue Sep 14, 2004 11:33 am |
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In light of some of the discussions going on here, I thought this might be relevant.
The link below is to an interesting blog by a chemist (PhD in chemistry) working for a pharmaceutical company (he sounds reasonable to me, but your bias sensors might be more perceptive than mine) in which he attempts to summarize some of the work that goes into developing a new drug. I don't understand the chemistry, but I found ...
Read more : If you're interested in drug discovery and clinical trials | Views : 1266 | Replies : 0 | Forum : General Discussion
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Post subject: LDN Research Trust *SURVEY* - for all who take LDN Posted: Tue Sep 14, 2004 3:47 am |
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If everyone taking LDN could fill out this survey, Linda from the LDN Research Trustand LDN Petition will be compiling all the data received. They are trying to get things going over there in the UK working with Drs. Coles and Lawrence, momentum is building. Hopefully we'll all benefit from their efforts. They need the support of everyone taking LDN or in support of research and trials. This particular survey is for those who are ...
Read more : LDN Research Trust *SURVEY* - for all who take LDN | Views : 2069 | Replies : 4 | Forum : Low Dose Naltrexone
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Post subject: Antegren question Posted: Mon Sep 13, 2004 12:00 pm |
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Antegren looks like the next big thing in MS treatment, but when is it likely to come to the market in the US (no doubt sufferers in the UK will have to wait a couple of years!)? Is it likely to be much better than the performance of the current drugs for modifying this disease (I've had one attack so am not eligible to start any ABC treatment)?
What else is in the pipeline - ...
Read more : Antegren question | Views : 1838 | Replies : 3 | Forum : General Discussion
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Post subject: Giving Research to Vanderbilt Posted: Mon Sep 13, 2004 10:45 am |
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Hi, folks. As you can see, I'm back today.
Just as an FYI (to anyone who might be interested), as I mentioned in another thread, my appointment with the Vanderbilt docs (Dr. Sriram's team) is coming up on the 28th. In spite of my own issues, I have ALL my notes, reports, and research I did (and posted on this website) all ready to hand over to them! I still plan on asking how their ...
Read more : Giving Research to Vanderbilt | Views : 1424 | Replies : 1 | Forum : General Discussion
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Post subject: Important to read this page............ Posted: Mon Sep 13, 2004 2:51 am |
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Post subject: Copaxone break Posted: Mon Sep 13, 2004 2:28 am |
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I have just taken a 10-day break from my copaxone. Before I start again, I am wondering if there are any cautions I should be aware of. It looks like the research shows you can start again with no problems, but I do not know for sure and don't want to experience the hyper feeling if that is more likely. Any info please?
Thanks, Sheila
Read more : Copaxone break | Views : 2129 | Replies : 2 | Forum : Copaxone
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Post subject: oddduck Posted: Sun Sep 12, 2004 5:05 pm |
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hello,
i was just reading one of your replies on here, and noticed you said u have 3 children and 5 grandchildren, did any of your children end up with ms? i am asking because i you know all the supposed theories on getting ms, and some say it is genetic, and i have been worried, since i have 3 children, i was dx'ed after having them. and worry everyday that my children might have ...
Read more : oddduck | Views : 1617 | Replies : 7 | Forum : General Discussion
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