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Rtiuxan

Just a sugestion but how about place on the treatment board for Rituxan? I know there are a few here that are trying Rituxan even though it is not FDA approved. Me for one and I am seeing some great results and would like to know how others are doing. Thanks arti
Read more : Rtiuxan | Views : 3368 | Replies : 2 | Forum : Suggestions


Funny

http://www.youtube.com/watch?v=uR88nKyKj3U
Watch this video, amazing what I considered music back in the 80's.
Always makes me smile. thanks arti
Read more : Funny | Views : 5403 | Replies : 28 | Forum : Humor


Programmable Stem Cells?

Found an interesting article about UCLA Researchers that created Programmable Stem Cells.

Worth a look at:
http://www.dailytech.com/UCLA+Researchers+Create+Programmable+Stem+Cells/article11688.htm
Read more : Programmable Stem Cells? | Views : 1822 | Replies : 1 | Forum : Stem Cells


Misdiagnosed

I was misdiagnosed for 4 years with MS by two different neurologists. Original ER Neurologist Definite MS, 2nd neuro, probable MS. 2008, MS specialist Dr. Michael Olek recently completed a battery of various tests and has correctly diagnosed me with having had a brainstem stroke.

PLease have your doctor do a antiphospholipid antibody blood test. Basically this is to find out if you have blood that clots too easily. I do, its called Hughes Syndrome. ...
Read more : Misdiagnosed | Views : 4457 | Replies : 22 | Forum : General Discussion


Is this just a misunderstanding between my GP/Neuro?

I saw my GP today for the first time since I was diagnosed with MS in March (the 5th). At the time of my lumbar puncture, 11 vials of blood were taken, and I was certain that the tests would include everything I have heard others speak about (including lyme, hiv, lupus, thyroid, vitamin deficiencies).

I asked my GP today, and she pulled the results from a computer. She showed me the sheets, which I ...
Read more : Is this just a misunderstanding between my GP/Neuro? | Views : 3038 | Replies : 29 | Forum : General Discussion


Hello

I have been lurking on the site for yrs. DXd 5 yrs ago w/MS; RRMS or PPMS was not determined @ that time but it looked progressive. I had been experiencing symptoms that clearly indicated something was WRONG for 2 yrs before breaking down and dealing w/it. My early symptoms, foot drop mainly after strenuous exercise, seemed like they could indicate not only MS, but ALS or Parkinson's. My feeling was, I am in no ...
Read more : Hello | Views : 1530 | Replies : 3 | Forum : Introductions


The Burning Question

I refer y'all to p.2 of our new protocol/consent form stuff.

p. 2 of 14

TO BE IN THIS STUDY

· You cannot be in this study if you did not receive at least one dose in the previous TERMS study...

Is this "one dose" Tovaxin? As you all may recall, I stirred up a hornet's nest when I reported back that my first injection was different "stuff" than what I received subsequently.

My wild ...
Read more : The Burning Question | Views : 1859 | Replies : 3 | Forum : Tcelna (Tovaxin)


NMSS Summer research bulletin

Dignan,

There's a bit on EPO and an article on channel blockers (sodium)

http://www.nationalmssociety.org/resear ... px?id=1088
Read more : NMSS Summer research bulletin | Views : 1430 | Replies : 0 | Forum : General Discussion


New to LDN

Thought I would let you all know that I decided to go on LDN. I started last week at the 1.5 mg dosage. Thanks to the LDN website and the links to Crystal's website, I was able to find a prescribing doctor, who coincidentally spoke at the 2007 LDN conference - Dr. Terry Grossman. Dr. Grossman has me on the 1.5 mg dosage for 30 days, and then I will go to the 3.0 mg ...
Read more : New to LDN | Views : 2711 | Replies : 2 | Forum : Low Dose Naltrexone


Welcome Tidbits for the "Second Half"

Guess what? During my visit last Friday for Week 52/0, I got some news "hot off the press" for us.

We will no longer have to endure that "memory/math" torture with the Hal9000 voice. This is a real relief--I was a wreck before each and every one of those "tests." It was too much of a habit to make a running total of those numbers... I'm sure my b/p spiked 50 points during those few ...
Read more : Welcome Tidbits for the "Second Half" | Views : 1950 | Replies : 6 | Forum : Tcelna (Tovaxin)


 

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