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Hello from the Garden State!

Hi Everyone,

Well, I was diagnosed with MS three weeks ago this upcoming Thursday. It started with Optic Neuritis and you could have blew me over with a feather when the Opthamologist said "you know, I want you go to go a neurologist. This could be MS." Well, after plenty of testing, MRI, etc. I met with the neurologist (after an initial meeting) and in 10 minutes found out I had MS, what the pros ...
Read more : Hello from the Garden State! | Views : 1489 | Replies : 3 | Forum : Introductions

Anyone "heavy" on Avonex?

Hey Everyone,

I'm definitely overweight and I'll be starting Avonex soon. Anyone else on here have a little extra "junk in the trunk" hahaha and how do you do with your Avonex shot? Where do you take your shot?

Read more : Anyone "heavy" on Avonex? | Views : 2411 | Replies : 1 | Forum : Avonex

Rituxan News

Here's some recent news regarding Rituxan...

FDA cites brain virus with Genentech, Biogen drug
FDA alerts doctors to fatal case of rare brain virus in patient taking Rituxan
September 11, 2008: 04:39 PM EST

NEW YORK (Associated Press) - Federal regulators said Thursday one case of a deadly brain infection has been reported in a patient taking Genentech and Biogen Idec's blockbuster arthritis and cancer drug Rituxan.

The Food and Drug Administration said the woman ...
Read more : Rituxan News | Views : 1351 | Replies : 0 | Forum : General Discussion

I Feel Stupid!!!

I consider myself to be fairly bright, did ok on the SATS, did well in college and so on...

When Brian was diagnosed with MS this year I became the "researcher". I've looked into everything. Investigated all the treatment options, looked into new diets, asked for help in determining good vitamins and other supplements, but I just can't wrap my mind around the treatment studies. I get lost with the numbers and confusing statistics.

I ...
Read more : I Feel Stupid!!! | Views : 2309 | Replies : 5 | Forum : Copaxone

Requesting Constructive Opinions/Insights

if nobody minds, i thought i'd repost this entry to perhaps get more thoughts on the pickle i'm in.

thanks so much, guys. so i gather from what you write that i should be able to get steroids immediately after procurement and it won't affect my vaccine schedule one bit, right? and a few other questions:
*does anyone know if a 3 day course of steroids is as good as a 5 day course? ...
Read more : Requesting Constructive Opinions/Insights | Views : 1953 | Replies : 3 | Forum : Tcelna (Tovaxin)

High Dose Cyclophosphamide Papers

Three papers which Leon posted in another thread.

They make for very interesting reading.

Perhaps this thread should be sticky? I found them very useful

1. Multiple sclerosis: long-term remission after a high dose of cyclophosphamide

2 High dose cyclophosphamide preferentially targets naïve T (CD45/CD4/RA+) cells in CIDP and MS patients

3 Reduction of Disease Activity and Disability With High-Dose
Cyclophosphamide in Patients With Aggressive Multiple Sclerosis
Read more : High Dose Cyclophosphamide Papers | Views : 1967 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)

Puffy lower eyelids and sunken eyes from Rebif

So I noticed my lower eyelids were so puffy suddenly in March..I thought it was a thyroid problem so I went to the doctor and he said my liver enzymes were high (from blood tests). I got another blood test a month later and they were back to normal, but my eyes got worse. They are still puffy and now sunken in. I got so depressed and I wouldn't smile because I had these horrible ...
Read more : Puffy lower eyelids and sunken eyes from Rebif | Views : 3579 | Replies : 3 | Forum : Rebif

MS treatment of 1950's

Through someone's post here (sorry, I forget who that was) I came across this site: and I found this info especially interesting: because of these lines:
Finally, we must recall the therapeutic benefit of central nervous system vasodilators in MS patients, pioneered by Bayard Horton of the Mayo Clinic, tested on acute MS symptoms for 14 years by Brickner, considered the treatment of choice for MS by most physicians during the 1950s, and proved ...
Read more : MS treatment of 1950's | Views : 4542 | Replies : 17 | Forum : General Discussion

health associations with mag deficiency

fun list -

Deficiency (from low dietary intake or excess loss) is clinically associated with:

* Alzheimer's
* Angina
* Anxiety disorders
* Arrhythmia
* Arthritis- Rheumatoid and Osteoarthritis
* Asthma
* Autism
* Auto immune disorders- all types
* Cavities
* Cerebral Palsy- in children from magnesium deficient mothers
* Chronic Fatigue Syndrome
* Congestive Heart Disease
* Constipation
* Crooked teeth- narrow jaw- in children from magnesium deficient mothers
* Depression ...
Read more : health associations with mag deficiency | Views : 1680 | Replies : 4 | Forum : General Discussion

bad news for Loobie

So I got my fifth shot today. I've been being kind of quiet on the Tovaxin thread because I just didn't have anything really concrete to report. Well at my EDSS evaluation, I'm back up to a 4; skipped right on through 3.5. Since I'm not having any "new" symptoms I was kind of hoping beyond hope, but the last week has just been more downward progression of my walking ability. I had to use ...
Read more : bad news for Loobie | Views : 2696 | Replies : 9 | Forum : Tcelna (Tovaxin)


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