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new here - scared, lonely, and depressed.


let me first start by that, as of right this second, i still have yet to be diagnosed as having MS. my symptoms are strange and i'm having an MRI soon. i really have no place else to turn as it seems until i get a diagnosis my family and friends think i'm nuts and i shouldn't worry about it until i'm officially diagnosed (easier said than done). it all started in september after ...
Read more : new here - scared, lonely, and depressed. | Views : 6331 | Replies : 46 | Forum : General Discussion

Here if you need me by Kate Braestrup

True story by the young widow of a Maine police officer who takes up her deceased husband's dream and goes to seminary to become a chaplain. Not at all preachy or melancholy, but a wise, honest and often funny account of how one woman dealt with a huge transition in her life. I loved Braestrup's writing...her poetic descriptions of the Maine landscape, her insight into life and death, her humor.

highly recommended for those asking ...
Read more : Here if you need me by Kate Braestrup | Views : 3295 | Replies : 0 | Forum : Reading Nook

absorbable D3

Anyone try this? The kind you'd put under the tongue.

I've got B12 like this, but never tried D3
Read more : absorbable D3 | Views : 2128 | Replies : 3 | Forum : Regimens

Procurement scheduled!

Howdy all,

Marcia and I, we're both doing the study here in Lexington, Ky, are officially scheduled for our procurement blood draw next Monday, May 5! I guess it could be simply coincidence but I have been contacted within a day every time I have called Opexa and left a message for Shannon letting her know that I need to know MRTC test results, I need to be contacted about procurement or LifeBlood needs to ...
Read more : Procurement scheduled! | Views : 2194 | Replies : 6 | Forum : Tcelna (Tovaxin)

Concrete sandwich and concussion

Two Fridays ago I fell down an flight of 3 stairs and did a face plant onto the concrete below. I fractured my skull, was knocked unconcious and suffered a stage 3 concussion. Wow, I spent 2 days in ICU and another in the hospital. I had CSF fluid coming out of my ears in the ER.

I am starting to recover, but the headache and balance are still bad. I believe my fall was ...
Read more : Concrete sandwich and concussion | Views : 2354 | Replies : 12 | Forum : General Discussion


I having been getting hives for about a month now. I am going to see an alergy specialist next week. I wanted to know if anyone who has MS has gotten hive. I have changed nothing like meds, shampoo detergent, etc. They just come and go. Today one on my lip. Friday night my chin . Last week my left shoulder and both hips. Just out of the blue. It's really weird. If anyone has ...
Read more : Question | Views : 1904 | Replies : 3 | Forum : Daily Life

Hi Everyone

I hope everyone is having a great day. I need the help of everyone out there. I know I introduced my self the other day. I told you about the auction we are having to raise money. I really need the help of everyone to pass the site on to people who could afford this Cycle we have up for auction. It was my biggest donation! I know it's a lot of money but someone ...
Read more : Hi Everyone | Views : 1428 | Replies : 2 | Forum : Introductions


I am beginning to think the rituxan is working for me. Last weekend I spent most of my time either fishing or working in the yard. The fishing isn't out of the ordinary but the heavy duty yard work is. It was hot and I was running a chainsaw all day. This is the first time in a long while that I have been able to do something like this. It feels so good to ...
Read more : MY RITUXAN | Views : 1452 | Replies : 1 | Forum : General Discussion

Still learning about this disease

So today, I woke up, felt pretty good. 3pm, I get this burning in both sides of my face, under my eyes to my top row of gums. It's so bad, I consider going to the hospital (was making my eyes burn, and I had no fever).

By 5pm it was beginning to go away. 6 pm, gone. 8 pm... coming back.

Is this honestly what MS can do?? I have not began my DMD ...
Read more : Still learning about this disease | Views : 2733 | Replies : 12 | Forum : Daily Life

newbe here

Found this group today.
Have had "possible MS" since 1969. Relapse and new tests 2004 with definite DX of MS. Was on Betaseron for almost 4 years. Really bad relapse in Dec. 2007. Changes to Copaxone and had a bad reaction on day 4 & 5 of it.
Was told to stop it. Then it took several months and new MS neuro specialist to get me started on Tysabri. Had my first infusion on April ...
Read more : newbe here | Views : 1385 | Replies : 0 | Forum : Introductions


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