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Gluten Free Diets

For those on the Best-Bet or gluten free diets, do you have substitutes for bread and pasta? I've been considering this diet, but I tend to eat a lot of sandwiches and make pasta often, since it's so easy.
Read more : Gluten Free Diets | Views : 4419 | Replies : 14 | Forum : Diet

I did High Dose Cytoxan Treatment in North Carolina.

I am so glad to find this forum! I received my final dose of high dose cytoxan on March 19th and have been home for two weeks. I am a 43 year old woman diagnosed with RRMS in '94. Progressed to SPMS in '00 and have experienced slow disability (especially gait) since then. Progression really picked up about three/four years ago and none of the conventional treatments helped.

My neurologist (Dr. Ugo Goetzl of Raleigh ...

urinary tract treatment?

This sounds promising:

Effect of craniosacral therapy on lower urinary tract signs and symptoms in multiple sclerosis.

Complement Ther Clin Pract. 2009 May;15(2):72-75.
Raviv G, Shefi S, Nizani D, Achiron A.
Urology Department, Sheba Medical Center, Tel Hashomer, Affiliated to the Sackler School of medicine, Tel Aviv University, Israel; Multiple Sclerosis Center, Sheba Medical Center, Tel Hashomer, Affiliated to the Sackler School of medicine, Tel Aviv University, Israel.

To examine whether craniosacral therapy improves lower ...
Read more : urinary tract treatment? | Views : 1591 | Replies : 2 | Forum : General Discussion

A Caregivers' perspective

It was July of 2006 when I found my wife unable to move and in need of immediate medical attention. I had to carry her to the living room and call 911.

We weren't sure if it was a stroke or what had happened.

The Neurologists were called in and the initial diagnosis was Guillone Barré.

Various treatments were given, including a Plasma replacement treatment that she "bottomed out" on, and after a number of ...
Read more : A Caregivers' perspective | Views : 1561 | Replies : 12 | Forum : Introductions


Have any of you had any experience with the anti-emetic drug odansetron? I went into hospital in Dec for a minor op and was given Odeansetron via IV after the op to prevent sickness. What it actually did was improve all my MS symptoms (i.e l'hermittes). I then went and asked the nurse what I was given and has it ever been used for anything else other than sickness he had no idea but ...
Read more : odansetron | Views : 1159 | Replies : 1 | Forum : General Discussion

Forum for parents with MS

Please let me know if I've missed it, but I'd like to see a forum for parents who are dealing with raising children while coping with MS symptoms themselves.
Read more : Forum for parents with MS | Views : 3730 | Replies : 2 | Forum : Suggestions

Has anyone tried Osteopathy?

I have heard that Osteopathy can be an effective treatment for some symptoms - has anyone had experience with it that?
Read more : Has anyone tried Osteopathy? | Views : 2263 | Replies : 2 | Forum : Natural Approach

I have completely freaked myself out

I have the Copaxone in the fridge and will take my first injection whenever the nurse gets to my house to set me up. I have read so much about the "fake heart attack" that I have completely freaked myself out. I am convinced it is going to happen to me sooner or later and I don't know if I'm going to be able to go through with it. I get heart palpitations now just ...
Read more : I have completely freaked myself out | Views : 2604 | Replies : 10 | Forum : Copaxone

MRI comparison shots

I thought this may be nice to show for my one year anniversary and to show some clinical proof HiCy works.
Read more : MRI comparison shots | Views : 2055 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)


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