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Steve's Updated Regimen

It's been a long time since posting here on Steve's treatment regimen. Steve has secondary progressive MS, and after he got worse on Rebif, we looked for a different direction in treatment. I found the Vanderbilt long term combined antibiotic protocol for the treatment of chronic Chlamydia pneumoniae infection, Steve tested positive for chronic infection, and he has been taking antibiotics ever since. Very early this year, we learned that Steve also has Lyme Disease ...
Read more : Steve's Updated Regimen | Views : 2442 | Replies : 2 | Forum : Regimens

stem cell drug hopes

Stem Cell Drug Hopes
Posted on: Wednesday, 3 September 2008, 18:00 CDT

SCIENTISTS have designed stem cell tools to aid the development of drugs to fight brain disorders like Alzheimer's and Parkinson's.

The breakthrough was announced today by a team of scientists from Durham University and the North East England Stem Cell Institute (NESCI).

They have developed and tested two synthetic molecules which can be used to coax stem cells into transforming into other forms ...
Read more : stem cell drug hopes | Views : 1681 | Replies : 0 | Forum : Stem Cells

Sunny Hallo from South Africa

Hi there everyone!

Glad to have found this site... Good to know there are others out there going through the same thing :D as I feel that this is a very peronal disease. I am 28, diagnosed a year ago. I have about 15 lesions but I am fine. Nothing hectic wrong with me, I only suffer from vertigo qiote regularly.

I am using avonex and ...
Read more : Sunny Hallo from South Africa | Views : 1417 | Replies : 2 | Forum : Introductions

New day New surprise.

Another new symptom today. Lump in the throat. I'll head downstairs in a minute to take mag. I wanted to read here first. I've been careless about taking the supplements lately.
I've added quite a few new symptoms in the last few months. Double vision (gone for now), itchy-pin-pricks, butt cramps (not nice to wake up to, but gone for now), and now the lump in my throat. When you add these to the issues ...
Read more : New day New surprise. | Views : 2918 | Replies : 21 | Forum : General Discussion

Too First Step

I took the first step and sent an e-mail to Carrie Trekker's assistant asking for the info to start the process for getting accepted into the program.

I'm very excited about getting the list of requirements so I can begin getting everything ready. I only sent the e-mail this morning but I am eager to get a response.

I've started the real Tovaxin vaccines but I still had a really hard weekend with my ms. ...
Read more : Too First Step | Views : 1673 | Replies : 1 | Forum : Revimmune (cyclophosphamide or cytoxan)

Dirucotide-ph. 3 for SPMS

Edmonton-based BioMS Medical Corp.'s multiple sclerosis treatment has been given fast-track designation by the U.S. Food and Drug Administration.
The drug, Dirucotide, is currently in a Phase 3 clinical trial involving 510 patients at 68 sites.
"Our receipt of fast track designation for Dirucotide in the U.S. is a significant milestone for both BioMS Medical and the MS community," CEO Kevin Giese said.
"Based on previous clinical results, we believe Dirucotide is well-positioned to become ...
Read more : Dirucotide-ph. 3 for SPMS | Views : 5644 | Replies : 20 | Forum : Drug Pipeline


We are moving house at the end of this month as I can no longer cope where we are - we live in a 4th floor flat and I have to climb 4-5 (depending on the entrance) flights of stairs to get to my own front door. It just exhausts me and is dangerous. We have found a nice little place just down the road form here to go to. It is going to cost ...
Read more : moving | Views : 4081 | Replies : 27 | Forum : General Discussion

HiCy Relieves MS Symptoms

Our very own Chris Young ladies and gentlemen!

Mel continues to do well, her 3 month was v.positive, she aced the maths test for the first time ever, gait is better, walk test is faster and EDSS has dropped.

Heat really flares things up by they settle when cool, it's HOT in Houston, we've dropped the AC to 70 from its usual 75-77 and that has done the ...
Read more : HiCy Relieves MS Symptoms | Views : 8122 | Replies : 52 | Forum : Revimmune (cyclophosphamide or cytoxan)

Small Update but Positive...and THANKS to JimmyLegs

Well I tried the Magnesium....its been about a week now I think...but I do notice a difference. The turning point was last night I thought..."I'm not hurting as bad, I'm not so stiff," and I think it's the Mag because I stopped the Zanaflex after a few doses.
Sure I feel tired at the end of the day and all if it is not totally gone but I do feel some relief.....its not as bad ...
Read more : Small Update but Positive...and THANKS to JimmyLegs | Views : 1518 | Replies : 2 | Forum : General Discussion

Trialresults IVIG in SPMS and PPMS

This placebo-controle 24 month trial showed some effect on disability progression. But its noteworth that 120 of 231 patients withdrew from the study for "various reasons".


Intravenous immunoglobulin in primary and secondary chronic progressive multiple sclerosis: a randomized placebo controlled multicentre study
01 September 2008

In patients with relapsing-remitting multiple sclerosis (MS), IVIG was shown to reduce the relapse rate and progression of disability. In patients with chronic progressive MS, a beneficial effect ...
Read more : Trialresults IVIG in SPMS and PPMS | Views : 1897 | Replies : 0 | Forum : Drug Pipeline


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