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Copaxone Poison

I was misdiagnosed with multiple sclerosis instead of the correct diagnosis of brainstem stroke. I had been on Copaxone for the four years of my misdiagnosis. About the fifth week of taking Copaxone, I developed a almost constant head tremor. (Dystonic No-No) It appeared as if I was shivering or repetitively shaking my head no very quickly. My quack neuro said that it was a symptom of my MS. I tried a variety of meds ...
Read more : Copaxone Poison | Views : 2798 | Replies : 10 | Forum : General Discussion


What antiviral drug while on LDN?

As the tittle says what antiviral drug can someone use while on LDN?
Wife had two colds last month that brought back some of her MS symptoms, hope not permanently, I wonder what else can we use along with LDN that has antiviral properties by stimulating immune system?
Symmetrel or acyclovicir interfere with LDN as far as I know.
Read more : What antiviral drug while on LDN? | Views : 2400 | Replies : 0 | Forum : Low Dose Naltrexone


Neurontin

Anyone taken this drug before?

Day 5 was today. I was aware I could go from 100mg to 200mg anywhere from 4-7 days in.

Well, my facial pain was terrible today, so I took 100mg upon waking (I take 100mg in the evening). My gosh. My face feels NUMB LOL.

Is this normally what the drug does? I have very little experience with it. My mouth pain went away for the most part at least!
Read more : Neurontin | Views : 1592 | Replies : 3 | Forum : General Discussion


HiCy & Returning Relapse Rate?

I have been watching this board for about six months and finally made the call to Carrie this morning.

As a short backgrounder, I have had MS for 14 years but you would never know it by looking at me. I work 10 hour days at work and don't seem to have some of the problems some of the other MS'ers have with heat and fatigue (I feel very lucky!).

Back to the call, we ...
Read more : HiCy & Returning Relapse Rate? | Views : 2831 | Replies : 9 | Forum : Revimmune (cyclophosphamide or cytoxan)


Question about IVSM

I had my 1st 3 day course of IVSM, 1000 mg/day, It's been a week, am I supposed to feel different by now?

I thought I had a moment or 2 of mental clarity the other day, and I got all excited, but today I'm back to walking into walls.

I'd love to hear everyone's experiences...
Read more : Question about IVSM | Views : 1832 | Replies : 7 | Forum : General Discussion


Cord Blood

If you had children fairly recently, did you choose to save the cord blood?

Why or why not? Would you with future children?

I confess I know very little about stem cells and MS, but I am intrigued by the possibility of doing this with my future children.
Read more : Cord Blood | Views : 2905 | Replies : 11 | Forum : Stem Cells


Questions and responses to the 100 plus days club members

Hi to all,

This is where to ask your questions of the people in the study. I hope Bob will keep an updated list of all questions asked as the second post on this thread.

Go BobImage

Some points to review. There will be a quiz later.

I never had an injection site reaction.
http://www.thisisms.com/ftopic-3409-0.html


MRTCs, Masking/Suppressing, and Some Thoughts
http://www.thisisms.com/ftopict-4868.html

Some ...
Read more : Questions and responses to the 100 plus days club members | Views : 11229 | Replies : 72 | Forum : Tcelna (Tovaxin)


The 100 Plus Days Club

Hi to all,

This is an exclusive club composed of people in the IIb extension study who are at least 10 days past receiving their third injection of the reel stuff. Although I am starting this thread, I am not part of the club. I feel that this thread will be beneficial to people in the study, people considering the phase III study, and anyone interested in Tovaxin.

I would like to see study participant ...
Read more : The 100 Plus Days Club | Views : 2760 | Replies : 3 | Forum : Tcelna (Tovaxin)


nutrition and expecting moms

hey this article looks pretty informative

http://bmb.oxfordjournals.org/cgi/reprint/55/3/499.pdf

the roles that the different vitamins and minerals play in fetal growth and development are reviewed, primarily with respect to growth and differentiation in humans; but, as appropriate, data provided from animal and cellular studies are also considered.


throw in what we know about the usual suspects in ms and that article looks like it could be a pretty useful resource.
Read more : nutrition and expecting moms | Views : 1372 | Replies : 2 | Forum : Natural Approach


Infections and Transplants

I was going to post this on the hicy forum but decided to put it here as it is speculative and only tangentially related to treatment with hicy.

I wondered about permanently latent virii like:
-HSV1 (cold sores on the lips)
-HHV6 lives in you forever after contacting it as a kid (we all have it)
-EBV lives in your b cells forever, and possibly the marrow

those are all viruses that the vast majority ...
Read more : Infections and Transplants | Views : 1387 | Replies : 0 | Forum : General Discussion


 

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