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Ignore Button

OK, some message boards have this little thing called a "Ignore Button" where if you really get fed up with someone like "Peta Kitty", you simply go to your control panel and add the user name that you no longer wish to read their message, simple as that. What up on the Vbulletin thing? :D
Read more : Ignore Button | Views : 3637 | Replies : 0 | Forum : Suggestions

when the mds and rns just don't like you

This is related to the topic about people not getting it. W hat happens when you can't find the "health team" that the ms society likes to talk about? What do you do when they tell you they "can't understand you" on the phone and insist that you drive 400 miles to see them even though you just saw them the day before? What happens when 99 percent of your questions are answered with a ...
Read more : when the mds and rns just don't like you | Views : 1341 | Replies : 4 | Forum : General Discussion

Allergic Reaction


My wife had her (10th I think) infusion today and had a slight allergic reaction immediately after the infusion - red welt on chin and hayfever eyes. Calmed down quickly with anti-histamine and neurologist seemed quite relaxed. (Note apart from this my wife has found tysabri to be great - no relapses, energy back etc).

Does anyone know if an allergic reaction is indicative of antibodies or ? Just not sure if its something ...
Read more : Allergic Reaction | Views : 2007 | Replies : 1 | Forum : Tysabri (Antegren or Natalizumab)

Myelin Repair Foundation - Matching funds for Trial ... ial-for-ms

Fund Our Clinical Trial by June 30
MRF Principal Investigator Steve Miller, Professor of Biomedical Sciences from Northwestern University, has a promising idea for an MS treatment.

In multiple sclerosis, the immune system sees myelin proteins as foreign material and attacks them. Recent research indicates that we may be able to "trick" the immune system into believing that the myelin protein is not a foreign material. ...
Read more : Myelin Repair Foundation - Matching funds for Trial | Views : 1839 | Replies : 3 | Forum : General Discussion

i start Tysabri on Thursday morning

so i'm set to start Thursday morning 9am and was wondering if there's anything i should do to prep? Any suggestions on 1st infusion?

My best friend is coming with me... and i've taken the day off work to just come home and relax afterwards.

I'm a little worried about side fx.... anyone experienced anything?

Lots and lots of questions... and my nerves are starting to kick in with the clock hitting the less than ...
Read more : i start Tysabri on Thursday morning | Views : 2247 | Replies : 9 | Forum : Tysabri (Antegren or Natalizumab)

Probably a dumb Question, But....

On the best Bet Diet, I see that you can make rice milk, ect... But can you actually eat the rice?
Read more : Probably a dumb Question, But.... | Views : 2363 | Replies : 9 | Forum : Diet

What happened to Petakitty?


Does anyone know what happened to him? I just noticed all of his posts have been deleted.
Read more : What happened to Petakitty? | Views : 3336 | Replies : 25 | Forum : General Discussion

Hi from Cali

Hello - I just found this site and thought I would check it out.

I've been dx'd w/RRMS since July of 03; according to my Neuro - he believes I had episodes dating back to 1994.

I spent a few years with 'mysterious' symptoms that would appear and disappear and the docs could never figure it out. Some of the possible dx were Petite Mal Seizures, Tendonitis, Rheumatoid Arthritis, sore muscles, stress and I'm sure ...
Read more : Hi from Cali | Views : 1401 | Replies : 3 | Forum : Introductions

Running out of options - could use some advice!

New to this forum - diagnosed nearlly 8 yrs ago - relasping/remitting... progressing...
Avonex, Copaxone, Beta Seron, & Rebiff slowed things done some - but the side effects were not tolerable. Still pulsing IV solumedrol but it's not as effective as it used to be...
Need to make a change but am terrified of the options - 1)Chemo or 2) Tysabri...

I am at home now (on disability) with a 2 yr old... looking for ...
Read more : Running out of options - could use some advice! | Views : 3681 | Replies : 21 | Forum : Introductions


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