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Why Novantrone?

I went to see my neurologist yesterday, I go as infrequently as possible. I told him I went off my Avonex in December after nine years. I proceeded to tellhim I was considering LDN and he almost freaked. Now in the last nine years I've progressed nicely from walking without assistance to wheelchair bound. Never once did my Doctor tell me about Novantrone but now that I'm off Avonex and possibly considering LDN, he tells ...
Read more : Why Novantrone? | Views : 5730 | Replies : 6 | Forum : Novantrone


Read more : 123 | Views : 8091 | Replies : 43 | Forum : Revimmune (cyclophosphamide or cytoxan)

Copaxone cuts risk of developing MS-

-In 481 patients presenting with a first flare and confirming MRI, but no definitive diagnosis.

In the interim analysis, the proportion of patients developing clinically definite multiple sclerosis (re: a second flare) was 43 percent in the placebo group compared with 25 percent in the Copaxone group, Teva said.

For those that received a clinical diagnosis of MS- the second attack was delayed to 722 days, vs. the 2nd attack average of 366 days in ...
Read more : Copaxone cuts risk of developing MS- | Views : 2491 | Replies : 1 | Forum : Copaxone

Anyone using the enzyme Superoxide dismutase (GliSODin)?

I've been taking this antioxidant enzyme for about a month now and I think it's actually doing something! However it seems to be making one leg better and the other leg worse so it seems a bit of a mixed bag. Nonetheless I think that I'm becoming glad that I've found this pill as I can just tell it's doing something. I feel different. My burning pain has gone to not unpleasant tingling, the sharp ...
Read more : Anyone using the enzyme Superoxide dismutase (GliSODin)? | Views : 2767 | Replies : 6 | Forum : Natural Approach

Where I am - still so confused!

It still seems like you guys are talking a foreign language, but I think I am getting there!

I still haven't had a definite dx - just lots of murmurings of MS from docs. I saw the neuro on 8th Jan and had MRi on 16th (bloody fast for NHS) and I now have to wait until 6th March for results! Although I have not been given a dx, the neuro I saw on 8th ...
Read more : Where I am - still so confused! | Views : 1875 | Replies : 5 | Forum : General Discussion

Allergic reactions

Hello to everyone, I am very much aware that this maybe the best forum around the world for MS, so this is the place to place my ...... question regarding my third infusion of Tysabri here in Greece.

It started off neat, talking to my fellow Tysabri friends in the hospital chatting about stuff, however when the infusion reach its 50ml point (half way), I suddenly felt mentally abit weird, and my face and hands ...
Read more : Allergic reactions | Views : 4837 | Replies : 9 | Forum : Tysabri (Antegren or Natalizumab)

Tysabri May Be linked to Melanoma

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Doctors report 2 cases of the deadly skin cancer developing in patients taking Tysabri

By Amanda Gardner
Posted 2/6/08

WEDNESDAY, Feb. 6 (HealthDay News) -- Almost immediately after a 46-year-old woman with multiple sclerosis received her first dose of the drug Tysabri, a mole that had been on her shoulder for years suddenly took on a dangerous new character. It turned out to be a melanoma that spread like wildfire. The woman now ...
Read more : Tysabri May Be linked to Melanoma | Views : 6465 | Replies : 16 | Forum : Tysabri (Antegren or Natalizumab)

Have sent my records to JH for HiCy

I want to agree with everyone who said the team at JH is incredible. I phoned Carrie Trecker, got phoned back by one of the doctors on the team, who spent more time reviewing my status/symptoms than my neurologist has in total over two years. His careful detail made me feel very positive about the treatment and I'm waiting for a cancellation on their schedule to fly out to JH for an full appointment.

I ...
Read more : Have sent my records to JH for HiCy | Views : 2715 | Replies : 10 | Forum : Revimmune (cyclophosphamide or cytoxan)

To Loobie

Hey how are you doing on the Acetyl-Glucosamine? Send me a messege.

I recently added triple strength Glocusamine Chondroitin and Acetyl-Carnitine. I don't always take them together.

I've got an instinct about when and how much to take these things and it varies. I seem to be doing somewhat better with the alternating combo.
Read more : To Loobie | Views : 1285 | Replies : 0 | Forum : General Discussion


I was just wondering what is happening when one day out of the blue you just feel better. You can notice that you can lift your feet a little of the rug you can pull your knees up in bed you can stand a little longer your head feels clearer you just feel more human. This is with no drugs and no difference in the daily routine. This feeling then passes and it’s back to ...
Read more : Question? | Views : 3415 | Replies : 17 | Forum : General Discussion


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