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Forgot it!

Forgot to introduce myself, I am Jim (or Dimitris localy) from Greece and I am here because my wife suffers one year now from RRMS!
Found this site very useful and informative, it not only refers to every new regime but has members with open minds to new therapies.
Hi to all!
Read more : Forgot it! | Views : 1396 | Replies : 1 | Forum : Introductions


Biogen CEO predicts more brain disorders in Tysabri patients

Report: Biogen Idec CEO predicts more brain disorders in Tysabri patients

The CEO of Biogen Idec told investors Tuesday that he expects to see more cases of a rare, fatal brain disorder in patients taking the drug Tysabri, Reuters reported Tuesday.

But James Mullen, the executive, thinks the problems are unlikely to create more regulatory problems for Tysabri, a multiple sclerosis drug pulled temporarily from the market in 2005 thanks to the brain disease.


(hope ...


Newbie here.

:) Hello everyone. I am a newbie here, but not new to MS. I was diagnosed more than 13 years ago with RRMS. It's been an interesting journey. :roll: In many ways I allowed myself some denial over the years. Beyond some fatique, heat sensitivity and tingling in my arms and legs I have had minimal symptoms up ...
Read more : Newbie here. | Views : 1615 | Replies : 3 | Forum : Introductions


High levels of Hepatic enzymes - what now?

Just took wife's blood tests and she has high hepatic enzymes, mainly ALT:

SGOT-AST: 40 U/L
SGPT-ALT: 61 U/L
PHOSPHATASE (alkaline): 50 U/L
gGT: 13 U/L (glutamilotraspherase)

Plus she has up the B12 (908pg/ml) but this is easy to regulate by stopping her B complex, could this be the reason for high ALT levels?
I have read high ALT could be from mononucleosis, alcoholism, liver damage, kidney infection, chemical pollutants (now I am really scary)! ...
Read more : High levels of Hepatic enzymes - what now? | Views : 2635 | Replies : 0 | Forum : Low Dose Naltrexone


any hospital

can you have the treatment done off-label at any hospital or only at john hopkins
thanks shell
Read more : any hospital | Views : 1742 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)


Gibbledygook's anti-viral log

I have started taking anti-viral herbs as opposed to antibiotics in the hope that trying to weaken Epstein Barr, varicella zoster et al might alleviate the disease burden. I believe that the following have anti-viral properties:
maximised curcuminoids 5g to 8g (good for pain)
reishi 3g
licorice 4g
green tea 3g
reservatrol 600mg
honokiol 120mg

NAC 2400mg
selenium
glutathione
blackcurrant sumbokol


I have been taking the above for 3 weeks since my latest steroids session. ...
Read more : Gibbledygook's anti-viral log | Views : 49621 | Replies : 246 | Forum : Regimens


second day of campath 3/18/2008

well... me and one of my best friends of 12 years both happened to get diagnosed with MS within a year of each other. We both picked the same neurologist and we both happened to make it to the phase three campath study.

The study qualification was intense.. lots of poking, prodding, degrading testing, and blood work. but we made it.

I wasn't sure up until the last minute that I was going to do ...
Read more : second day of campath 3/18/2008 | Views : 3097 | Replies : 10 | Forum : Campath (Lemtrada, Alemtuzumab)


Blood Work A-OK

Hi all-
big relief. Jeff's blood work ALL came back normal. Looks like petechiae on legs was part of an allergic reaction to the gadolinium, but did not affect him otherwise. His spots are turning brownish now, and fading, and leg pain is reduced.

Apparently this is a side effect for some folks. Who knew? Guess we do now.
:)
thanks!
a relieved cheerleader.
Read more : Blood Work A-OK | Views : 2145 | Replies : 9 | Forum : General Discussion


17/03/08 - St George's Hospital Trial Judgement

http://www.davalinternational.com/index ... php?nid=36

17/03/08 - St George's Hospital Trial Judgement


The Board of Daval International Limited decided, in 2004, to terminate the first full-scale clinical trial of AIMSPRO at St George's Hospital, London. The Company had drawn on a broad range of Medical and Pharmaceutical opinion to form this important decision, which was necessitated by the sub-standard handling of trial medication at the hospital's pharmacy, with the possible risk ...
Read more : 17/03/08 - St George's Hospital Trial Judgement | Views : 4966 | Replies : 0 | Forum : Aimspro


MS Journal

This was posted over at Accelerated Cure but I know the research junkies over here will probably dig it. 2 months of free access to the MS Journal.

http://msj.sagepub.com/
Read more : MS Journal | Views : 1951 | Replies : 4 | Forum : General Discussion


 

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