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I have a suggestion. Try responding to suggestions and PM's. I find it odd that no one takes time to respond to any of these suggestions. I appreciate your time thsnks arti
Read more : Suggestions | Views : 4104 | Replies : 6 | Forum : Suggestions

MS and elevated liver enzymes

Dear Dim...
I wanted to start this thread and dedicate it to your lovely wife and my husband- two MSers who have had elevated liver enzymes without cause.

Jeff was not drinking alcohol or taking any medication when he was diagnosed with MS in March '07. He had not received steroids or Copaxone, and was not taking any supplements. His blood test showed liver enzymes (AST and ALT) elevated 10x normal. He was jaundiced, and ...
Read more : MS and elevated liver enzymes | Views : 16925 | Replies : 20 | Forum : Natural Approach

Is anyone taking glyconutrients?

I would like to hear from anyone who is supplementing their diet with the 8 healing sugars. Thanks
Read more : Is anyone taking glyconutrients? | Views : 1936 | Replies : 5 | Forum : Natural Approach

Making Schwann Cells Young Again....

Better than botox...

"Myelin-making Schwann cells have an ability every aging Hollywood star would envy: they can become young again. According to a study appearing in the May 19 issue of the Journal of Cell Biology, David B. Parkinson (University College London, London, UK) and colleagues have pinned down a protein that returns the cells to their youth, a finding that might help researchers understand why myelin production falters in some diseases.

Wrapped around neurons ...
Read more : Making Schwann Cells Young Again.... | Views : 1558 | Replies : 1 | Forum : General Discussion

Soon to have a new member

So I was on my usual fishing site when I stumbled upon a new post labeled "my sister has ms". A member of the site was promoting his sisters walk for ms and asking for donations for sponsoring her in her walk. I thought what a great idea. So I made a small donation and added to his post pleading for some of the other members to do the same. A little while later I ...
Read more : Soon to have a new member | Views : 1684 | Replies : 1 | Forum : Daily Life

Relapse but with a positive note

I have very obviously had another relapse. My R leg is dragging and weak and I have balance problems and weakness in my R arm too. As well as the pain all over my lower body.

I know I usually moan so I wanted to say something positive. My GP is great, she has prescribed me something-pentine for the nerve pain and is gonna kick some butt for me! I also have a physio appt ...
Read more : Relapse but with a positive note | Views : 2043 | Replies : 10 | Forum : General Discussion

White Hair???

I started copaxone last month and now my hair seems to be turning white. I am 33, so I think this is a little premature. At this point I have more white hair than older brother, who is 5 years older. Has anyone else heard of this?

DX 4/08
Read more : White Hair??? | Views : 2143 | Replies : 2 | Forum : Copaxone

Waiting for an appointment...

Well, JH has had my records since the first week of May. I hounded Carrie for quite a bit (phone calls and emails)...then she finally told me to contact Dr. Hammond directly. I spoke with him on Thursday(May 15), and he told me that I was a good candidate...but that right now there was a wait to get that initial appointment. I was VERY excited to hear that I was a good candidate, but totally ...
Read more : Waiting for an appointment... | Views : 8220 | Replies : 56 | Forum : Revimmune (cyclophosphamide or cytoxan)



I'm not Dx as yet. My MRI scan result following first bout of Optic Neuritis is below. The neuro only got the result by phone and gave me a very fast overview which was basically - its not clear but not much we can do. Just wait and see etc etc .

Here it is

Conclusion Three small areas of T2 hyperintensity are noted on the brain study. The two supratentorial foci in isolation ...
Read more : HELP PLEASE - MY MRI RESULT | Views : 2251 | Replies : 5 | Forum : General Discussion

HDC Research and results thread

I have been trying to get a handle on the revimmune idea. I have had MS as well as RA now for 17 years and after trying many different approaches, I continue to deteriorate. I am already probably a EDSS 6: I use a cane all the time now and am ready to try something more drastic than Copaxone and methotrexate and periodic methylprednisolone and antibiotics (not an approved therapy but interestingly copaxone is ...
Read more : HDC Research and results thread | Views : 4553 | Replies : 23 | Forum : Revimmune (cyclophosphamide or cytoxan)


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