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Cladribrine Question

I know this is in the final leg of testing as the first oral for MS but because it is an approved drug for a different indication, it can be used off label as an injection.

Does anyone have any experience with using Cladribrine either off label or in the MS trial? Phase II data of the MS trial included zero efficacy data and I am considering trying it off label after developing antibodies to ...
Read more : Cladribrine Question | Views : 1495 | Replies : 0 | Forum : General Discussion


Iran invests $2.5b in stem cell research

The Iranians have already done stem cell testing on human MS patients, and continue to forge ahead with stem cell research. Politics aside, kudos to them in this regard.

I also found it interesting that the article notes that Muslim clerics declare that life begins three months after conception. Thus, they don't have the moral dilemma that most Western countries do...

http://www.payvand.com/news/08/nov/1059.html
Read more : Iran invests $2.5b in stem cell research | Views : 1568 | Replies : 0 | Forum : Stem Cells


How do I?

Alright I have been kind of in a depression since, my diagnoses in Feb. and now im worst cause I might not get state aid, which means Im jsut worst

Im tired all the time, I cant focus, I cant get motivated to do anything.
How do I get out of this slump? I was a very energic person before all this news...I mean I have good friends asking if im ok, cause I just ...
Read more : How do I? | Views : 1516 | Replies : 4 | Forum : General Discussion


sleep

I have always been a light sleeper and was surprised when my Dr said I needed to have a sleep study. I was shocked when I was told that I have central sleep apnea the Dr said it was caused by the lesions on my brain! I have been dx for 5 years but with symptoms for 20. AS ANYONE ELSE HEARD OF SUCH A THING?
Read more : sleep | Views : 2043 | Replies : 6 | Forum : General Discussion


Neuroregeneration and reprogramming

Here are a couple of interesting articles, one on neuroregeneration by silencing growth inhibitors and the other about reprogramming adult cells into stem cells.


Silencing growth inhibitors could help recovery from brain injury
Silencing natural growth inhibitors may make it possible to regenerate nerves damaged by brain or spinal cord injury, finds a study from Children's Hospital Boston. In a mouse study published in the November 7 issue of Science, researchers temporarily silenced genes that ...
Read more : Neuroregeneration and reprogramming | Views : 1136 | Replies : 0 | Forum : General Discussion


Personal circuit

Circuit:
A circular journey or one which begins and ends at the same place

MS is a circuit for me, there is no moving forward yet, just a continuous loop of symptoms and medicinal trial and error.

I walk in circles, I learn information and then learn that information is wrong. I try new things to feel better then end up feeling worse. I bang my head repeatedly searching for my happy place.

I'm not ...
Read more : Personal circuit | Views : 1935 | Replies : 7 | Forum : General Discussion


I got a job!!!!

I just got a permenant job at the company I have been temping at since last year! I am so so pleased!
Read more : I got a job!!!! | Views : 1397 | Replies : 4 | Forum : General Discussion


Informative web site

I stumbled across the following web site, and read one of the webcast transcripts. I like the format, in that the host questions experts (ie neurologists). I read the one on ON, even though I have never had ON (that I have known about), and I am now interested in getting an OCT performed.

http://www2.healthtalk.com/go/multiple-sclerosis/webcasts/archive

There is a lot of information on this web site. Including videos, a dictionary, news and more. The transcript on ...
Read more : Informative web site | Views : 1671 | Replies : 2 | Forum : General Discussion


Understanding

Hello All, I am having a hard time explaining to my friends and family what MS is like. They nod like they understand but you can tell on their faces and how they change the topic quickly. You would think that living in the city that I do I would find someone else that has MS or atleast a support group. But alas I have yet. I am just very alone. I know my family ...
Read more : Understanding | Views : 5369 | Replies : 7 | Forum : Under 25 with MS


Twitching and the whole fascilation thing....

I am such a hypochondriac.

I used to get them.(twitches) Still do from time to time. Mostly when I am at rest after doing something or right when I wake up and I'm still getting going. They may not show up for a month sometimes longer. Then the buggers come back. May hang out for a week or 2. They are usually in my hands or a finger but I can get a flicker everywhere ...
Read more : Twitching and the whole fascilation thing.... | Views : 7763 | Replies : 31 | Forum : General Discussion


 

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