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i start Tysabri on Thursday morning

so i'm set to start Thursday morning 9am and was wondering if there's anything i should do to prep? Any suggestions on 1st infusion?

My best friend is coming with me... and i've taken the day off work to just come home and relax afterwards.

I'm a little worried about side fx.... anyone experienced anything?

Lots and lots of questions... and my nerves are starting to kick in with the clock hitting the less than ...
Read more : i start Tysabri on Thursday morning | Views : 2257 | Replies : 9 | Forum : Tysabri (Antegren or Natalizumab)

Probably a dumb Question, But....

On the best Bet Diet, I see that you can make rice milk, ect... But can you actually eat the rice?
Read more : Probably a dumb Question, But.... | Views : 2390 | Replies : 9 | Forum : Diet

What happened to Petakitty?


Does anyone know what happened to him? I just noticed all of his posts have been deleted.
Read more : What happened to Petakitty? | Views : 3359 | Replies : 25 | Forum : General Discussion

Hi from Cali

Hello - I just found this site and thought I would check it out.

I've been dx'd w/RRMS since July of 03; according to my Neuro - he believes I had episodes dating back to 1994.

I spent a few years with 'mysterious' symptoms that would appear and disappear and the docs could never figure it out. Some of the possible dx were Petite Mal Seizures, Tendonitis, Rheumatoid Arthritis, sore muscles, stress and I'm sure ...
Read more : Hi from Cali | Views : 1408 | Replies : 3 | Forum : Introductions

Running out of options - could use some advice!

New to this forum - diagnosed nearlly 8 yrs ago - relasping/remitting... progressing...
Avonex, Copaxone, Beta Seron, & Rebiff slowed things done some - but the side effects were not tolerable. Still pulsing IV solumedrol but it's not as effective as it used to be...
Need to make a change but am terrified of the options - 1)Chemo or 2) Tysabri...

I am at home now (on disability) with a 2 yr old... looking for ...
Read more : Running out of options - could use some advice! | Views : 3697 | Replies : 21 | Forum : Introductions

To re-dose or not...?

So, that is my question!

Dr. Kerr told me to re-dose, sooner than later, as I have some symptoms.

My last MRI did not have any enhancement (this was in March. December had enhancement). No word that the lesions are shrinking or anything.

I'm just not sure what to do. I wish it was local and hate that I can't have a doctor here in Los Angeles do this with me.

I also hate that ...
Read more : To re-dose or not...? | Views : 2246 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)

Almost 12 months on from HiCy - MRI Results and Round Up

Hello All,

Mel's first dose of HicY was April 24th 2008.

So here we are nearly a year on and she had her latest MRI and all is good, well all is excellent.

No enhancing lesions.
No spinal lesions.
No black holes.
Stable and reduced existing lesions.

No signs of activity at all.

The best news is this is the second MRI that states no black holes, when diagnosed she had two black holes (and ...

Validity of reflex tests by nuros and specialists

Hi all,
I am wondering how many of you out there have had the usually touchy feely tests done by nuros and specialists and come back clear. This may seem like a strange question but i have had a few of these tests done over the last few years and each time they say there is nothing abnormal with my senses and reflexes. Therefore i seem to keep getting told there is nothing medically wrong ...
Read more : Validity of reflex tests by nuros and specialists | Views : 1622 | Replies : 3 | Forum : General Discussion

Gluten Free Diets

For those on the Best-Bet or gluten free diets, do you have substitutes for bread and pasta? I've been considering this diet, but I tend to eat a lot of sandwiches and make pasta often, since it's so easy.
Read more : Gluten Free Diets | Views : 4489 | Replies : 14 | Forum : Diet


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