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Experiences of LDN

HI, I am looking through all the available treatment options from Abx to antivirals, DMD's and LDN. I hope to make a decision very soon

I want to try and find out what the experiences are of people taking LDN specifically to progression. I have RRMS and understand that LDN boosts the immune system rather than suppressing it. I want to find out if people are really progressing less on LDN and having less relapses. ...
Read more : Experiences of LDN | Views : 7559 | Replies : 15 | Forum : Low Dose Naltrexone

Hi, first posting... Im scared


Im looking for some advice or support. I am 39 this year, female, and generally healthy. Last week my right leg felt "rubbery" and I just didnt have full control over it. It started while I was on the treadmill at my gym, and my personal trainer thought that perhaps it's muscle fatigue.

A day later, my right arm started with pins and needles, and felt warm and swollen (its not swollen however). Now, ...
Read more : Hi, first posting... Im scared | Views : 1697 | Replies : 9 | Forum : General Discussion

the MS liver

so, cheer and i made a date to talk ms and the liver. i don't know much about the liver yet, but here's a start:

the liver has many functions that are relevant to ms-ers.
i've looked at a few things w.r.t nutrition that involve the liver, such as d3 and uric acid for starters. i've been looking at zinc and the liver for a while, and the relationship between zinc and uric acid status. ...
Read more : the MS liver | Views : 9619 | Replies : 45 | Forum : General Discussion

Why does my BF have bad reactions to Natural sups?

Hello - I'm new here. My dear bf has MS - relapsing/remitting, but he seems to now be in a very bad episode and might have switched to progressive. Over the last year, we have been trying all kinds of natural supplements to help him. The really strange thing is that they all seem to make his symptoms worse. For instance, he tried curcumin. The first 2 days it seemed to help, but then after ...
Read more : Why does my BF have bad reactions to Natural sups? | Views : 4148 | Replies : 23 | Forum : Natural Approach

Second dose.....tomorrow

Well Kristin and I go for our second dose of Campath tomorrow. It has almost been one year to date since our last infusion. Our MRIs showed good things. No progression in mine, and I think Kristin's even showed some improvement. It has been stressful trying to prepare for tomorrow. In fact , Kristin and I both feel like we are having a mini flare up.

Yesterday I made sure to fit in some fun ...
Read more : Second dose.....tomorrow | Views : 1847 | Replies : 3 | Forum : Campath (Lemtrada, Alemtuzumab)

Have you had a Lucid Dream?

I have tried LDN in the past, and it seems like it is almost like taking a sugar tablet.

I was also very interested in peoples reports of "Lucid Dreams", which I also did not experience. And so, I wondered, is there any correlation between the two?
Read more : Have you had a Lucid Dream? | Views : 3854 | Replies : 6 | Forum : Low Dose Naltrexone


Can I just say that MS sucks?! Got my official diagnosis January 6th, this year. I was relieved then shocked...upset, mad, and not so sure what to think now. Maybe I'm floating into the realm of acceptance?! Do you ever really accept it?

I've only had 2 real episodes. The first was in the spring just prior to going out of town so I didn't see my doc. The second was Optic Neuritis over summer ...
Read more : New | Views : 1317 | Replies : 5 | Forum : Introductions

Separate forum for CCSVI?

To TPTB....
The Zamboni/CCSVI thread in the general forum has become a bit unwieldy. Can we have a separate forum for it? Now that folks are going out and getting dopplered, it would be a good resource for international investigation and protocol. As well as theories regarding the cause of stenosis in the venous systems of MS patients.

Pretty please???
Read more : Separate forum for CCSVI? | Views : 4017 | Replies : 4 | Forum : Suggestions

Rituxan Found Effective in Subset of PPMS Patients

Here's an abstract from a study that will be presented at the upcoming American Academy of Neurology meetings in April.

In simple terms, it found that Rituxan appeared to impede the progression of PPMS in male patients under the age of 51 who had enhancing lesions.

Unfortunately, I am a male patient with PPMS under the age of 51 who does not have enhancing lesions, and Rituxan has done nothing for me.

At any rate, ...
Read more : Rituxan Found Effective in Subset of PPMS Patients | Views : 4676 | Replies : 3 | Forum : Rituxan (Rituximab)

On Hold...

I suppose I will put my "Final decision" on hold for a month. I made a bunch of phone calls and emails and was able to get an appointment at the University of South Florida Neurology Dept. for a second opinion. I really put a great deal of trust in USF, and I will let them help me make the decision on my treatment. :D
Read more : On Hold... | Views : 1983 | Replies : 1 | Forum : Regimens


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