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95% sure i'm choosing Tysabri

Hello everyone,

in the midst of a relapse right now (haven't had symptoms or meds since 2006)

My neuro think Tysabri would be the best option for me since i've had bad experiences with other therapies.

I'm still scared of possible risks vs. benefits... but need to start thinking long term.

Any comments? experiences (good and bad)?

Many thanks,
Read more : 95% sure i'm choosing Tysabri | Views : 2929 | Replies : 14 | Forum : Tysabri (Antegren or Natalizumab)

new (again) to RRMS

Was diagnosed in 2004 with RRMS and was on a few therapies until 2006 when i stopped (felt fine)

Was feeling fine up until a few weeks ago when symptoms started to return. Neuro says i'm having a relapse... and its like being diagnosed all over again


Now looking to start another therapy.. neuro suggests Tysabri is my best option.

Just wanted to say hi ...
Read more : new (again) to RRMS | Views : 1676 | Replies : 8 | Forum : Introductions

Laugh For Me !!!

I was feeling spunky the other day. Did not take the ski poles I use to walk because I just felt good. Can't run but thought I would kick up my heals a bit. So only a few yards from the house I try a little trot. The outcome was not good. I fell like tall timber face first in the cow poop compost my wife had just spread in a patch of lawn that ...
Read more : Laugh For Me !!! | Views : 1563 | Replies : 2 | Forum : Humor

Here Goes....


Recent History: Five days in the hospital after having a droopy left face.... Five doctors come to my room and tell me they think "Bells Palsy". One neurologist comes by and says MS. The neurologist says "come by my office in 10 days and we will have the results of the spinal tap and I can give you medicine."
From the 10th day to the 17th day after the hospital:
I call once a ...
Read more : Here Goes.... | Views : 1294 | Replies : 8 | Forum : General Discussion

Ice Cold water

Hi all,
My feet have been numb for 5 days (the tops of them as opposed to the underneath) anyway I decided to stick them in ice cold water twice for 10 mins and the numbness seems to be wearing off a bit (even if it only lasts for an hour or 2 I am happy I have had some sort of effect)

Anyone else tried cold water for relieving numbness/symptoms?

Read more : Ice Cold water | Views : 1463 | Replies : 1 | Forum : General Discussion

Natural History

I had looked for the original study this was a follow up to recently and could not find it so wanted to post it here when I stumbled across this follow up study today:

Pittock SJ, Mayr WT, McClelland RL, Jorgensen NW, Weigand SD, Noseworthy JH, Rodriguez M.
Department of Neurology, Mayo Clinic, Rochester, MN 55905, USA.

OBJECTIVE: To assess whether the level of multiple sclerosis (MS) -related disability ...
Read more : Natural History | Views : 4664 | Replies : 44 | Forum : General Discussion

LDN update

I started 3mg's of ldn Feb. 13th and increased to 4.5 mg's on Feb 20th. From about day 3, I started to notice an increase in energy and strangely, that energy increased daily almost to the point that I could time the daily uptick.
As for other improvements, I have noticed no changes in pain or spasticity. But hey, energy is good!
By the way, on or around day 4, I almost stopped because the ...
Read more : LDN update | Views : 3156 | Replies : 1 | Forum : Low Dose Naltrexone

relapse vs. progression?

Can somebody explain the difference? Once progression starts from a relapse does it ever stop or slow down?
Read more : relapse vs. progression? | Views : 2387 | Replies : 6 | Forum : General Discussion

Vitamin D levels

So, when I was at JH a few weeks ago, they tested my Vitamin D.

I just received the results.... a 6. Normal is 20-100! So they put me on vitamin D.

wonder if anyone else was tested....

Read more : Vitamin D levels | Views : 4282 | Replies : 17 | Forum : Revimmune (cyclophosphamide or cytoxan)

anyone else have eyes that are working slower?

Hello all this is my first post but have beenn lurking for a while. I have RRMS since '97 and my original symtoms were numbness and issues with my eyes,floaters and my eyes working slow. Well that would come and go over the years and usually not stay to long. They have put me on copaxone in '05 and my first relapse was in oct. last year. Now since then my original symptoms are back ...
Read more : anyone else have eyes that are working slower? | Views : 3117 | Replies : 24 | Forum : General Discussion


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