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Seizure like symptoms but aware

Hi All,
Does anyboby have seizure type episodes but are aware of what is going on?
For me i have had many seizure like episodes where my eyes will close and i feel like i am almost asleep. Sometimes i will shake a bit other times I will violently shake, and if people are talking to me i know what they are saying but i cannot communicate effectively with them. If they were to ask ...
Read more : Seizure like symptoms but aware | Views : 1652 | Replies : 4 | Forum : General Discussion


I got a bill for my last study MRI, did you?

The bill is from were I got my last MRI. Seems it's 30 days over due. It is for $1,650! They filed the claim with my study site, and they were in the process of moving, so I will contact the study site tomorrow. I do have legal insurance, but hoping it doesn't come to that. It could just be my study site but I thought I would check here anyway.
Read more : I got a bill for my last study MRI, did you? | Views : 2968 | Replies : 12 | Forum : Tcelna (Tovaxin)


Pleez need encouragement

Been feelin really bad fortwo days. cant hardly even type. called neruro and he will give me a script for rebif tomorrow. havent had anything yat. starting to realize the severity of my situation. feel like i have fever, achy skin. vertigo,. blurred vision. sick 2 my stomache havent eatin in two days. will this go away alittle with the rebif? Thanks
Read more : Pleez need encouragement | Views : 2511 | Replies : 19 | Forum : General Discussion


nutrition status and allergies and diet

I wanted to share with you some testing available, it's just outside the realm of standard-covered-by-your-insurance traditional lab testing.

one is "Functional Intracellular Analysis": http://www.spectracell.com/

They culture your lymphocytes and check the nutrient values, then bombard them, starve them, perform biochemistry i barely understand and give you your status, and what you need. It generally comes back different than the normal RDA's....and doesn't that make sense, since we are ...
Read more : nutrition status and allergies and diet | Views : 1936 | Replies : 0 | Forum : Diet


Views please

I have been very on off taking Avonex as of the side-effects which are hell if Im honest.

Not had one for 6 months and for some reason I decided I should really get back on it as it was my only hope.

Crashed spectacularly the next day, unable to walk and not been very mobile if at all, since. Gp said it is a relapse but coincidental that it happened the very night of ...
Read more : Views please | Views : 3104 | Replies : 19 | Forum : General Discussion


Today in my life

Going to set my flying aside for awhile. Today hang gliding I was not able to lift my leg high enough to get fully into my pod harness. My brother the Eagle joined me for awhile. Had to laugh as to him it must have looked like my talons were out pursuing prey. Tough to hang it up after 31 yrs in this sport. I am so grateful for the people I have met and ...
Read more : Today in my life | Views : 4032 | Replies : 20 | Forum : Daily Life


Hi I'm new and on the undiagnosed roller coaster

Hi There,
I had posted this under the "general discussion" but thought it may be more appropriate here so please excuse me if you have already read this before.
Let me explain a bit about myself. I am a 38 yo man with a loving wife and 2 wonderful children. In 2004 i had a 1 off session. It started with a really strange sensation in my head. What followed was like a seizure (but ...
Read more : Hi I'm new and on the undiagnosed roller coaster | Views : 1873 | Replies : 9 | Forum : Introductions


I think i may have the dreaded MS

Hi There,
Let me explain a bit about myself. I am a 38 yo man with a loving wife and 2 wonderful children. In 2004 i had a 1 off session. It started with a really strange sensation in my head. What followed was like a seizure (but i was aware of what was going on) and then like a stroke. I was unable to lift my legs and my face was paralised down my ...
Read more : I think i may have the dreaded MS | Views : 3233 | Replies : 17 | Forum : General Discussion


ABX Log

It seems to me that you are being very sensible in this: like you, my early relapses were few and far apart, but after about twelve years they started to come much more frequently, several a year with not such complete recovery as a new phase in the disease started. DMDs were by this time becoming available in the UK, but I was already too far gone to qualify.

In 2001 I had an enormous ...
Read more : ABX Log | Views : 13045 | Replies : 60 | Forum : Antibiotics


hello and question

Good Morning,
I am brand new to this site. Was diagnosed with ms in october but was sick for about 2 years before they could figure me out. I "present" differently from others with ms. (whatever that means) I go to the ms clinic in Portland but live out in eastern oregon.
I have the strangest symptoms which have gotten bad the last month. All of a sudden my arm starts seizing up and I ...
Read more : hello and question | Views : 1365 | Replies : 4 | Forum : General Discussion


 

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