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Prescribing doctor in or near Rochester NY

Am very interested in LDN and a doctor who will prescribe it. I am SPMS and have been taking Avonex for 12 years. I am holding my own but struggling with balance and spacticity. Any help appreciated.
Read more : Prescribing doctor in or near Rochester NY | Views : 2831 | Replies : 0 | Forum : Low Dose Naltrexone

I'll be updating the blog properly later but....WOO HOO!

Great trip to HIPOP today.

Mel's counts yesterday were - WBC 250, Neutrophils 0.

Today, after a v.achy night due to the growth hormone, this is so awesome, they are - WBC 5300 - Neuts - 5100 !!

HIPOP just left us a voicemail, stop all the drugs!

Good eh?

Proper update later at

Is there a central place for each user's ms history?

Hi there,

I haven't been on the site for a while but am back researching Tysabri and after reading some of the forums, I felt it would be helpful to me to be able to look up each user's ms history. As we all know, ms varies dramatically from person to person, so every comment is relative to the individual's current level of ability. Rather than ask each person to repeat their ms particulars every ...
Read more : Is there a central place for each user's ms history? | Views : 3171 | Replies : 0 | Forum : Suggestions

Attn: HiCy patients - want a blog?

Hi everyone, Chenell here again. Maybe I need to break down and get my own account already. ;)

If you are going through the HiCy treatment, please contact me if you want to document your experiences on the internet. I am setting up free blogs as subdomains on Chris' site for HiCyers.

Such as Jamie and Mel @

Please email ...
Read more : Attn: HiCy patients - want a blog? | Views : 2731 | Replies : 4 | Forum : Revimmune (cyclophosphamide or cytoxan)

Question about PPMS...

For those of you that have PPMS, can I ask how it started? I'm still in the pre-diagnosis phase and i'm scared it might be the progressive kind. I know it's a little bit less likely because i'm 22, female, and it started with my eyes, but my eyes haven't resolved yet and as i mentioned before really the only other symptom would be getting achey/weak legs (only) around that time of the month (that ...
Read more : Question about PPMS... | Views : 1812 | Replies : 6 | Forum : General Discussion

the Hughes Syndrome

Has anyone heard of the Hughes Syndrome that supposedly mimics MS symptoms??
Read more : the Hughes Syndrome | Views : 1620 | Replies : 1 | Forum : General Discussion

MS research teleconference with Dr O'Connor

I'm too busy to listen to this. Could someone with time on their hands (Lyon, Harry Z etc) listen and report back if anything useful is covered.


Read more : MS research teleconference with Dr O'Connor | Views : 1446 | Replies : 1 | Forum : General Discussion

men v women

I'm considering a sex change!

Multiple Sclerosis affects men and women differently 07 May 2008

A new study done in Buffalo is revealing the differences in the way Multiple Sclerosis affects men and women.

The Buffalo Neuroimaging Analysis Center is part of the Jacobs Neurological Institute. Located at Buffalo General Hospital, the center has become an international leader in computerized analysis of brain scans.

Most recently, in a study of more than eight hundred ...
Read more : men v women | Views : 2302 | Replies : 10 | Forum : General Discussion

Just when I was doing so well...

Ugh. So I started to clean my house today, throwing stuff out, organizing... I knew I felt fatigued after I was done the work, so I decided to stay cool and just relax for the rest of the day. I noticed the burning mouth thing was worse, that the pain in my neck was worse, etc.

Come tonight when I can honestly say, it feels like I'm relapsing. I spoke to my realtor by phone ...
Read more : Just when I was doing so well... | Views : 1820 | Replies : 8 | Forum : General Discussion


Alright, my doc gave me this anti depressant to help me sleep cause im like hardcore having issues with it

but i am also on been put on naproxen for pain as needed

Now I just wanna know if anyone has been on it and what to except from it all.
Read more : Nortriptyline | Views : 1840 | Replies : 3 | Forum : General Discussion


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