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okay so we know there's a content nazi on the existing pages for MS on wikipedia. i didn't get any kind of inspiring response to a previous post suggesting we take on the existing page(s).

but what if we made our own page entitled 'alternative therapies for ms', and entered all our various ideas that are quickly deleted from the current therapies page. of course with wikipedia we can't write with an obvious bias in ...
Read more : wikipedia | Views : 1207 | Replies : 2 | Forum : General Discussion

Number of MRI lesions

I'd like to ask a few questions : how many total MRI lesions do you have ? And since when ? Did some of them disappear ? Did your condition worsened rapidly if you have many lesions ?

I know we cannot make so simple comparisons, but I'd like to.
Read more : Number of MRI lesions | Views : 3948 | Replies : 24 | Forum : General Discussion

Eyes - how do you stop them being destroyed by MS


Anybody found any products that reduce the amount of damage to the eyes?


Read more : Eyes - how do you stop them being destroyed by MS | Views : 2189 | Replies : 8 | Forum : General Discussion


Positive results for IVIG in progressive MS. Not fantastic results, but given the current lack of treatment options, I suppose it's still significant.

Intravenous immunoglobulin in primary and secondary chronic progressive multiple sclerosis: a randomized placebo controlled multicentre study.

Mult Scler. 2007 Jul 10;
Pohlau D, Przuntek H, Sailer M, Bethke F, Koehler J, Konig N, Heesen C, Spath P, Andresen I.
Department of Neurology, Multiple Sclerosis Center, Kamillus-Klinik Asbach.

In patients with relapsing-remitting multiple ...
Read more : IVIG | Views : 1255 | Replies : 0 | Forum : Drug Pipeline

Bone marrow transplant case study

Very interesting, keeping in mind this is about a single case.

Failure of allogeneic bone marrow transplantation to arrest disease activity in multiple sclerosis.

Mult Scler. 2007 Jul 10;
Jeffery DR.
Department of Neurology, Wake Forest University School of Medicine, Winston-Salem, NC, USA.

Multiple sclerosis (MS) is thought to be an autoimmune disease in which activated T-cells initiate a macrophage mediated destruction of CNS myelin. Bone marrow transplantation (BMT) is currently being evaluated in the ...
Read more : Bone marrow transplant case study | Views : 1298 | Replies : 2 | Forum : General Discussion

Tovaxin and fatigue

Ok so my issue with MS is fatigue. I slept today for 4 hours. I take a vitamin that helps with it but even with all the other limitations, I want the fatigue gone.

One thing I've got the impression of is MS fatigue is gone with Tovaxin. Does it eliminate fatigue? They even had an animation on their site saying that. How is everyone doing with the fatigue? Heck with doing somersaults. Is anyone ...
Read more : Tovaxin and fatigue | Views : 5607 | Replies : 28 | Forum : Tcelna (Tovaxin)

Stem Cell Control

An interesting finding...


McMaster claims stem-cell breakthrough

Discovery important to cancer research, repairing damaged organs
Jul 11, 2007 01:15 PM
Joseph Hall
Staff Reporter

A landmark discovery by researchers at McMaster University could radically alter the way scientists can use embryonic stem cells to grow replacement tissues and treat cancer.

In a surprise revelation, a McMaster study found that human embryonic stem cells – “the great grandmothers” of all the other cells in our ...
Read more : Stem Cell Control | Views : 1255 | Replies : 0 | Forum : Stem Cells

You're making it up

One of the MS websites I visit lists the top 20 news articles on that day which refer to MS. The usual story is about a new treatment. Today, half of the news articles had included the name Bin Laden in the title. Could terrorism and MS be linked?

The story is a 51 year old, five time married, British grandmother with MS who has married the 27 year old son of Bin Laden.

Must ...
Read more : You're making it up | Views : 1753 | Replies : 10 | Forum : General Discussion

human endogenous retrovirus

More interesting info...

The human endogenous retrovirus envelope glycoprotein, syncytin-1, regulates neuroinflammation and its receptor expression in multiple sclerosis: a role for endoplasmic reticulum chaperones in astrocytes.

J Immunol. 2007 Jul 15;179(2):1210-24.
Antony JM, Ellestad KK, Hammond R, Imaizumi K, Mallet F, Warren KG, Power C.
Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada;

Retroviral envelopes are pathogenic glycoproteins which cause neuroinflammation, neurodegeneration, and endoplasmic reticulum stress responses. The human endogenous retrovirus (HERV-W) ...
Read more : human endogenous retrovirus | Views : 1273 | Replies : 0 | Forum : General Discussion

MS Society in Australia TV Show

The following page has downloadable and viewable episodes of a TV show on MS, presented on a public broadcast channel here in Australia. Its a series, so every week they release a new one. I think there may be 12 in total, and about 6 are available now.

A lot of it is about the services offered by the MS Society in Australia. The "presenter" himself has MS, and during the filming of one of ...
Read more : MS Society in Australia TV Show | Views : 1185 | Replies : 1 | Forum : General Discussion


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