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Steroids and MS


I have a couple of questions that I need some help with.

(i) I had a case of optic neuritis in my right eye around sept 2008. It resolved by itself. Recent MRI in December revealed that I've hyper-intense signal in my left eye. But it does not vividly bother me at all. My doctor suggests that I take steroids now. Is it the general case? Is it okay to take steroids after 3 ...
Read more : Steroids and MS | Views : 2289 | Replies : 10 | Forum : General Discussion

Thinking of trying something else, could use some ideas

I've been on Copaxone now for a year and a half. I have had an overall good experience with the drug as I have only had one mild exacerbation which I'm 98% certain was due to a questionable over the counter drug that others have had strange experiences with.

My only reason for wanting to find something else is that I've been having eczema for several months and trial and error has deduced it down ...
Read more : Thinking of trying something else, could use some ideas | Views : 1973 | Replies : 1 | Forum : Copaxone

Boyfriend issues :)

Hi everyone,
and happy new Year.
I wouldn't be bothering you but I am pretty upset and confused now.
I am in love with a guy who has MS ( he didnt tell me until everything get really seriouse and he looks absolutely healthy. We are not planning to get married for several unrealted issues and that was discussed before he told me he is sick). He has symptoms, like back pain and he can't ...
Read more : Boyfriend issues :) | Views : 2138 | Replies : 8 | Forum : General Discussion

A brand new year

I sit in reflection upon the new year and the old one going out the door.
Considering this message board as a safe haven of understanding, for we share a most common and unwelcome burden upon our lives, each unique and individual as the person facing the screen.

My last twelve months have consisted of learning. Learning what works, what doesn't and what to try next. It's difficult not to become overwhelmed and frustrated. Through ...
Read more : A brand new year | Views : 1570 | Replies : 4 | Forum : General Discussion

wrist tendonitis?

Discuss. If you've had it, tell me about it. What helped, your general experience, etc etc?

Mine is probably due to computer overuse (I do a lot of writing and use computer for other day-to-day stuff as well), not helped by taking up archery, nor by the right-side weakness in general (neurological - but I think having weak muscles might strain the tendons more?).

Have googled a little bit and gotten some general tips (ice, ...
Read more : wrist tendonitis? | Views : 1403 | Replies : 2 | Forum : General Discussion

Campath trial

I got a phone call today from my neurologists office asking me if I'd be interested in this study. They are already approved as a trial site for the Campath/Rebif study. I go in on the 10th to see them and I've looked at info on the internet but is it really true that if you get Rebif while in the trial that it's covered cost wise? It's a question my husband asked me and ...
Read more : Campath trial | Views : 1990 | Replies : 7 | Forum : Campath (Lemtrada, Alemtuzumab)

Trigeminal Neuralgia

Does anyone out there have trigeminal neuralgia?? What are your treatments for it??

Read more : Trigeminal Neuralgia | Views : 2237 | Replies : 7 | Forum : General Discussion



Can anyone tell me how they were initially diagnosed with ms, what were the symptoms?

I have been suffering with dizziness for about 2 weeks now. I thought it would be an ear infection but the doctor said it wasn't and did some blood tests which all came back normal. Would anything show up in blood tests?

I have no other symptoms other than dizzyness and a 'fuzzy head' The dizzyness is usually worse ...
Read more : Diagnosis | Views : 2035 | Replies : 7 | Forum : Introductions

Types of MS Pain..Please describe yours

I have the most HORRENDOUS time trying to explain the pain I feel with MS.

I have no idea why. I can explain a toothache, headache, backache, but cannot for the life of me explain the pain I feel with MS.

When I do I make no sense. I'm wondering what type of pain your MS causes you and how you best describe it.

Thank you to all :wink: ...
Read more : Types of MS Pain..Please describe yours | Views : 12516 | Replies : 84 | Forum : General Discussion

symptoms while recovering from HiCy?

My husband just finished HiCy, we will be 1 month out January 7th. He has had some of his old symptoms recently, namely heaviness in his leg and numbness in his arm. He also is vertigoish. Is this normal 'healing' or could this be reactivation? Anyone with similar experiences?
Read more : symptoms while recovering from HiCy? | Views : 1952 | Replies : 1 | Forum : Revimmune (cyclophosphamide or cytoxan)


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