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The earlier the better

Hi

It's me again! It's seems that with all therapies coming up now, the fact seems to be: the earlier the treatment, the better the outcome.

On the other hand lots of doctors hesitate to go for the heavier stuff when MS is early and "mild" or want first to try some established therapies. Often valuable time is wasted that way. What makes me angry is, that scientists tend to say "as early as possible" ...
Read more : The earlier the better | Views : 5787 | Replies : 22 | Forum : Revimmune (cyclophosphamide or cytoxan)


LDN study at UCSC ... when will results be out?

I know that the study has finished. Does anybody know when they will publish? Any inside word on the trial findings?
Read more : LDN study at UCSC ... when will results be out? | Views : 2844 | Replies : 1 | Forum : Low Dose Naltrexone


Going to SSI doctor, need advice

I've been summoned to see a neurologist through the government in consideration for my SSI.

What does it take to convince these people who have no understanding of how bad my symptoms really are?

What do I do, I'm nervous as hell that I'm going to f' it all up somehow.

The big thing in my mind is I choose to not catheterize myself, but squat in the tub to pee. Kind of limits where ...
Read more : Going to SSI doctor, need advice | Views : 1364 | Replies : 1 | Forum : General Discussion


TNF

An interesting story came out this week about the use of enbrel (enteracept), a tumor necrosis factor-alpha inhibitor (TNF) in one patient with Alzheimer's. It was interesting because the patient saw improvements within 10 minutes of an injection. At least one TNF inhibitor, pirfenidone, has been tested in MS. There have been a couple of small phase 2 trials for people with SPMS that yielded promising results. I haven't found any information about larger phase ...
Read more : TNF | Views : 1982 | Replies : 2 | Forum : Drug Pipeline


New Diagnosis, Questions

Hello Everyone,

It's hard to know where to start except to say I need the support and advice of others who understand what it's like to deal with MS.

I'm 51, 'old' for MS to begin as one out of four of the neurologists I have seen told me. Never having been sick other than stuff my five kids brought home from school and hospitalization for childbirth, having to inject myself with Betaseron every other ...
Read more : New Diagnosis, Questions | Views : 5231 | Replies : 20 | Forum : Introductions


Hello from the MS Fighter

Hello, I am a 40 year old female and native of Atlanta, GA. My first symptoms were in 2000 when I experienced episodes of dizziness and balance problems. Throughout the years my symptoms progressed and neurologist could not diagnose me. I received probable diagnose from Lupus, dystonia... and finaly, It's in my head. During this time I lost strength in bilateral UE/LE, right greater than left. My right hand is clawed. I also developed tachycardia, ...
Read more : Hello from the MS Fighter | Views : 2480 | Replies : 10 | Forum : Introductions


Campax vs Tysbri

My physician provided me two options for treatment Tysbri and Campath. One FDA approved and the other not. One covered by ins and the other possibly not. When I asked my physician which one he would choose for his family member if they were in my shoes he chose Campath.
Are there any reports compairing Campath and Tysbri?
Read more : Campax vs Tysbri | Views : 3883 | Replies : 2 | Forum : Campath (Lemtrada, Alemtuzumab)


Anyone's insurance paid for Campath outside of a trile?

My Doctor has prescribed Campath in order to stabilize my MS? I have heard of only a few insurances that have paid for the treatment since it is not FDA approved at this point.
If your insurance did approve Campath how did you do it?
If your insurance did not approve Campath, how much were you out of pocket per year?


Anyone out there with their Brainstem affected by MS?

I have experienced neurological symptoms since 2001. However, I did not receive my diagnosis until Dec. 2007. My MRI showed significant damage to my Brainstem. It does explain my tachycardia and neurogenic bladder.
Has anyone experienced Brainstem damage?
Read more : Anyone out there with their Brainstem affected by MS? | Views : 2616 | Replies : 9 | Forum : General Discussion


Texas Barbecue Sauce

Hi all

Just had some best buds to stay in wildest Africa with me for a month (they live in Houston, Texas), and someone (sorry, can't remember who, think it was Gwa?) told me I should ask them to bring me some Texas Barbecue Sauce, and I just wanted to say thank you - it is the BEST! Needless to say, I ate way too much red meat, but I swear I will cut back ...
Read more : Texas Barbecue Sauce | Views : 12196 | Replies : 93 | Forum : Daily Life


 

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