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Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.

Hi folks...I too have MS actually PPMS

I have been watching this site for roughly 6 mos. I found this site by googling Dawsons Fingers. Otherwise I would not have found this site. I'm passing the word! I find the group forums exciting, knowlegeable and very friendly.

I was originally mis- diagnosed w/ RRMS in 2000. at that time my symptoms were not severe and the Neuro went with the stats. 80% of the MS pop have RRMS and the rest = ...
Read more : Hi folks...I too have MS actually PPMS | Views : 1491 | Replies : 1 | Forum : Introductions

Letter from Baxtor

Dear Chris Young:

We appreciate your interest and enthusiasm regarding cyclophosphamide, a life-sustaining and well-established chemotherapy agent.

There currently is ample supply of cyclophosphamide, and Baxter
continues to make it available to its customer base, including Accentia,
the makers of Revimmune. It’s important to note that the intended and
approved use of cyclophosphamide is as a chemotherapy agent, and Baxter does not currently have approval for cyclophosphamide’s use in addressing multiple sclerosis (MS). However, as ...
Read more : Letter from Baxtor | Views : 2074 | Replies : 3 | Forum : Revimmune (cyclophosphamide or cytoxan)

Valomaciclovir (EPB-348) to treat MS

Valomaciclovir (EPB-348) to be assessed as an adjunctive therapy in Multiple Sclerosis

Epiphany Biosciences announced today that the company plans on filing an IND with the Food and Drug Administration (FDA) to study the potential impact of using the antiviral medication valomaciclovir (EPB-348) as an adjunctive therapy in the treatment of multiple sclerosis.

Valomaciclovir has been shown to possess potent antiviral activity in vitro against a number of herpes-related viruses, including herpes simplex (HSV), ...
Read more : Valomaciclovir (EPB-348) to treat MS | Views : 1999 | Replies : 2 | Forum : Drug Pipeline

Mefloquine to treat PML

Despite all the good that this research might bring, its embarrassing to see that noone cared for treating PML as long as it has only been the uneconomic AIDS people dying of it. But just as billions in revenues from Tysabri seemed to be endagered anything goes... What a shame!

Press release: ... I&refer=us

Clinical trial:

Read more : Mefloquine to treat PML | Views : 2110 | Replies : 1 | Forum : Drug Pipeline


Anyone heard about this supplement?

In studies on mice, Dr. Michael Demetriou and colleagues with the UC Irvine Center for Immunology found that N-acetylglucosamine (GlcNAc), which is similar but more effective than the widely available glucosamine, inhibited the growth and function of abnormal T-cells that incorrectly direct the immune system to attack specific tissues in the body, such as brain myelin in MS and insulin-producing cells of the pancreas in diabetes. Study results appear on ...
Read more : N A G | Views : 2511 | Replies : 3 | Forum : Natural Approach

Truthfully, changing the electrodes?

I was just wondering how often people are actucally changing the sensors--electrodes--whatever they are called.

The information provided says to change them every 1-2 weeks but mine have been on for 3 weeks and, frankly, they look just the same as week 1. I wondered how I could tell they HAVE to be changed.

I wear my Walkaide all day every day.

I just wondered what others are doing.
Read more : Truthfully, changing the electrodes? | Views : 2048 | Replies : 1 | Forum : Medical Devices

Seizure like symptoms but aware

Hi All,
Does anyboby have seizure type episodes but are aware of what is going on?
For me i have had many seizure like episodes where my eyes will close and i feel like i am almost asleep. Sometimes i will shake a bit other times I will violently shake, and if people are talking to me i know what they are saying but i cannot communicate effectively with them. If they were to ask ...
Read more : Seizure like symptoms but aware | Views : 1663 | Replies : 4 | Forum : General Discussion

I got a bill for my last study MRI, did you?

The bill is from were I got my last MRI. Seems it's 30 days over due. It is for $1,650! They filed the claim with my study site, and they were in the process of moving, so I will contact the study site tomorrow. I do have legal insurance, but hoping it doesn't come to that. It could just be my study site but I thought I would check here anyway.
Read more : I got a bill for my last study MRI, did you? | Views : 2997 | Replies : 12 | Forum : Tcelna (Tovaxin)

Pleez need encouragement

Been feelin really bad fortwo days. cant hardly even type. called neruro and he will give me a script for rebif tomorrow. havent had anything yat. starting to realize the severity of my situation. feel like i have fever, achy skin. vertigo,. blurred vision. sick 2 my stomache havent eatin in two days. will this go away alittle with the rebif? Thanks
Read more : Pleez need encouragement | Views : 2526 | Replies : 19 | Forum : General Discussion

nutrition status and allergies and diet

I wanted to share with you some testing available, it's just outside the realm of standard-covered-by-your-insurance traditional lab testing.

one is "Functional Intracellular Analysis":

They culture your lymphocytes and check the nutrient values, then bombard them, starve them, perform biochemistry i barely understand and give you your status, and what you need. It generally comes back different than the normal RDA's....and doesn't that make sense, since we are ...
Read more : nutrition status and allergies and diet | Views : 1953 | Replies : 0 | Forum : Diet


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