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New, and Terrified

Hello all.

I'm new to the site, and a little bit (read: a lot) terrified at the moment, while I try to reach out and find some answers for myself regarding MS. I just returned home from a three day hospital stay where 99% diagnosis was made for MS. No lesions found on brain in contrast and non-contrast MRI; pending C-spine MRI (as they think it's originating there, or possibly brain stem) and neuro-ophthalmology assessment ...
Read more : New, and Terrified | Views : 1549 | Replies : 6 | Forum : Introductions


My Final Decision...

OkayI am starting,
1- vit B super complex (w/vit C)
2- (2) vit D w/ calcium
3- (3) 1000mg omega 3 fish oil
4- Rebif
5- Lipitor
6- Monster energy drink (for fatigue)
7- High Protien Diet
8- Exersize
9- Hope and prayer

Do yall think I need anything else?
Read more : My Final Decision... | Views : 3476 | Replies : 12 | Forum : Regimens


Just curious...

Just curious about something...

If you were involved in a clinical trial, it stopped, lost funding, numerous people had absolutely no luck on the medicine, or something else was out there that has shown darn near 100% effectiveness, would you continue to try to get the drug financed or would you admit defeat and move on?

The reason I ask is I know of some folk who are pretty high up in some MS groups, ...
Read more : Just curious... | Views : 5890 | Replies : 59 | Forum : General Discussion




Tysabri / Copaxone combo

As a major shareholder in Teva and Biogen, this will make Harry Z very happy - a combo trial of tysabri + copaxone. Harry has managed to talk both of these drugs down which have seen the share prices fall in both companies - crafty Harry then bought up more shares at low prices.

Do you hear him denying it? No - he's enjoying another cruise with his lady friend off the coast of Cuba. ...
Read more : Tysabri / Copaxone combo | Views : 1804 | Replies : 0 | Forum : Drug Pipeline


WORKING DURING TREATMENT

I MAY HAVE TO GO THROUGH A ROUND OF 3 DAY IV SOLUMEDROL SOON FOR OPTIC NEURITIS.

MY QUESTION IS, HAVE ANY OF YOU ACTUALLY WORKED WHILE BEING ON THIS STUFF? IS IT POSSIBLE TO DO IT AND FEEL OK?

I STARTED WORKING FULL TIME IN SEPTEMBER. I HAVE A LAID BACK JOB. NO OFFICE WORK. I AM FULLY ABLE EXCEPT FOR MY EYE ISSUE.

HAVE ANY OF YOU WORKED THROUGH TREATMENT?
Read more : WORKING DURING TREATMENT | Views : 1729 | Replies : 3 | Forum : Daily Life


HI ALL, JUST JOINING.

HI ALL. I WAS DX IN OCT OF 2003 WHEN I AS IN NURSING SCHOOL. I QUIT RIGHT AFTER I WAS DX.

I AM DOING WELL ON COPAXONE &LDN.

HAVING SOME RIGHT SIDE ISSUES WITH LEG AND EYE. WENT 6 YARS WILL ALOMOST NO PROBLEMS.

LOOKING FORWARD TO MEETING EVERYONE. DEANNA
Read more : HI ALL, JUST JOINING. | Views : 1509 | Replies : 4 | Forum : Introductions


Goodbye Rebif - Hello Tysabri!!!

I posted this on the Rebif thread also:

Went to my Neuro yesterday for a check-up after 9 months on Rebif.

I have tried to be upbeat and positive but some days I just want to cry. I have a constant fever and I am so fatigued I can hardly move. Well he took one look at me yesterday and said it's time for a change.

My options as far a drug therapy are:

Rebif ...
Read more : Goodbye Rebif - Hello Tysabri!!! | Views : 4223 | Replies : 15 | Forum : Tysabri (Antegren or Natalizumab)


Goodbye Rebif - Hello Tysabri

Went to my Neuro yesterday for a check-up after 9 months on Rebif.

I have tried to be upbeat and positive but some days I just want to cry. I have a constant fever and I am so fatigued I can hardly move. Well he took one look at me yesterday and said it's time for a change.

My options as far a drug therapy are:

Rebif at 1/2 dose .22mcg ...
Read more : Goodbye Rebif - Hello Tysabri | Views : 3209 | Replies : 4 | Forum : Rebif


Arkansans new on site.

My wife has MS but she is a Luddite so I handle the computer stuff. We recently (3 yrs) moved from Las Vegas to 15 acres in very rural northern Arkansas. Best move we've ever made.
If you look under the Betaseron forum, you'll find some more specific information about the Betaseron we have available as Pamela had to quit that option just as she had received 3 brand new boxes each containing 15 single ...
Read more : Arkansans new on site. | Views : 1553 | Replies : 4 | Forum : Introductions


 

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