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I went off my meds...and wanted your thoughts

I was doing so so on Copaxone...so I thought but then it started again...shots being too awful..side affects..I could not move, stiff and in pain...could not do anything but barely do my job and sleep...I lost my quality of life..could not go anywhere..not even church...getting up to go to work was a HUGE ordeal for me let alone anything else...and I stayed in pain. I called my pharmacy and said no more meds please. Stop ...
Read more : I went off my meds...and wanted your thoughts | Views : 1864 | Replies : 10 | Forum : General Discussion


KIF1B

Neuron gene linked to multiple sclerosis: study
Medicine & Health / Diseases

A newly-discovered genetic flaw may lay the nervous system open to assault from the body's own immune system, leading to multiple sclerosis (MS), according to a study published Sunday.

In MS, the immune system attacks myelin, the fatty sheath that protects the cells of the central nervous system.

As a result, nerve signals get slowed or blocked, causing difficulties in movement and coordination, ...
Read more : KIF1B | Views : 1500 | Replies : 2 | Forum : General Discussion


PAD2

I don't think this was already posted..

Multiple Sclerosis Research Charges Ahead With New Mouse Model Of DiseaseScienceDaily (Nov. 10, 2008) — A new study highlights the role of a charge-switching enzyme in nervous system deficits characteristic of multiple sclerosis and other related neurological illness.

Multiple sclerosis (MS) is one of several diseases in which myelin – the insulator for electrical signaling in the nervous system – breaks down and causes severe deficits in brain ...
Read more : PAD2 | Views : 1432 | Replies : 2 | Forum : General Discussion


Please, advice . . .

Hi all,

I hate this because I feel like I'm whining but . . .

A brief background - diagnosed a year ago, was able to continue working for about six months, then had to take disability . . . the short term disability ended and they denied my long term so I was forced to move in with my brother . . .

My brother and his girl know of the MS, but unfortunately?, ...
Read more : Please, advice . . . | Views : 2548 | Replies : 9 | Forum : Daily Life


How do I get my family to understand?

Hi all . . . I was diagnosed a year ago with MS . . . its something I've felt coming for a long time so it was no surprise to me . . .

I am "fortunate" that I am still walking unaided most of the time and my peripheral tests are still in the normal range . . . my problem? I suffer from all of the "invisible" symptoms - extreme fatigue, easily ...
Read more : How do I get my family to understand? | Views : 4650 | Replies : 2 | Forum : Friends and Family


MS hugs - a rare symptom

I just had an MS hug appear - well it's identical to others I have had and so I called my docs for something to help (they prescribe anti-inflammatorys to help with the muscle spasms). The dr that called me back had never heard of MS hugs and had to go away and check b4 he could decide what to give me. When he called back he commented that according to teh specialists it is ...
Read more : MS hugs - a rare symptom | Views : 2129 | Replies : 9 | Forum : General Discussion


The MS Society - New guide dispels myths of miracle cures

10 Nov 2008

The MS Society has today joined forces with charitable trust Sense About Science as part of an initiative to highlight the importance of evidence-based information on new treatments and therapies.

A guide published today entitled ‘I’ve got nothing to lose by trying it’ explains how to tell the beneficial from the bogus in the face of miracle cure stories, new wonder-drugs and breakthrough therapies that are increasingly promoted in the media and ...
Read more : The MS Society - New guide dispels myths of miracle cures | Views : 1805 | Replies : 4 | Forum : General Discussion


Good joke - need to scroll so it doesn't give it all away!

LITTLE RALPHY ON MATH (Part 1)




A teacher asks her class, 'If there are 5 birds sitting on a fence and you
shoot one of them, how many will be left?'

She calls on little Ralphy.




He replies, 'None, they will all fly away with the first gunshot.'




The teacher replies, 'The correct answer is 4, but I like your thinking.'




Then little RALPHY says, 'I have a question for YOU.




There are 3 women ...
Read more : Good joke - need to scroll so it doesn't give it all away! | Views : 1416 | Replies : 0 | Forum : Humor


Cladribrine Question

I know this is in the final leg of testing as the first oral for MS but because it is an approved drug for a different indication, it can be used off label as an injection.

Does anyone have any experience with using Cladribrine either off label or in the MS trial? Phase II data of the MS trial included zero efficacy data and I am considering trying it off label after developing antibodies to ...
Read more : Cladribrine Question | Views : 1498 | Replies : 0 | Forum : General Discussion


Iran invests $2.5b in stem cell research

The Iranians have already done stem cell testing on human MS patients, and continue to forge ahead with stem cell research. Politics aside, kudos to them in this regard.

I also found it interesting that the article notes that Muslim clerics declare that life begins three months after conception. Thus, they don't have the moral dilemma that most Western countries do...

http://www.payvand.com/news/08/nov/1059.html
Read more : Iran invests $2.5b in stem cell research | Views : 1575 | Replies : 0 | Forum : Stem Cells


 

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