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Hi from a sad and frustrated MS mom

You all seem like such a helpful, friendly, well-informed group! My reluctantly diagnosed daughter and I have so many questions about alternative treatments! I'e been lurking here for a while now and I've finally worked up the courage to get my questions out there.

My now 24-year-old daughter was diagnosed (relapsing remitting) about a year ago now after a horrific bout of double vision that was initially misdiagnosed as stroke and then as a mass ...
Read more : Hi from a sad and frustrated MS mom | Views : 2117 | Replies : 9 | Forum : Introductions


vacay within adventure

ok cure i am now officially in sydney! arrived last night around 11pm and roamed the town with my friend til about 1:30 am then came home and gabbed til 3am, so tired today! but generally feeling fine. my C7/C8 hurt SO BAD on the plane but it wasn't intolerable with it just being a 3 hr flight. LA to auckland was 12 hours of hell! anyway beautiful day today, we are going to royal ...
Read more : vacay within adventure | Views : 1982 | Replies : 6 | Forum : Daily Life


Pregnancy and arthritis

A reader of the site Chris wanted me to post this article from the Seattle Times. It's very interesting and maybe will have some effect on the research of pregnancy and MS too.

Hutch experts discover why pregnancy curbs arthritis
By Warren King

Seattle Times medical reporter


Denise Swanson, a special-education teacher in Seattle, says all of the symptoms of her rheumatoid arthritis disappeared when she was pregnant.

Rheumatoid arthritis like Denise Swanson's can be ...
Read more : Pregnancy and arthritis | Views : 1595 | Replies : 13 | Forum : General Discussion


Ms specialist found in our state! :)

I used the MS society to see if we even had a specialtist in Arkansas, they have a 800 number to find out locations: (800) 344 4867 and they have you on hold forever! but I got through so here is what I found out:

The specialist in Arkansas is Dr. Archer at UAMS and VA in Little Rock
We are suppose to get a referral to UAMS hopefully Monday, but I don't know who ...
Read more : Ms specialist found in our state! :) | Views : 1259 | Replies : 1 | Forum : General Discussion




Edited.... what should I expect?

THis is what has been done, does anyone know if that's enough to be expected in this amount of time?( 2 1/2 months since we sought help) Or maybe he should have had more tests by now?

One brain MRI -clear
nerve conduction test- good
chest x-ray
ekg- good except for sinus tachycardia
blood work done, hematology, chemistry, checked for hepatitis, and checked tsh level.

Also I wanted to add, I think I understand why ...
Read more : Edited.... what should I expect? | Views : 1302 | Replies : 3 | Forum : General Discussion


Better understanding of SPMS

Unlike RRMS, SPMS is less about inflammation and more about enlargement of lesions and axonal degeneration - leading to permanent disability.

The mechanisms driving SPMS are different to RRMS and treatments for RRMS are usually of little benefit for SPMS. The following research points to some possible culprits which could be targeted by treatments.

Ian

http://www.msif.org/en/research/researc ... xpres.html
Read more : Better understanding of SPMS | Views : 1588 | Replies : 6 | Forum : General Discussion


Does Copaxone make us more sensitive to cold?

Hi, I´m new here and have a question for you guys. I take Copaxone for 2 years and since then the winter seasons are dificult to pass on ok, because I feel a lot of cold that makes me walk slowly and slowly everyday (towards my couch!)... and when the warmer days are back, everything gets back to normal. And before Copaxone and the diagnosis of a demyelinating disease, all I had was blurred vision, ...
Read more : Does Copaxone make us more sensitive to cold? | Views : 2073 | Replies : 2 | Forum : Copaxone


Pregnancy and arthritis

I hope this has implications for MS...



Hutch experts discover why pregnancy curbs arthritis

August 18, 2006 -- Seattle Times -- Denise Swanson, a special-education teacher in Seattle, says all of the symptoms of her rheumatoid arthritis disappeared when she was pregnant.

Rheumatoid arthritis like Denise Swanson's can be debilitating, eventually deforming joints and making walking and using the hands very difficult.

When Denise Swanson developed rheumatoid arthritis nearly three decades ago, it was like ...
Read more : Pregnancy and arthritis | Views : 1042 | Replies : 0 | Forum : General Discussion


CPn as a cause of Optic Neuritis

CPn as a cause of recurrent optic neuritis in a twelve year old boy.

http://tinyurl.com/qk33f

Pohl D, Rostasy K, Gieffers J, Maass M, Hanefeld F.
Department of Paediatrics and Paediatric Neurology, Georg August University Gottingen, Germany.

It has been suggested that Chlamydia pneumoniae (C. pneumoniae) is involved in the pathogenesis of diverse diseases of the central nervous system (CNS), including multiple sclerosis. We report the case of a 12-year-old male with isolated recurrent optic neuritis ...
Read more : CPn as a cause of Optic Neuritis | Views : 1792 | Replies : 5 | Forum : General Discussion


 

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