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MS/TM/NMO/ADEM Scientific Conference for Patients

If you have any interest in seeing some scientific presentations on MS/TM/NMO/ADEM, meeting other patients, and hob-nobbing with researchers, then I highly recommend this symposium:

It's in Seattle July 16 - 19, 2008 and is a great opportunity to learn about these diseases, meet others who have them, and talk to the researchers who are working on them. I'll be there and would love it if you would introduce yourself if you see me.
Read more : MS/TM/NMO/ADEM Scientific Conference for Patients | Views : 1502 | Replies : 0 | Forum : General Discussion

Weird Bruising

I started Betaseron a month ago, and I feel sick all teh time. As my boyfrend put it, it seems like the syptoms from teh ms are going away yet I dont look like I am getting better.
you ever bump into something like a chair or table simply cause you didnt see it, well I did that and now i have instant bruise its not small either its welts out and is about 5 ...
Read more : Weird Bruising | Views : 1878 | Replies : 2 | Forum : General Discussion

What has helped you with fatigue?

My worst symptom so far is the fatigue. What has helped you with your fatigue?

I have PPMS, a mild case, not yet affecting me physically (legs and arms) too much. The fatigue is kicking my behind.

What have you done to help with this?

All suggestions will be appreciated.
Read more : What has helped you with fatigue? | Views : 1966 | Replies : 5 | Forum : General Discussion

Little son - how do I minimise his risk?

my little son is 2 months old. To my shock I recently read that the tranmission rate to children of a parent with MS is 1 in 10 - whereas I had always read up until recently that it was 1 in 100. 1 in 10 is so high, I am a bit worried about his future. But I suppose he has a 9 in 10 chance of NOT having it.....

What things should ...
Read more : Little son - how do I minimise his risk? | Views : 1698 | Replies : 5 | Forum : General Discussion

Protocol changes?!?!?!

I'm telling you kids that sometimes I think Opexa has a secondary "mission" to confuse us into flares. No kidding!

I'm just about ready for that Visit 52/0 excitement a few of you have already done (May 1 for me). Those of us who have already gotten the paperwork should pretty much be able to swear that the second chunk looks a whole lot like the first chunk only with fewer MRIs.

Then comes this ...
Read more : Protocol changes?!?!?! | Views : 2798 | Replies : 13 | Forum : Tcelna (Tovaxin)

tysabri worsening MS?

Hi, it' s my first time on this forum so hi everybody! I just received my tysabri infusion a few adys ago and I had some side effects the first few days - nausea, collosal headache, loss of appetite. Now most of the side effects have disspeared however, I have a very bad reaction - I already had trouble walking for 1,5 years though since a few days it is reall worse, my lower legs ...
Read more : tysabri worsening MS? | Views : 8064 | Replies : 25 | Forum : Tysabri (Antegren or Natalizumab)

What is known

What things are absolutely known to be true regarding the occurrence of MS?

I know:
More women than men
No gout
Higher incidence farther from the equator

What are the others?

Read more : What is known | Views : 3232 | Replies : 16 | Forum : General Discussion

Red Hair

Has anyone ever noticed how many people with MS have red hair? (I went on a freckles rant a while back, now I'm stuck on red hair)
In the general population, I read that 1-2% of people have red hair. I'm convinced that % is MUCH higher in those of us with MS. For those of you who do not have red hair, what about your parents, siblings, grandparents?
I can't find info on how ...
Read more : Red Hair | Views : 10362 | Replies : 76 | Forum : General Discussion

treating myself for Candida is helping my MS

I had been reading about 18 autistic children being treated for candida (or bad yeast) overgrowth and the results showed that 12 of the 18 were showing signs of recovery.

I have noticed strange odor from my poors, and I've told you all this before. I was thinking for a while that it was metabolic related, but read someone elses experience with this and she believed it was candida overgrowth.

I'm noticing huge improvements in ...
Read more : treating myself for Candida is helping my MS | Views : 3882 | Replies : 10 | Forum : Regimens

The Compound Vitamin

Here's the MS mix my nutritionist hooked me up with:

Thiamine HCI 300mg
Riboflavin HCI 100mg
Folic Acid 1000mcg
Vitamin C (Corn) 2000mg
Vitamin D3 1000 IU
Magnesium (Glycinate) 20% 360 mg
Zinc (Aspartate) Zn=20% 25mg
Copper (Histidinate) Cu=10% 4 mg
Manganese (Sulfate) Mn=32% 3 mg
Potassium Iodide I=0.7645 100mcg
Selenium (Methionate) Se=0.5% 400mcg
Citrus Bioflavonoids 100mg


I also take 1 tsp Omega 3, 1000mcg Methyl Vitamin B12 with Folic Acid (sublingual), 400 IU ...
Read more : The Compound Vitamin | Views : 3323 | Replies : 7 | Forum : Regimens


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