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New Tysabri patient

Well I'm switching from the Tovaxin thread to this thread now. Background: MS for 7 years. Avonex for first 4. Didn't really progress except in the area of side effects! They just kept getting worse and worse until I couldn't take it anymore. I felt pretty good though and was still very active; running every day, working alot, full social schedule. Then I got into the Tovaxin trial. I went downhill the whole time I ...
Read more : New Tysabri patient | Views : 4199 | Replies : 18 | Forum : Tysabri (Antegren or Natalizumab)

Interesting alliance

It sounds like Germany held a "BioPharma" competition to fund drug development. One of the winning groups, NeuroAllianz, is trying to develop therapeutics for neurodegenerative diseases.

Winning Consortium NeuroAllianz in the BioPharma Competition counts on UNIarray Technology

October 9, 2008 - Protagen AG, a leading provider of GMP compliant protein analytical services, protein bioinformatics, and protein biochips has won the BMBF’s BioPharma competition jointly with consortium “NeuroAllianz”. The twelve project partners will develop therapeutic as ...
Read more : Interesting alliance | Views : 1308 | Replies : 0 | Forum : General Discussion


Flupirtine is an approved oral pain medication that is in phase 2 trials in MS. This is an interesting abstract.

Flupirtine as Neuroprotective Add-On Therapy in Autoimmune Optic Neuritis.

Am J Pathol. 2008 Oct 2.
Sättler MB, Williams SK, Neusch C, Otto M, Pehlke JR, Bähr M, Diem R.
From the Department of Neurology,* University of Göttingen, Göttingen; the Department of Neurology, University of Homburg/Saar, Homburg/Saar; and the Department of Neurology, University of Ulm, Ulm, ...
Read more : Flupirtine | Views : 1674 | Replies : 0 | Forum : Drug Pipeline

I'm picking up good vibrations...

I hope this works.

MS sufferers feel the benefits of vibration trial

A trial to determine the benefits of vibration therapy for Multiple Sclerosis sufferers is having an immediate impact on participants, one stating that she could feel her feet again, and another saying the treatment left her legs tingling and buzzing like they hadn't felt in years.

Study supervisor Dr Steve Stannard says the trial was devised to see whether side-to-side alternating vibration therapy ...
Read more : I'm picking up good vibrations... | Views : 1685 | Replies : 3 | Forum : General Discussion

stem cell discovery

Sounds like good progress...

Unlocking Stem Cell, DNA Secrets To Speed Therapies

ScienceDaily - October 11, 2008 - In a groundbreaking study led by a molecular biologist at Florida State University, researchers have discovered that as embryonic stem cells turn into different cell types, there are dramatic corresponding changes to the order in which DNA is replicated and reorganized.

The findings bridge a critical knowledge gap for stem cell biologists, enabling them to better understand ...
Read more : stem cell discovery | Views : 1728 | Replies : 0 | Forum : Stem Cells

25-foot walk rules question, is jogging allowed?

So here's the shocker of the week.

Last night Kim "reacted" to my racing around before bed (turning off the lights and locking the doors, etc.) by racing me to the stairs. Kim was just trying to be faster than me, but without thinking about it, she ran. I saw her run. You could call it a light jog, but for the briefest of moments, she was completely airborne!

I looked at her in shock ...
Read more : 25-foot walk rules question, is jogging allowed? | Views : 2011 | Replies : 7 | Forum : General Discussion

Symptoms there for good?

Hi! This is only my second post here. I posted earlier today in the Introduction section.

I have been diagnosed with MS in June this year, and I've had tingling in my hands for months (about 6 or 7) and stiffness in my left leg for a month now.

I started taking Rebif 3 months ago, and since I have started it, that's when I got my lastest relapse (the leg stiffness). It has gotten ...
Read more : Symptoms there for good? | Views : 1759 | Replies : 6 | Forum : General Discussion

Hi from Quebec, Canada

Hi! I'm 29 years old. I was diagnosed with MS late June this year, after going through several tests and an MRI. What started the tests is that since January I had tingling that started on my legs, then went to my hands. I still have the tingling in my hands (especially the right one), and for the past month, I've had stifness in my left leg, which seems to have gotten worse this week. ...
Read more : Hi from Quebec, Canada | Views : 1730 | Replies : 8 | Forum : Introductions

Oral Chemo using Cyclophosphamide

Not really an option right now, but I would be surprised if some Dr in the world does not try this path for MS, if IV HyCy proves itself effective.

I also noticed the small Roche emblem in the bottom left of the page. Clicking to other pages makes it clear the site was clearly created / maintained by Roche.
Read more : Oral Chemo using Cyclophosphamide | Views : 1985 | Replies : 0 | Forum : Revimmune (cyclophosphamide or cytoxan)

Stopped copaxone

Since I started copaxone I have been battling my weight. Gaining despite dieting etc. Plus I got pregnant whilst on copaxone but ost the baby last month - I don't know if the 2 are linked. Ultimately though i made the decision to come off copaxone and my neuro says he's ok with it. We're going to try and start a family now, something we had put on hold.

I'll see how life without copaxone ...
Read more : Stopped copaxone | Views : 2436 | Replies : 2 | Forum : Copaxone


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