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HiCy & Returning Relapse Rate?

I have been watching this board for about six months and finally made the call to Carrie this morning.

As a short backgrounder, I have had MS for 14 years but you would never know it by looking at me. I work 10 hour days at work and don't seem to have some of the problems some of the other MS'ers have with heat and fatigue (I feel very lucky!).

Back to the call, we ...
Read more : HiCy & Returning Relapse Rate? | Views : 2897 | Replies : 9 | Forum : Revimmune (cyclophosphamide or cytoxan)

Question about IVSM

I had my 1st 3 day course of IVSM, 1000 mg/day, It's been a week, am I supposed to feel different by now?

I thought I had a moment or 2 of mental clarity the other day, and I got all excited, but today I'm back to walking into walls.

I'd love to hear everyone's experiences...
Read more : Question about IVSM | Views : 1881 | Replies : 7 | Forum : General Discussion

Cord Blood

If you had children fairly recently, did you choose to save the cord blood?

Why or why not? Would you with future children?

I confess I know very little about stem cells and MS, but I am intrigued by the possibility of doing this with my future children.
Read more : Cord Blood | Views : 3005 | Replies : 11 | Forum : Stem Cells

Questions and responses to the 100 plus days club members

Hi to all,

This is where to ask your questions of the people in the study. I hope Bob will keep an updated list of all questions asked as the second post on this thread.

Go BobImage

Some points to review. There will be a quiz later.

I never had an injection site reaction.

MRTCs, Masking/Suppressing, and Some Thoughts

Some ...
Read more : Questions and responses to the 100 plus days club members | Views : 11529 | Replies : 72 | Forum : Tcelna (Tovaxin)

The 100 Plus Days Club

Hi to all,

This is an exclusive club composed of people in the IIb extension study who are at least 10 days past receiving their third injection of the reel stuff. Although I am starting this thread, I am not part of the club. I feel that this thread will be beneficial to people in the study, people considering the phase III study, and anyone interested in Tovaxin.

I would like to see study participant ...
Read more : The 100 Plus Days Club | Views : 2846 | Replies : 3 | Forum : Tcelna (Tovaxin)

nutrition and expecting moms

hey this article looks pretty informative

the roles that the different vitamins and minerals play in fetal growth and development are reviewed, primarily with respect to growth and differentiation in humans; but, as appropriate, data provided from animal and cellular studies are also considered.

throw in what we know about the usual suspects in ms and that article looks like it could be a pretty useful resource.
Read more : nutrition and expecting moms | Views : 1444 | Replies : 2 | Forum : Natural Approach

Infections and Transplants

I was going to post this on the hicy forum but decided to put it here as it is speculative and only tangentially related to treatment with hicy.

I wondered about permanently latent virii like:
-HSV1 (cold sores on the lips)
-HHV6 lives in you forever after contacting it as a kid (we all have it)
-EBV lives in your b cells forever, and possibly the marrow

those are all viruses that the vast majority ...
Read more : Infections and Transplants | Views : 1406 | Replies : 0 | Forum : General Discussion

Computer-based molecular modeling in drug discovery

Computer modeling in drug discovery

I have been asked to comment on a treatment protocol being put forward based on computer modeling of small molecules in the ligand binding sites of receptors. I am not familiar with the protocol but I can comment on some of the many caveats that must be considered when interpreting computer-based modeling of drug-protein interactions. The bottom line is that the modeling by itself is only suggestive of possibilities, not ...
Read more : Computer-based molecular modeling in drug discovery | Views : 2999 | Replies : 4 | Forum : General Discussion

Lessons from the School of Suffering

Lessons from the School of Suffering : A Young Priest With Cancer Teaches Us How to Live
by Jim Willig (Author), Tammy Bundy (Author)

this is a really short rerad but I enjoyed it, definetly a Catholic read.
Read more : Lessons from the School of Suffering | Views : 3473 | Replies : 0 | Forum : Reading Nook

I have my appointments.

I see Dr. Kerr on August 6th and Dr. Brodsky on August 12th. If all goes well and I feel comfortable and non-scared-shitless, then I'm looking at HiCy in Summer 2009.

I would have liked to have seen the Dr.s earlier (example: in July), but unfortunately I have to testify in a court case (I'm a witness) that begins on July 7th, so...

Still: I am excited to be going this summer.

Read more : I have my appointments. | Views : 2383 | Replies : 12 | Forum : Revimmune (cyclophosphamide or cytoxan)


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