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any hospital

can you have the treatment done off-label at any hospital or only at john hopkins
thanks shell
Read more : any hospital | Views : 1831 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)

Gibbledygook's anti-viral log

I have started taking anti-viral herbs as opposed to antibiotics in the hope that trying to weaken Epstein Barr, varicella zoster et al might alleviate the disease burden. I believe that the following have anti-viral properties:
maximised curcuminoids 5g to 8g (good for pain)
reishi 3g
licorice 4g
green tea 3g
reservatrol 600mg
honokiol 120mg

NAC 2400mg
blackcurrant sumbokol

I have been taking the above for 3 weeks since my latest steroids session. ...
Read more : Gibbledygook's anti-viral log | Views : 51678 | Replies : 246 | Forum : Regimens

second day of campath 3/18/2008

well... me and one of my best friends of 12 years both happened to get diagnosed with MS within a year of each other. We both picked the same neurologist and we both happened to make it to the phase three campath study.

The study qualification was intense.. lots of poking, prodding, degrading testing, and blood work. but we made it.

I wasn't sure up until the last minute that I was going to do ...
Read more : second day of campath 3/18/2008 | Views : 3167 | Replies : 10 | Forum : Campath (Lemtrada, Alemtuzumab)

Blood Work A-OK

Hi all-
big relief. Jeff's blood work ALL came back normal. Looks like petechiae on legs was part of an allergic reaction to the gadolinium, but did not affect him otherwise. His spots are turning brownish now, and fading, and leg pain is reduced.

Apparently this is a side effect for some folks. Who knew? Guess we do now.
a relieved cheerleader.
Read more : Blood Work A-OK | Views : 2214 | Replies : 9 | Forum : General Discussion

17/03/08 - St George's Hospital Trial Judgement ... php?nid=36

17/03/08 - St George's Hospital Trial Judgement

The Board of Daval International Limited decided, in 2004, to terminate the first full-scale clinical trial of AIMSPRO at St George's Hospital, London. The Company had drawn on a broad range of Medical and Pharmaceutical opinion to form this important decision, which was necessitated by the sub-standard handling of trial medication at the hospital's pharmacy, with the possible risk ...
Read more : 17/03/08 - St George's Hospital Trial Judgement | Views : 5200 | Replies : 0 | Forum : Aimspro

MS Journal

This was posted over at Accelerated Cure but I know the research junkies over here will probably dig it. 2 months of free access to the MS Journal.
Read more : MS Journal | Views : 2020 | Replies : 4 | Forum : General Discussion


I just found out today this is the name for very bothersome burning, freezing and stabbing pains in hands and right arm. They call it "tactile hallucination", but to me it is very real and painful and upsetting. I've tried Neurontin and Lyrica and both seemed to work initially, but then stopped working. Have had this since November, 2007. Does anyone have any advice, any recommendations, know of anything that eased the "discomfort"? Many thanks, ...
Read more : dysesthesia | Views : 1560 | Replies : 0 | Forum : General Discussion

Blech, snort, gag, aka Bill The Cat

Exactly how I feel. Just had to say I'm in the hotel.

That's it, I'll talk to you in a month.

Wife is updating my site daily.
Read more : Blech, snort, gag, aka Bill The Cat | Views : 2114 | Replies : 3 | Forum : Revimmune (cyclophosphamide or cytoxan)

Impaired Renal function in patients with progressive MS ... 59/11/1799

I would like to suggest that MS patients make sure their glomerular filtration rate (GFR) is satisfactory to excrete gadolinium dye used in MRIs, BEFORE they have an MRI with enhancement.

Since kidney disease is often not diagnosed until it is very far along, a slightly compromised system could be affected by gadolinium. A simple renal panel test will give you an idea. We'll have my ...
Read more : Impaired Renal function in patients with progressive MS | Views : 1662 | Replies : 1 | Forum : General Discussion

Aimspro in France ?

Can we try it in France ?
Read more : Aimspro in France ? | Views : 4082 | Replies : 0 | Forum : Aimspro


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