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Avonex and heart issues

Hi--I'm new here, this is my first post. I have been on Avonex for a little over two years. Recently, I started experiencing heart palpitations and twinges of chest pain around my sternum. I made an appt. to see my PCP and start getting a work-up for my heart--also to ask if I'm having anxiety attacks or something.

However, I called my neuro today since I was curious about the cardiac warning on Avonex. She ...
Read more : Avonex and heart issues | Views : 5066 | Replies : 7 | Forum : Avonex

Hughes and MS, diagnosing them?

I am sure most of you have seen the recent stories on Hughes syndrome (Antiphospholipid syndrome or "sticky blood") and up to possibly 5% of people with MS being misdiagnosed.......and actually having Hughes instead? ... pageid=736

I'm just wondering, is it possible to have both MS and Hughes, or are they either/or?
It's just that I have now sadly had 3 miscarriages, latest one being a week ...
Read more : Hughes and MS, diagnosing them? | Views : 2149 | Replies : 13 | Forum : General Discussion

Today's Vitamin D study results

Read more : Today's Vitamin D study results | Views : 4141 | Replies : 33 | Forum : General Discussion

PML research

Biogen recently purchased a biotech company that was doing research on PML. I think I read about this here, but cannot find the name of the company.

It seems really odd to me that Biogen has now had two of their drugs, Tysarbi and Rituxin, linked to PML and they just recently happened to buy a company researching PML.

Who wants to be a lab rat for their next product? Not me.
Read more : PML research | Views : 1287 | Replies : 7 | Forum : General Discussion

More EBV research

More research on EBV and MS.


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Read more : More EBV research | Views : 1090 | Replies : 1 | Forum : General Discussion

Rituxan Problems?

Just saw this article from Reuters re: PML showing up in a couple of Rituxan patients. Although the drug has been used for about 8 years with supposedly good safety results, one has to wonder why PML has decided to all of a sudden show up. I would hope that those MS patients involved in clinical trials with Rituxan will be closely monitored.



WASHINGTON (Reuters) - Two lupus patients died from a rare ...
Read more : Rituxan Problems? | Views : 1709 | Replies : 5 | Forum : General Discussion


Has anyone tried or thought of trying Lamotrigine? It's in trials at present for MS for neuro-protection etc., but is a drug normally taken for epilepsy and bi-polar.
Read more : Lamotrigine | Views : 6751 | Replies : 32 | Forum : Drug Pipeline

The score: HERV 1 - HHV6 0

It's looking more and more to me like HHV6 either plays nothing more than a triggering role in MS, or is a red herring.

Brains and peripheral blood mononuclear cells of multiple sclerosis (MS) patients hyperexpress MS-associated retrovirus/HERV-W endogenous retrovirus, but not Human herpesvirus 6.

J Gen Virol. 2007 Jan;88(Pt 1):264-74.
Mameli G, Astone V, Arru G, Marconi S, Lovato L, Serra C, Sotgiu S, Bonetti B, Dolei A.
Section of Microbiology, Department of Biomedical ...
Read more : The score: HERV 1 - HHV6 0 | Views : 1978 | Replies : 5 | Forum : General Discussion

Anyone - T-Cell Vaccination (Sheba Medical Center) trial?

We have seen that we have quite a few people here that are in the Phase IIb Tovaxin Trial, but I haven't read of anyone who is in the Phase III "T-Cell Vaccination (Sheba Medical Center)".

I would expect that the Phase III trial would be bigger, and therefore there would be more of us in it. Anyone?
Read more : Anyone - T-Cell Vaccination (Sheba Medical Center) trial? | Views : 1964 | Replies : 5 | Forum : Tcelna (Tovaxin)

Hi Everyone

Hi. My name is Terri. I am 46 and was diagnosed in June.
I am having a hard time accepting this. I spend so much time wondering what caused this.
Not much support here. My husband is in total denial. It's nice to meet you all, even though I wish we didn'y *need* to be here.
Read more : Hi Everyone | Views : 1627 | Replies : 6 | Forum : Introductions


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