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MS hugs - a rare symptom

I just had an MS hug appear - well it's identical to others I have had and so I called my docs for something to help (they prescribe anti-inflammatorys to help with the muscle spasms). The dr that called me back had never heard of MS hugs and had to go away and check b4 he could decide what to give me. When he called back he commented that according to teh specialists it is ...
Read more : MS hugs - a rare symptom | Views : 2233 | Replies : 9 | Forum : General Discussion

The MS Society - New guide dispels myths of miracle cures

10 Nov 2008

The MS Society has today joined forces with charitable trust Sense About Science as part of an initiative to highlight the importance of evidence-based information on new treatments and therapies.

A guide published today entitled ‘I’ve got nothing to lose by trying it’ explains how to tell the beneficial from the bogus in the face of miracle cure stories, new wonder-drugs and breakthrough therapies that are increasingly promoted in the media and ...
Read more : The MS Society - New guide dispels myths of miracle cures | Views : 1901 | Replies : 4 | Forum : General Discussion

Good joke - need to scroll so it doesn't give it all away!


A teacher asks her class, 'If there are 5 birds sitting on a fence and you
shoot one of them, how many will be left?'

She calls on little Ralphy.

He replies, 'None, they will all fly away with the first gunshot.'

The teacher replies, 'The correct answer is 4, but I like your thinking.'

Then little RALPHY says, 'I have a question for YOU.

There are 3 women ...
Read more : Good joke - need to scroll so it doesn't give it all away! | Views : 1484 | Replies : 0 | Forum : Humor

Cladribrine Question

I know this is in the final leg of testing as the first oral for MS but because it is an approved drug for a different indication, it can be used off label as an injection.

Does anyone have any experience with using Cladribrine either off label or in the MS trial? Phase II data of the MS trial included zero efficacy data and I am considering trying it off label after developing antibodies to ...
Read more : Cladribrine Question | Views : 1519 | Replies : 0 | Forum : General Discussion

Iran invests $2.5b in stem cell research

The Iranians have already done stem cell testing on human MS patients, and continue to forge ahead with stem cell research. Politics aside, kudos to them in this regard.

I also found it interesting that the article notes that Muslim clerics declare that life begins three months after conception. Thus, they don't have the moral dilemma that most Western countries do...
Read more : Iran invests $2.5b in stem cell research | Views : 1628 | Replies : 0 | Forum : Stem Cells

How do I?

Alright I have been kind of in a depression since, my diagnoses in Feb. and now im worst cause I might not get state aid, which means Im jsut worst

Im tired all the time, I cant focus, I cant get motivated to do anything.
How do I get out of this slump? I was a very energic person before all this news...I mean I have good friends asking if im ok, cause I just ...
Read more : How do I? | Views : 1552 | Replies : 4 | Forum : General Discussion


I have always been a light sleeper and was surprised when my Dr said I needed to have a sleep study. I was shocked when I was told that I have central sleep apnea the Dr said it was caused by the lesions on my brain! I have been dx for 5 years but with symptoms for 20. AS ANYONE ELSE HEARD OF SUCH A THING?
Read more : sleep | Views : 2166 | Replies : 6 | Forum : General Discussion

Neuroregeneration and reprogramming

Here are a couple of interesting articles, one on neuroregeneration by silencing growth inhibitors and the other about reprogramming adult cells into stem cells.

Silencing growth inhibitors could help recovery from brain injury
Silencing natural growth inhibitors may make it possible to regenerate nerves damaged by brain or spinal cord injury, finds a study from Children's Hospital Boston. In a mouse study published in the November 7 issue of Science, researchers temporarily silenced genes that ...
Read more : Neuroregeneration and reprogramming | Views : 1167 | Replies : 0 | Forum : General Discussion

Personal circuit

A circular journey or one which begins and ends at the same place

MS is a circuit for me, there is no moving forward yet, just a continuous loop of symptoms and medicinal trial and error.

I walk in circles, I learn information and then learn that information is wrong. I try new things to feel better then end up feeling worse. I bang my head repeatedly searching for my happy place.

I'm not ...
Read more : Personal circuit | Views : 2067 | Replies : 7 | Forum : General Discussion

I got a job!!!!

I just got a permenant job at the company I have been temping at since last year! I am so so pleased!
Read more : I got a job!!!! | Views : 1446 | Replies : 4 | Forum : General Discussion


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