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Cool Site New Guy

Hi im 17 i have had MS for a year now and of course getting it when your in high school sucks. Bye Bye soccer and drama (with MS i shake and get really stiff responding to my nervousness, no matter how small it is)

It's kinda funny i effectively hid it by pretending to be a clumsy idiot :wink: my junior year until 2 weeks ago ...
Read more : Cool Site New Guy | Views : 1607 | Replies : 7 | Forum : Introductions

Hurricane Gustav, what a prick!!


The downside of living on the coast :( looks like we may be about to have an unwelcome visitor!! Been there and done that, not wanting to do it again :? , This time we will be heading out sooner than later, last time we got one of these we opted to ride it out. Big mistake. Looks ...
Read more : Hurricane Gustav, what a prick!! | Views : 7155 | Replies : 56 | Forum : Daily Life

follow up on FTY720

Had my follow up today. They now warn you not to get any live vaccines and give you the results of certain susceptibilities that you may have, using old blood work. This is all because of the recent infections and the death that has occurred on this med. My EDSS has come up so I had to sign a form saying that I still want to be in this study. I actually thought that my ...
Read more : follow up on FTY720 | Views : 2193 | Replies : 3 | Forum : Drug Pipeline

New to the forum

Hi, I'm Jennifer, brand new to this forum, have been reading a little bit.

I've been enjoying very mild neurological symptoms for the past year or so -- primarily intermittent numbness/reduced sensation, 'stiffness' , and 'weakness' in my right arm/hand and leg/foot. Doesn't interfere with normal life (aside from the time we spent worrying about ...
Read more : New to the forum | Views : 2197 | Replies : 8 | Forum : Introductions

Bizarre Occurrences


I was recently diagnosed with MS during the month of July but believe I have had the disease for 10 years. The first occurrence happened in October of 1998. One morning I awoke with a completely numb right hand. Then, the numbness had spread up my arm down to my waist and then right leg. I lost total mobility and control of my right arm to the point where I was unable to do ...
Read more : Bizarre Occurrences | Views : 1752 | Replies : 5 | Forum : Introductions

Dramtic decrease in EDSS with Liver Transplant ? Why ?

Was reading a couple of articles ( see below ) and I just cant get my head around these things

Just wondering if anybody else has an opinion on why a liver transplant can result in Huge decrease in EDSS and solid disease stablization ?

The articles don't really even speculate why ?

see these two articles


The Canadian Journal of Neurological Sciences
Issue: Volume 31, Number 4 / November 2004
Pages: 539 - ...
Read more : Dramtic decrease in EDSS with Liver Transplant ? Why ? | Views : 9061 | Replies : 60 | Forum : General Discussion


I got a script for amantadine for fatigue and started taking 100mg in the morning and at night. I haven't noticed any changes yet. Has anyone else taken this and does it work?

Read more : Amantadine | Views : 3497 | Replies : 18 | Forum : General Discussion


I was just diagnosed in July 2008. In hindsight my first obvious episode was 1986. A neck injury in 1991 and related surgery in 2001 became the catch-all excuse for my quirky symptoms. Well, docs also accused me of being an alcoholic – in denial, or trying to scam workers comp, or having body issue problems (like what 20th century woman raised in the US doesn’t?). Until I woke up one morning and couldn’t see ...
Read more : hello | Views : 1627 | Replies : 7 | Forum : Introductions

World Congress on Treatment and Research in MS-Abstracts

Hi all

The abstracts for the World Congress on Treatment and Research in MS starting Sept. 17th in Montreal are available for reading (they're under embargo until presented.)

Here's the link to the program and at the very top you'll see a link to the "itinerary planner", that will take you to the abstracts (browse).

Quick glance suggests there's going to be lots of presentations and poster sessions on numerous topics.

Read more : World Congress on Treatment and Research in MS-Abstracts | Views : 1415 | Replies : 1 | Forum : General Discussion


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