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Waiting for Right therapy

I have been diagnosed 3 years back but have not taken any drugs so far and am feeling fine until recently when i have had further weakness develop in my right leg in addition to left one where the problem started. No new lescions reported but there is a further worsening of the lescions in my back.
I am a bit concerned but starting the injections due to side effects with Avonex and other Immune ...
Read more : Waiting for Right therapy | Views : 5417 | Replies : 31 | Forum : Introductions

Just curious...what meds are you on for symptoms?

I was just curious what meds others were taking for symptoms. I feel I'm taking so many thing....maybe others can share what works for them. :wink:

I'm taking:
Rebif inj
Prevacid for GERD
Namenda for cognitive problems
Effexor for depression
Ditropan for bladder
Ambien for insomnia
Xanax occasionally for stress/anxiety
Celebrex for arthritis pain
Ultracet for leg pain

Any suggestions for numbness/tingling? Sometimes is makes me ...
Read more : Just curious...what meds are you on for symptoms? | Views : 901 | Replies : 0 | Forum : General Discussion

Does this ever happen to you?

Sometimes I just feel like I can't wake up. I have to force myself to open my eyes! Has anyone else ever experienced this? 8O

Thanks, Vicki (newbie)
Read more : Does this ever happen to you? | Views : 1111 | Replies : 2 | Forum : General Discussion

New phase II study

Here's one that got caught up in the tysabri storm and is now ready to restart the trial process after being asked to halt by the FDA in 2005. On the bright side, it's a pill.

Study of SB-683699 Compared to Placebo in Subjects With Relapsing-Remitting Multiple Sclerosis (MS)

This study is not yet open for patient recruitment.

Verified by GlaxoSmithKline November 2006

SB-683699 is an oral medication that is thought to reduce the ...
Read more : New phase II study | Views : 1594 | Replies : 0 | Forum : Drug Pipeline

The Letter

What about a letter that expresses all our concerns and our need for more in the way of treatments and the research findings we need to get our lives back. This would be a world wide partition with who knows how many signatures to express the feelings of people with ms. We could have a collaborative effort to design a cover letter of what we need to say and let this letter take its course ...
Read more : The Letter | Views : 1606 | Replies : 11 | Forum : General Discussion

For gibbledygook

Fair warning to anyone who likes to put on blinders---I'm the oddball who has sought out comprehensive treatment for my husband who has SPMS. For background see And yes, if you're curious, he is improving very nicely on the Wheldon combined antibiotic protocol, antivirals, heavy metal chelation, LDN, and a slew of carefully selected supplements.

Some interesting information has recently crossed my path that I want to share with gibbledygook and those others who ...
Read more : For gibbledygook | Views : 1968 | Replies : 8 | Forum : General Discussion

Where's Jimmylegs?

Hope all's ok with you in Oz Jimmy. You're usually so prolific.
Perhaps you've just snuck over to Cambridge to visit Ian and get your own back whilst he's in a vulnerable position!? (joke)
Read more : Where's Jimmylegs? | Views : 1100 | Replies : 3 | Forum : General Discussion

Rebif on Hold?


Appreciate the forum. Very informative. I'm legal guardian for my mentally challenged brother who is 4 years into his MS diagnosis.

Wondering if anyone has gone off Rebif cold turkey. Neuro has Tysabri infusion scheduled but wants my brother off Rebif for 30 days prior. Anything we need to watch for?

Again, thanks for so much information, much of it gleaned the hard way.

Read more : Rebif on Hold? | Views : 1742 | Replies : 7 | Forum : General Discussion

Fatigue – When am I going to learn!

Just me grumbling again.

I moved some stuff around yesterday. Nothing big or anything, and I went real slow. Today I’m really ill with fatigue. It’s days like this that scare me. I tell myself it’s OK to do this now and then. I want to stay as active as I can to retain some stamina but the price is getting high. I’ll probably be down for a couple of days now. Maybe I’ll catch ...
Read more : Fatigue – When am I going to learn! | Views : 2517 | Replies : 5 | Forum : Daily Life

Has the Phase III trail of fingolimod (FTY720) started ?


Does any one know if the phase III trail of fingolimod (FTY720) started ?

Last I read about the trail was that, it is to start in the last quater of 2006

Read more : Has the Phase III trail of fingolimod (FTY720) started ? | Views : 1818 | Replies : 6 | Forum : Drug Pipeline


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