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New to MS and Posting

:?: Hello, everyone one. Thanks for letting me join your fine group. I am hoping to learn as much as I can about MS and the Dx process. I am in limbo myself still going through all the testing.

I was Dx'd with Fibromyalgia 3 years ago, however a new GP has since decided that the progression of my symptoms as well as new ones are looking ...
Read more : New to MS and Posting | Views : 2944 | Replies : 11 | Forum : Introductions

Pleased but puzzled

I posed this question in an earlier thread but it did not receive a response. Perhaps everyone is on holiday or I phrased the question badly? However, being the persistent little soul that I am – here it is again.

I have to confess I am still struggling to figure out exactly how this stuff is working so the following is a “think bubble” for anyone to comment upon.

To set the scene:- I have ...
Read more : Pleased but puzzled | Views : 3229 | Replies : 8 | Forum : Low Dose Naltrexone

Whelk venom.

Having had MS for 2.5 years I ate some whelks which seemed to ease my symptoms. A search of the internet ( suggested that my chance and subjective discovery may have more to it. Whilst the above is an Australian sea snail another discovery indicates that the European/North Atlantic whelk has similar properties.

It would appear that the venom assists the passage of signals down the neuron.

It there ...
Read more : Whelk venom. | Views : 1016 | Replies : 2 | Forum : General Discussion


Article on IL-12 and it's possible involvement in MS

One of the drugs in trial ABT-874 focuses on IL-12

Read more : IL-12 | Views : 5133 | Replies : 16 | Forum : General Discussion

Stem cell treament

Dear all,

This article comes from The Sun (a UK tabloid). Not much detail but I've heard elsewhere that the Dutch are doing some interesting things in relation to MS.,,2-2005330387,00.html

Read more : Stem cell treament | Views : 1082 | Replies : 0 | Forum : General Discussion

Question About Drug Trials

I just read better2gether's post in the Tysabri forum about the Sentinal results (Avonex/Tysabri combo). I've always wondered...
There were 1171 Avonex treated patients spread out over 123 trial sites. If it was a double blind study, does that mean there were double that number of actual participants? Why do they spread it out over such a large number of sites? Wouldn't 50 or so sites provide a representative sample and greatly reduce costs?
Read more : Question About Drug Trials | Views : 1224 | Replies : 4 | Forum : General Discussion

Tetanus immunization helpful for those with MS?

I guess this relationship still needs to be tested, but it's an interesting possibility.

Immunity to tetanus is protective against the development of multiple sclerosis

Verstraeten T, Davis R, Destefano F.
Epidemic Intelligence Service (EIS) Program, Epidemiology Program Office, Centers for Disease Control and Prevention, Altanta, GA, USA.

Following allegations that Hepatitis B vaccination causes or triggers multiple sclerosis (MS), several epidemiological studies have been conducted to evaluate the association between MS and vaccination.

In ...
Read more : Tetanus immunization helpful for those with MS? | Views : 1162 | Replies : 5 | Forum : General Discussion

NABs Caution

Periodically, discussions arise regarding the danger and prevelance of NABs (neutralizing antibodies)for those patients who use the interferons. The drug companies usually have a tendancy to minimize the concern for NAbs, stating they don't normally effect very many patients. I've also read that some patients on these drugs don't get their NAB levels tested and their docs have never mentioned them.
This study in Switzerland followed patients for 4 years and discovered the problem could ...
Read more : NABs Caution | Views : 1118 | Replies : 1 | Forum : General Discussion


Some recent research which mentions FTY720

Bromley ... d=rssfeeds
Read more : FTY720 | Views : 1439 | Replies : 1 | Forum : Drug Pipeline


It has long been suggested that EBV may be a trigger for MS. However, some 95% of adults are exposed to the virus so it is difficult to come up with a definitive answer. The following research covers children with MS and shows that children exposed to EBV are much more likely to develop MS. I had glandular fever (EBV) at 16 and was diagnosed with MS at 39. I recently saw a senior MS ...
Read more : EBV | Views : 1197 | Replies : 1 | Forum : General Discussion


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