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HiCy in Chicago @ Rush Hospital

A woman named Kathy has gone through the procedure in Chicago.
Type in to read and watch.

Read more : HiCy in Chicago @ Rush Hospital | Views : 5020 | Replies : 14 | Forum : Revimmune (cyclophosphamide or cytoxan)


Hi there!! I'm new, obviously... and my name is Jen. I had my first symptom at 14, diagnosed at 15. Now that I'm 2 months away from being 20, my last visit with my neuro was a little odd for me. He told me that I might have NMO because I have inflamation in my spine, so I'm sitting on pins and needles for my results. Does anybody else have MS and NMO? I'm so ...
Read more : NMO??? | Views : 1431 | Replies : 2 | Forum : General Discussion

First copaxone injection - post HiCy

Wow - this board has been very quiet lately!

Anyhow, just updating:

I continue to see improvements daily! Yay.

Today I started on Copaxone. Boo. Big owwie. More owwie than the HiCy itself! Go figure!

Hope everyone is well....

Read more : First copaxone injection - post HiCy | Views : 2441 | Replies : 6 | Forum : Revimmune (cyclophosphamide or cytoxan)


I am really struggling with fatigue at the moment. I am at work and practically in tears because I am so exhausted. It's obvious because my physical stuff gets worse - I'm staggering like a drunk person, my limbs feel weak and I can tell that i am having trouble forming words / my speech is slightly slurred. I feel like such a bad wife too - my house needs cleaning but by the time ...
Read more : Fatigue | Views : 2070 | Replies : 13 | Forum : General Discussion

sclerotic but patent--What does that mean

I have relapse remitting MS and have been having a lot of pain in my left upper leg, hip and back. My doc is on vacation and another one did xrays and just emailed me the results without explaining them.

Said my SI joints, especially the right ones appear appear sclerotic but patent. Anybody have any idea what that means? I emailed this replacement doc back but haven't heard from her yet. I looked it ...
Read more : sclerotic but patent--What does that mean | Views : 6712 | Replies : 5 | Forum : General Discussion

Meet others with ms...

If you would like to get in touch with others with ms in your area, if you would like to find others with ms who share similar interest, if you just feel like chatting about certain things with people you know would understand, then join the facebook group called;

Meet others (between 18-35) living with Multiple Sclerosis


Meet others (over 35) living with Multiple Sclerosis

Read more : Meet others with ms... | Views : 1468 | Replies : 0 | Forum : Daily Life

Hi, glad I found this site!

I have visited other sites over the past years on and off, usually when I have an exacerbation, but to be honest with you, I really was not looking for people to bless me or pray for me. Though I know their hearts were in the right place. I just want to be able to feel connected, to talk to others who know what it feels like to have these wierd sx, that only someone ...
Read more : Hi, glad I found this site! | Views : 1399 | Replies : 1 | Forum : Introductions

'busted out the new cane today

Well I finally did it. I've had a cane for about a year now. I wanted to get it before I needed it to try and learn the most effective way to use it and practice and yada, yada. Anyway, I had customers in all damn day today and had to spend mucho time in the shop. The last time I did that, I had to have someone take over for me after lunch. Well ...
Read more : 'busted out the new cane today | Views : 1630 | Replies : 9 | Forum : General Discussion

Looking for a book about MS for a newly diagnosed 15 yr. old

She wants some interesting books to learn more about her MS. Maybe something written by a teen or written specifically for teens. She was not interested in Nancy Davis or Teri Garr books that I got. Anyone know any others?
Read more : Looking for a book about MS for a newly diagnosed 15 yr. old | Views : 4086 | Replies : 3 | Forum : Reading Nook


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