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Hi from Italy

Hello to all. I am a dutch girl (maybe should call myself woman), i am 40 years old, married with 2 kids. And i am living in Italy, rome!

Ihave the diagnose of ms for about a year now. Using Rebif 22. It started with a neurite ottica, that was my first sintom, and also my last.

Thats it for now, i apologize for my bad english. Maybe writing on this forum i might improve, ...
Read more : Hi from Italy | Views : 1405 | Replies : 3 | Forum : Introductions


To CRAB or Not to CRAB

Just had an evaluation by a new neuro and he dx'd me as SPMS I think based on the length of time I seem to have had the disease. I never seemed to have had an RR form of the disease. I had a bout of ON in 1985 that eventually resolved and have not had a recurrence of that. The results of the LP at that time had some very strong indicators of MS ...
Read more : To CRAB or Not to CRAB | Views : 2027 | Replies : 10 | Forum : General Discussion


High Blood Pressure

Not being certain where to put this or even certain that that it should be put at all I chose here.

Over on www.CPn Help.org there is an amazing thing happening. With four of us, though not all with MS, some very high blood pressures are dropping to normal. One if these was 200/120 and after only 2 months on abx it has dropped to 150/104.

Rica
Read more : High Blood Pressure | Views : 1003 | Replies : 0 | Forum : General Discussion


neuropathic pain

My wife was dxd 6 years ago. For the last 3 years she has had chronic nerve pain (aching, burning, sensitivity, etc.) down one leg or the other (never both) to the toes. It's almost always there at some level, but can be fired up immediately by certain activities or positions (sitting, bending forward, etc.) that are typical for someone with a back/pelvic injury or instability. Every single diagnostic test (including 10 MRI's of lumbar ...
Read more : neuropathic pain | Views : 10023 | Replies : 22 | Forum : General Discussion


MS awareness week

Dear all,

Next week is MS awareness week in the US. I personally find these events (and similar awareness days / weeks in the UK) about as useful a a broken wristwatch.

However, there are two webcasts which look interesting.

(i) 13.3 "Repairing MS Damage and Protecting The Nervous System" - Dr Peter Calabresi.

(ii) 17.3 "Discovering Better treatments for MS Today and Tomorrow" - Dr Larry Steinman.



http://www.nationalmssociety.org/awareness.asp ...
Read more : MS awareness week | Views : 1029 | Replies : 1 | Forum : General Discussion


Immersive Resort for MS/physical-therapy...?

Does anyone know of a resort environment anywhere that specializes in immersive physical therapy, nutrition, etc. for individuals with disabilities and/or MS specifically? I've been searching online but haven't found anything. I'm especially looking for something in US, Canada, or Mexico.

Thanks so much for any tips!!

-- Paul
Read more : Immersive Resort for MS/physical-therapy...? | Views : 1198 | Replies : 2 | Forum : General Discussion


Looking for MS/physical-therapy Resort

Does anyone know of a resort environment anywhere that specializes in immersive physical therapy, nutrition, etc. for individuals with disabilities and/or MS specifically? I've been searching online but haven't found anything.

Thanks so much for any tips!!!

-- Paul
Read more : Looking for MS/physical-therapy Resort | Views : 2667 | Replies : 3 | Forum : Regimens


Reason for starting treatment?

The CRAB drugs, on average, reduce exacerbations by 30%. When my 'good' neuro recommended that I start one of the CRABs I said why, given their limited efficacy. He said there was evidence that they reduced / slowed atrophy (my nightmare). The following research appears to support this view:

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Read more : Reason for starting treatment? | Views : 920 | Replies : 0 | Forum : General Discussion


Tovaxin Update/Trial

This from BBC news.


MS vaccine testing to start in US

Researchers are working towards having an MS vaccine
A US company is set to begin a trial of a vaccine which it claims halts the progress of multiple sclerosis.

PharmaFrontiers is to test its tailor-made vaccine on 100 patients with MS, after a small-scale study showed promise, New Scientist reports.

MS experts have welcomed the research but urged caution because other vaccines have not ...
Read more : Tovaxin Update/Trial | Views : 1609 | Replies : 3 | Forum : Drug Pipeline


Nose cells

Human trials using nose cells to replace damaged nerves are to begin in the UK this year. This trial is from the US and involves rats.

Ian

http://c.moreover.com/click/here.pl?j482802041&w=464753
Read more : Nose cells | Views : 1313 | Replies : 1 | Forum : Stem Cells


 

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