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no matter what

is there anyone out there that has a certain point of disability that will put them over the edge or is that not the BRAVE thing to do, i know that i will not live the rest of my life like this, it's to much for my wife and i.reading how most are doing so good with their drug of choice is not helping me any so thanks for this site and good luck.
Read more : no matter what | Views : 4650 | Replies : 32 | Forum : General Discussion

Update - Day 4 post-Chemo

Hi everyone,

I am finishing Day 4 post chemo. My numbers are dropping and I'm doing very well. Haven't gotten sick at all since the start. A headache during the first dose....that's about it.

I was released from the hospital on Sunday. I didn't have to go to IPOP on Monday. Went on Tuesday. Off again on Wednesday. Went to IPOP today - and tomorrow I'm off again. On Saturday I will start the growth ...
Read more : Update - Day 4 post-Chemo | Views : 2303 | Replies : 6 | Forum : Revimmune (cyclophosphamide or cytoxan)

How many at JH now?!

Ohmygosh - I can count 7 people, including myself, that are here in Baltimore right now receiving HiCy! I'm sure there are more - but these are just the ones I've met so far.

We come from Alaska, Los Angeles, Texas, North Carolina, and Alabama.

We are coming from everywhere!

I'm glad I pushed to get in when I did - b/c it looks like they are as busy as they say when it comes ...
Read more : How many at JH now?! | Views : 15433 | Replies : 43 | Forum : Revimmune (cyclophosphamide or cytoxan)


My doctor gave me these patches for some back pain I have been having. He made sure to tell me that there are NO side effects on this patch.
Well I always do research on any drug I take, cause you just never know, and there is a LONG list of common side effects. Most of which are MS like. dizzyness blurred vision , double vision. None of which I have experience as part of ...
Read more : Lidoderm?? | Views : 1217 | Replies : 0 | Forum : General Discussion

Theorems on repair?

Has their been any published information regarding the cause of the apparent repair in those that have had the treatment?

even speculation? I know I have my crazy ideas :?
Read more : Theorems on repair? | Views : 3840 | Replies : 21 | Forum : Revimmune (cyclophosphamide or cytoxan)

Patent for Phytoceutical composition for treatment of MS

Interesting patent for those who are treating MS naturally.

A Phytoceutical composition for the prevention and treatment of Multiple Sclerosis (MS) and symptoms is provided. A specific combination of extracts of plants and nutraceuticals is taught, as well as principles for varying the formulations based on categorizing plants into one of three groups, Energy, Bio-Intelligence, and Organization and selecting several plants from each group. Such combinations have synergistic effects, with minimal side effects.
Read more : Patent for Phytoceutical composition for treatment of MS | Views : 1818 | Replies : 0 | Forum : Regimens

Drug Company Documentary

Pharmaceutical Fraud? Prescription for Disaster Documentary ... saster.htm

i imagine someone's already posted this on here somewhere, but if so i didn't catch it.
i found it by googling multiple sclerosis scam pharmaceutical. haven't watched it yet, but plan to. you have to scroll about halfway down to find the video itself.

i'm sure it's nothing we don't all basically know already, but yea. here it is anyway ...
Read more : Drug Company Documentary | Views : 2336 | Replies : 12 | Forum : General Discussion

Hickman line vs. Power Hickman (and time frames)

Two quick questions - what kind of catheter did you have - the Hickman or the Power Hickman?

Second question - how long did you remain in Baltimore post chemo? (I know the consider the chemo days as negative days 1-4, then start over at day 1 for post).



EBV / MS research

Some more EBV / MS research which came out today (was posted on the MSIF website today)
Read more : EBV / MS research | Views : 3450 | Replies : 17 | Forum : General Discussion


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