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I hate shopping now even more..... I fell in the slush as I stepped out of the store..... :cry: I was so embarrassed...three people helped me to my car which was only 20 feet away. My arms were too full... my cane was not enough to help me. I think I will have to accept that I need a walker to go shopping now...or ...
Read more : shopping..... | Views : 1616 | Replies : 3 | Forum : Daily Life

Balo's Concentric Sclerosis

Hello everyone-
I realise that this is an MS website but I was hoping that someone might still be able to give me some help or advice.
Last week I was diagnosed with Balo's Concentric Sclerosis. As it's pretty rare (my Neurologist has never seen it before) I am trying to do as much research as possible. I am also trying to find other people that have also been diagnosed with Balo's- if anyone is ...
Read more : Balo's Concentric Sclerosis | Views : 5913 | Replies : 28 | Forum : General Discussion


I have a new theracycle 100 (the one that does all the work for you). It is a wonderful passive exercise machine. I am no longer physically able to strap my feet in to the foot plates and I was wondering if anyone knows where I could post this for sale.
Read more : Theracycle | Views : 1583 | Replies : 0 | Forum : General Discussion

Getting the Ball Rolling (aka "Rough Draft")

Get your cyber blue pencils at the ready and have fun! If I don't have to do TOO many re-writes, I (we) might get this out by week's end!

God Bless Us One and All...

My full address
Their full address w/their exciting titles, of course

Dear Dr./Mr./Ms. So-and-So:

My name is Jane ____ (not “the Pain” because this is VERY official, dontcha know?) and I was a patient in the Tovaxin clinical study ...
Read more : Getting the Ball Rolling (aka "Rough Draft") | Views : 3726 | Replies : 13 | Forum : Tcelna (Tovaxin)

Something positive

I just wanted to post something positive because I have had a pretty rough year and am usually moaning more often than not.

For the first time in months (maybe more than a year) I had a great surge of energy last night. I did so much when I got in from work - cooked evening meal and an extra casserole for tonight as we will be going out, did a whole bunch of housework ...
Read more : Something positive | Views : 2017 | Replies : 6 | Forum : General Discussion

White Nails and MS


I've been having white nails for around 8 years now. When I say it's white, the entire nail is as white as a ghost. I'm not talking about occasional white clouds that appear in normal persons from time to time. I want to know if it was normal for people with MS or people with low B12 level? I had low B12 in the order of 130 pg/ml when I last tested it.

Thanks, ...
Read more : White Nails and MS | Views : 2084 | Replies : 3 | Forum : General Discussion

Need Advice

My daughter has been in a coma for a month now and her doctor just got back results from a second biopsy. His Official Diagnosis: Inflammatory Disease of Brain-Inflammatory driven by B & T cells. He said no antibodies where found so he was not going to start her back on plasmapheresis which she was on for about 6 days with steroids. She is currently on 1000 mg of steroids per day. The doctor has ...
Read more : Need Advice | Views : 1901 | Replies : 8 | Forum : General Discussion

Chronic Cerebrospinal Venous Insufficiency (CCSVI)-

« Moderator's Note: This is the original thread that began the discussion of CCSVI here at ThisIsMS. Its status was changed to "sticky" to make it easy to find for people to get a historical perspective on the development of the discussion here. There are also several good references cited which may or may not be available in the other threads. NHE »
Dignan recently posted the link to Dr. Paolo Zamboni's abstract on ...


I stopped taking Mirapex about three days ago to see what it would be like not to take it. Well the last two nights I have had night sweats so bad that I had to get up during the night and change. I usually take three 5 mg Mirapex a day to control my RLS. For the life of me I can't figure out why this is happening. Has anyone else had these night sweats ...
Read more : Weird | Views : 1585 | Replies : 1 | Forum : General Discussion


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