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confused doctors

I was diagnosed last year, by a Neurologist; who at first told me I was too old, I was 52 at the time. After the MRI, showing 6 lesions, he called to tell me the news. I have other medical conditions: Reflex Sympathetic Dystropy and Fibromyalgia. I refused traditional injectional medications. I have flares on and off. We changed insurance companies to Kaiser (California). I made an appt with a Neurologist, saw him Wed. Big ...
Read more : confused doctors | Views : 2075 | Replies : 5 | Forum : General Discussion

My Husband is Newly Diagnosed

My husband was recently diagnosed with MS after years of suffering and not knowing what was causing this suffering. As his caregiver, I cannot seem to find much information.

What are our rights legally? How do we manage financially? Where can I go for support groups? I have so many questions and I don't know where to turn to find the answers. I was wondering what your stories were for when you or your loved ...
Read more : My Husband is Newly Diagnosed | Views : 2185 | Replies : 6 | Forum : General Discussion

LDN Website

In case anyone was curious as to why you can't access the LDN website,, this is a response I received on another site I visit for LDN.

Contrary to the opinion of all conspiracy theorists, the unavailability
of the website for the past day has been
caused by the loss of a server device on the part of ArisHost, the
commercial ...
Read more : LDN Website | Views : 1738 | Replies : 0 | Forum : Low Dose Naltrexone

Question about PMs

There are no dumb questions, right?

What is the Outbox? I am hitting Send, then the message ends up in the Outbox.
Read more : Question about PMs | Views : 2722 | Replies : 5 | Forum : Site Support

T-Cell Research

Interesting research on T-cells that they tie into their drug under investigation (phase II), Neurovax.

The Immune Response Corporation and Oregon Health & Science University Collaboration Identifies FOXP3 as the Gene Marker for Impaired Immune Regulation in Multiple Sclerosis
Results May Lead To a New Therapeutic Approach to Treating MS

June 14, 2005 -- The Immune Response Corporation, a biopharmaceutical company dedicated to becoming a leading immune-based therapy company in HIV and multiple sclerosis (MS), ...
Read more : T-Cell Research | Views : 966 | Replies : 0 | Forum : General Discussion

Allon Therapeutics

AL-108 is being tested on Alzheimer's first, but they plan to try it for MS too, so I figure these Phase I safety studies won't have to be done all over again for MS since they are done on healthy adults.

Allon Therapeutics product AL-108 successful in Phase Ia clinical trial

June 15 -- CNW -- Allon Therapeutics, The Neuro Protection Company(TM), announced today that a Phase Ia human clinical trial of the company's first ...
Read more : Allon Therapeutics | Views : 1113 | Replies : 0 | Forum : Drug Pipeline


Dear all,

Attached is a summary of a research project involving cyclophosphamide. The results appear impressive - reduction in EDSS and a claim that the combination treatment has halted progression (only time will tell).

Does anyone know anything more about cyclophosphamide? Know anyone who has received it as treatment for MS?

There seems to be an almost limitless amount of drugs that are currently being trialled. But many ...
Read more : Cyclophosphamide | Views : 1066 | Replies : 2 | Forum : General Discussion

The Myelin Repair Foundation makes progress

Interesting that interferon-gamma plays a role in two of their findings...

Scientists Identify Molecular ''Switches'' Affecting Myelin Repair in Multiple Sclerosis

Business Wire -- June 14, 2005 -- The Myelin Repair Foundation today announced that its collaboration of five of the world's leading neuroscientists has identified three new "switches," or signals, operating in the brain and spinal column that appear to turn on and off the nerve cell's ability to repair myelin. Myelin is the ...
Read more : The Myelin Repair Foundation makes progress | Views : 1014 | Replies : 1 | Forum : General Discussion

Anyone familiar w/Klenner's therapy regimen?

It looks very involved. I'm wondering if anyone's tried it, and/or if there has been any research here.

-- Paul
Read more : Anyone familiar w/Klenner's therapy regimen? | Views : 1033 | Replies : 2 | Forum : General Discussion

Vanderbilt Article in Press

Pilot study to examine the effect of antibiotic therapy on
MRI outcomes in RRMS

S. Sriram
b, * , S.Y. Yao
, C. Stratton
, H. Moses
, P.A. Narayana
, J.S. Wolinsky
Department of Neurology, Vanderbilt University Medical Center, Nashville, TN 37212, USA
Department of Pathology, Vanderbilt University Medical Center, Nashville, TN 37212, USA
Neurology University of Texas Health Science Center at Houston, Houston, TX, USA ...
Read more : Vanderbilt Article in Press | Views : 5897 | Replies : 23 | Forum : Antibiotics


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