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Hi everyone. I'd like to get some feedback about Provigil. Has anyone taken it for fatigue? My girlfriend is having what we think is a relapse. She was very fatigued for a few days, then felt better, but is very fatigued again today. I know she's really sick of it. The doctor gave her a sample of Provigil but she has yet to try it. She has relapsing/remitting and is on Copaxone, if that matters. ...
Read more : Provigil | Views : 2147 | Replies : 7 | Forum : General Discussion

Two weeks post Rituxan

Thanks for getting this board up and running. For me, at least, it's a very welcome addition...

Had my second Rituxan infusion on September 19, and went for a follow-up blood work today.

For those of use who don't know me, I was diagnosed PPMS in May of 2003. At that time I symptoms were primarily slight weakness in my right leg. Now, five and half years later, my right arm and leg are profoundly ...
Read more : Two weeks post Rituxan | Views : 6895 | Replies : 10 | Forum : Rituxan (Rituximab)

Low sex drive - dryness


Just out of curiosity, anyone else out there who has no other symptoms except for vaginal dryness and low sex drive? I've been reading a lot on the subject but still not sure if it's MS or something else. Can you have no symptoms (and no change for 3 years) with low sex drive and dryness in down there? I know you can based on the articles I've been reading. What about the people ...
Read more : Low sex drive - dryness | Views : 1909 | Replies : 1 | Forum : General Discussion

Hicy/Tovaxin combination

I have been thinking about hicy and Tovaxin in combination. I know this is hypothetical but what are the thoughts of others about this approach.

Let's say you give a bag of blood and have your t-cells put aside for vaccine then go through with the hicy protocol. When it's time to get vaccinations for everything why not get a dose of your Tovaxin vaccine also.

I started to think about epitope shift but it ...
Read more : Hicy/Tovaxin combination | Views : 2550 | Replies : 7 | Forum : Revimmune (cyclophosphamide or cytoxan)

Everyone’s different

Why does everyone respond different to all the drugs, from one extreme to the other? There is no common denominator we all try everything and occasionally we find something that helps weather its goats milk or vitamins or whatever, how is it possible that this happens?
Read more : Everyone’s different | Views : 1734 | Replies : 8 | Forum : General Discussion

thoughts about long-tern efficacy of Rebif?

Hi all,

I have been hearing from people I know with MS who choose not to be on a drug that Rebif and Avonex lose their efficacy with time. They are most effective the first couple of years.

I am on the net searching for information. Any links or information you have found on this topic?

Thanks in advance for your responses!
Read more : thoughts about long-tern efficacy of Rebif? | Views : 3172 | Replies : 4 | Forum : Rebif

RE: evidence about long term efficacy of CRABS

Hi all,

Just curious. I am on Rebif and have been stable with no relapses and no new symptoms for 5 years! YAY!

I have heard from some fellow people with MS who choose to go drug free that Rebif and Avonex are effective only in the first couple of years and then lose their effectiveness.

I am on the web exploring this idea. Any thoughts or links to articles that might set me on ...
Read more : RE: evidence about long term efficacy of CRABS | Views : 1954 | Replies : 2 | Forum : Drug Pipeline

Low sex drive


This is my first visit to this site and I think it's great how so many people share their information. I was diagnosed with MS last year from the numbess in my right thumb which is almost gone now and I haven't had any change in my body from 3 years ago (6 months after giving birth) which I thank god for every day. My last visit to the specialist he told me that ...
Read more : Low sex drive | Views : 7493 | Replies : 12 | Forum : General Discussion

Multiple Sclerosis Newsletter - October Issue

Multiple Sclerosis Newsletter - October Issue

Long Term Data on Avonex, Copaxone
New results from studies that looked at long-term use of Avonex (interferon beta-1a) and Copaxone (glatiramer acetate) showed that on average both stabilized or reduced disability.

Both studies followed-up on people who had been involved in the Phase III clinical trials that led to the initial FDA approval for the drugs.

The Copaxone research looked at 100 people who had received ongoing treatment ...
Read more : Multiple Sclerosis Newsletter - October Issue | Views : 1588 | Replies : 0 | Forum : General Discussion

Why I quit rebif

I jumped on the therapy band wagon and lasted 6 months.

I too suffered from the "flu like" symptoms.....
Head ache, nausea, cold sweats, fever, weakness, depression, stomach problems, constipation, female problems and large skin reactions (lumps, bumps and bruises).

I don't think I'm the only one who can say this interfered with my quality of life.

Okay, so it's supposed to do "good" in the long run. What about the here and now? So ...
Read more : Why I quit rebif | Views : 7993 | Replies : 17 | Forum : Rebif


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