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First day of campath

Just got home from my first campath infusion. I got to my doctors office at 9 and started the steroid drip. Aside from a really bad taste in my mouth it was fine. The campath started and it was going great until about halfway through the bag. A powerful headache came out of nowhere and I got a bad case of the chills and my legs and lower back ached. My doctor gave some meds ...
Read more : First day of campath | Views : 2374 | Replies : 3 | Forum : Campath (Lemtrada, Alemtuzumab)

Dr. Miller

Hi, it's Marlene. My boyfriend, Scott, was taking LDN last year. Did pretty well. He stopped because of insurance reasons. He wants to start again but we can't get in touch with Dr. Edwin Miller. Can anyone tell us if he's still in practice???

Read more : Dr. Miller | Views : 2554 | Replies : 0 | Forum : Low Dose Naltrexone

traditional chinese medicine for MS

Hi guys, I'm from the Gold Coast, Australia, and have found your views on alternative treatment for MS most interesting, its great to see so many with an other than medical view to healing this problem.
I was told 5 years ago, at age 58, and after an MRI scan, that I had the biginning of MS. Never been sick in my life and now this ??
I found out that I had mercury poisoning, ...
Read more : traditional chinese medicine for MS | Views : 1474 | Replies : 1 | Forum : General Discussion

PML brain infection with the drug Cellcept

This news has been circulating for a few months but thought I would post for all to see. Some neurologists are using Cellcept as off label treatment for MS. For those being offered Cellcept as an MS treatment you should be aware that there were 10 confirmed and 7 possible cases of PML with the use of this drug. This is the deadly brain infection that the 3 Tysabri users caught and died from. The ...
Read more : PML brain infection with the drug Cellcept | Views : 2154 | Replies : 2 | Forum : General Discussion

avoiding IPIRs with copaxone

I have mostly been a lurker on this board, but I do post now and then. I have been on copaxone for 13 months now, and just got the results of my 1 year brain MRI. The results are favorable (some improvement, no new lesions or Gd enhancing lesions) and my neurological exam was improved somewhat from before I started copaxone. Oh, and no relapses since starting :) ...
Read more : avoiding IPIRs with copaxone | Views : 9775 | Replies : 21 | Forum : Copaxone

Improved Diagnosis of MS with MEG

I am a participant in a research study sponsored by Orasi Medical, Inc. Title of the study is: "Improved Diagnosis of Multiple Sclerosis using Magnetoencephalography (MEG) and the Synchronous Neural Interaction" The machine used looks kind of like one of the old conical shaped hair dryers. You lie down and the machine is moved to the top of your head. It takes about five minutes. A whole lot easier than a brain MRI! The machine ...
Read more : Improved Diagnosis of MS with MEG | Views : 1612 | Replies : 0 | Forum : General Discussion


Last September, after my wife Marg passed away, I had asked the hospital to conduct an autopsy. She had MS for 36 years and I wanted to learn how extensive the disease had progressed and what caused her death. It took 8 months before all the information was available and I discussed these findings with Marg's neurologist and also got an opinion from another person involved in MS research.

As for the cause of death....sepsis ...
Read more : Autopsy | Views : 4657 | Replies : 33 | Forum : General Discussion

Minocycline trial risults

There is not much info about the study.
Treatment period was 3 years and positive results were seen for relapse rate, atrophy and T2 lesion volume as visible on 3T MRI.


Pubmed Link
Read more : Minocycline trial risults | Views : 2340 | Replies : 4 | Forum : Drug Pipeline

Anyone have to test more than once for MRTCs

Did anyone have to be tested more than once for MRTCs for the extension study?

Other than me, of course...
Read more : Anyone have to test more than once for MRTCs | Views : 2352 | Replies : 8 | Forum : Tcelna (Tovaxin)

30 days vs 90 days between blood draws

Can anyone of you answer this question. The waiting period between blood draws for the TERMS study was 30 days and the waiting period is 90 days for the OLTERMS study. Why?

It would make sense to keep the waiting period at 30 days so we aren't off therapy so long.

Second question, how many have not tested positive on redraw twice, other than me?
Read more : 30 days vs 90 days between blood draws | Views : 1817 | Replies : 0 | Forum : Tcelna (Tovaxin)


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