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Myelin Repair Foundation

Dear MRF Supporters,

We wanted to let you know that we currently have an opening for a Development Director as well as various volunteer positions at the Myelin Repair Foundation. As a staff member or volunteer, you will be part of a pioneering team of highly-motivated professionals working hard to develop treatments for individuals with multiple sclerosis in the shortest timeframe possible. Please visit: http://www.myelinrepair.org/volunteer.html for more details and ...
Read more : Myelin Repair Foundation | Views : 1024 | Replies : 0 | Forum : General Discussion


Research fund for LDN & MS

Hi everybody, you’ve all heard from me as I’ve have been recovering from secondary prog. MS for 1.5 years on low dose naltrexone. I attended the 1st annual LDN conference in NYC, and spoke on the LDN advocates panel. In addition to the exciting news that international researchers are going to start trials for MS, I met Art Mellor of Accelerated Cure Project, and he agreed to help organize a fund raising effort for trials ...
Read more : Research fund for LDN & MS | Views : 2145 | Replies : 1 | Forum : Low Dose Naltrexone


Drop FOot

A lot of us have a trippy toe or a drop foot. I tried and AFO but I can still walk , so a rigid brace that did not allow ankle flexion at all was uncomfortable and I felt would make me weaker.

I noticed the dorsi strap here has anyone tried it? http://x-strap.com/index.htm

Has anyone found another solution to the droppy foot problem they like?
Marie
Read more : Drop FOot | Views : 1356 | Replies : 1 | Forum : General Discussion


Hello to you all

Hi there

I was diagnosed in Feb/March this year, after 5 years with a deteriorating leg, and of course foot drop. 8O

It's not so bad - I can walk a bit but I limit myself, and the foot drop is something I watch carefully. My limp is only noticable when I am tired or I have had a few!!

I have been on the Swank diet ...
Read more : Hello to you all | Views : 1495 | Replies : 3 | Forum : Introductions


LINE L1 elements in neuronal precursors

Here is the abstract for an article reporting on LINE L1 pseudogenes possibly moving around in neuronal precursors. I thought it was interesting. Don't know if I can set a link to the full article.


"Nature. 2005 Jun 16;435(7044):903-10.

Comment in:
Nature. 2005 Jun 16;435(7044):890-1.

Somatic mosaicism in neuronal precursor cells mediated by L1 retrotransposition.

Muotri AR, Chu VT, Marchetto MC, Deng W, Moran JV, Gage FH.

Laboratory of Genetics, The Salk Institute for Biological ...
Read more : LINE L1 elements in neuronal precursors | Views : 1065 | Replies : 0 | Forum : General Discussion


Bugs in AD even CPN

This article on the Boston Cure points to bacteria in the brains of alzheimers patients...including CPn. http://www.bostoncure.org:8080/article. ... 29/1140239

It is interesting to note the article discusses some ways bugs adapt and are insidious as well as the trend in science to ignore their presence.It is pertinent to our discussion here in that is also the trend in MS.

quote: Balin: There is a presumption that the presence of ...
Read more : Bugs in AD even CPN | Views : 1332 | Replies : 0 | Forum : Antibiotics


Anecdotal reports on Neurovax

This could just be the Immune Response Corp's marketing department getting revved up, buy I'll try not to think too cynically about this and just be happy that it seems to really help some people based on early-stage clinical trial reports.



MS Vaccine Shows Promise

Aug 29, 2005 - Some exciting news on the horizon for multiple sclerosis patients. Scientists are testing a vaccine that seems to halt the progression of the disease. I t's ...
Read more : Anecdotal reports on Neurovax | Views : 1406 | Replies : 0 | Forum : Drug Pipeline


Herxheimer

There has been some people posting elsewhere on this board that perhaps what people experience is not a herxheimer reaction (herx) but in fact a reaction to flagyl. Is this fair?

Herxheimer phenomenon have been described in many illnesses when treated with antibiotics. First discovered in 1895 by Jarsich herxheimer and his brother Karl dermatologists treating syphilis (another germ-a spirochete-of the brain) it was noted that upon treatment people would get markedly worse before improving. ...
Read more : Herxheimer | Views : 3677 | Replies : 3 | Forum : Antibiotics


I need a protocol

Hi all.

I will be seeing my gp on Thursday morning. He has agreed to give me antibiotics but the problem is he doesnt' really know anything about ms and antibiotics.

I am soo confused on what to start with and what to take. Can someone give some advice?

The reason I looked into this was because 3 months ago I took Zithromax and within 4 hours my whole body relaxed. For the next 3 ...
Read more : I need a protocol | Views : 1711 | Replies : 2 | Forum : Antibiotics


Reasons for stiffness?

Hi,

I have been on LDN for the past two weeks. I started on 4.5mg/night and have had no real worrying symptoms apart from stiffness and a little increase in spacicity. Lucky, i know.

However, I do want to understand how LDN chemically/biologically causes the stiffness. Anyone know?

If a person without MS were to take LDN, would they also suffer from stiffness?

Thanks in advance.
Read more : Reasons for stiffness? | Views : 2306 | Replies : 2 | Forum : Low Dose Naltrexone


 

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