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In Memory and Hope

Today marks the one year anniversary of my uncle’s death from MS. If you ever hear someone say you can’t die from MS, unfortunately I know that you can and it was a terrible way to die. He was a great guy and I miss him. I was diagnosed with MS the year he died. But, here is where the hope part comes in; I believe I have a better chance against this illness than ...
Read more : In Memory and Hope | Views : 1994 | Replies : 7 | Forum : General Discussion


Ok, this is a strange connection....but the story really caught my eye. Really feel for these folks and their families...

Eleven employees at an Austin pork plant have developed chronic inflammatory demyelinating polyneuropathy (CIDP) There's currently an official inquiry, since these folks have become very ill...numbness, tingling, loss of mobility, stiffness and pain.

I actually found a site where someone has spent alot of time compiling evidence stating ...
Read more : Pork? | Views : 4682 | Replies : 20 | Forum : General Discussion

My Amazing Dr. Appointment

Just some background. Diagnosed Nov 06, sensory issues, on copaxone Nov 06 to May 07. Second MRI in May showed that some of my leisons had cleared, but just as many had appeared. Although I had no disability I had over 25 enhancing/active leisons, which was of concern to the Specialist, in an - its only a matter of time before something happens way. The Copaxone did something, but the disease was clearly pushing forward. ...
Read more : My Amazing Dr. Appointment | Views : 2962 | Replies : 3 | Forum : Tysabri (Antegren or Natalizumab)

Last first phase and first extension visit

Well I got my last first phase and first extension visit done today. They give you a much more thorough going over (almost a full physical) and all the usual stuff for EDSS. I'm now a 4. That really blows for me psychologically but what are you going to do? My blood bag for the extension is set for a week from today, but my research coordinator said to "just pencil it in" since they ...
Read more : Last first phase and first extension visit | Views : 10236 | Replies : 51 | Forum : Tcelna (Tovaxin)

Interesting video

This isn't for everyone. It's a half hour video about a guy with Crohn's (one of the inflammatory bowel diseases, which are also considered "autoimmune" or one of the inflammatory diseases).

I think this will be of interest to those of "us" who feel these diseases share common causes/mechanisms/cure and have an interest in helminth immunomodulation. I'm in the process of watching it but I'm told there is a segment on hookworm and Crohn's.

I ...
Read more : Interesting video | Views : 1930 | Replies : 2 | Forum : General Discussion

ladies' problem and gabapentine/baclofen

I started gabapentine a week ago, and baclofen 2 weeks ago. Over the weekend and last night (3 nights out of 4) I have had EXTREMELY heavy bleeding. I'm not going to be course but we're talking about (apologises) flooding, not just a heavy period.

I wondered if it could be the tablets, prob gabapentine as that started more recently. I also have PCOS which means I have had this problem before, but only ...
Read more : ladies' problem and gabapentine/baclofen | Views : 4821 | Replies : 21 | Forum : General Discussion

Mirror Neurons: Therapeutic Reflection

I recently saw a TV show which talked about "Mirror Neurons". It seemed like they would be a possible therapeutic target for motor skills. I have since tried a couple of times to find anything relating these to MS, but always came out empty handed. Finally, I found the following article, related to stroke.

I have included the whole article, as it can only be found "Cached" on google, not at the actual web site. ...
Read more : Mirror Neurons: Therapeutic Reflection | Views : 1865 | Replies : 2 | Forum : General Discussion

December the 3rd

December the 3rd - The International Day for Solidarity with the Disabled People
Read more : December the 3rd | Views : 1851 | Replies : 0 | Forum : Daily Life

Injection Technique

In using the dry powdered form of Avonex, I've developed the following injection technique which is a modification of the instructions in the doctor's prescribing information which is packaged with the medication. I've discovered that if you remove all of the air from the syringe prior to the IM injection, then there will be about 65 µL which will remain in the syringe. With Avonex, this represents a loss of about 2 µg of the ...
Read more : Injection Technique | Views : 4705 | Replies : 4 | Forum : Avonex


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