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definite dx of rr ms at 57 yrs old. having symptoms for years, but always dx as something else. finally saw a neuro at teaching hospital in philly and he confirmed what my gp and priest suspected. wanted dx but hate this one. yes, have hot/cold flashes where i feel drenched. femopause long over, so not from that. also get crippling lower back aches sometimes from slightest activity. seems to be getting worse w/cooler weather. ...
Read more : golden? | Views : 3851 | Replies : 2 | Forum : MS in the Golden Years

Don't read this on a full stomach

These two research papers should not be read on a full stomach. Remember the old theory - that MS was an inflammatory disease (auto-immune), lesions are the result of the attack on myelin (the white matter) etc etc etc. It took the researchers 50 years to come up with the theory and to develop drugs which have little real impact on this disease.

Now - the tune has change. MS involves the white matter and ...
Read more : Don't read this on a full stomach | Views : 2772 | Replies : 14 | Forum : General Discussion

MS SUCKS and it is time our Government KNOWS IT!!

You know I left all forums for about a year because I was so sick of reading new trials, new meds,new articles,new causes of MS, ect. ect. ect

I was in a trial for almost a year....guess what the meds, mixed with my symptom meds,dried my mouth out to the point where I need dentures because of the bacteria that spread rampant in my mouth due to dryness

This disease SUCKS. Why is everyone spending ...
Read more : MS SUCKS and it is time our Government KNOWS IT!! | Views : 2520 | Replies : 14 | Forum : General Discussion

Hello from Fabulous Las Vegas!

I just want to say hello and introduce myself...

I'm 32, live in Las Vegas, am a stay-at-home-mom to 3 busy kids, ages 6, 4, and 2. I was officially diagnosed last summer, but of course had it for years before.

Because I don't have good insurance, I can't get the meds paid for. I was lucky enough to get into a study on Copaxone for 9 months and appreciated the meds, although the MRI's ...
Read more : Hello from Fabulous Las Vegas! | Views : 1444 | Replies : 1 | Forum : Introductions


Hi Everyone, I'm Mary. 47 yrs old. Married 4 grown kids. MS dx'd 4 1/2 years ago. Specialist thinks more like 10 yrs. I think more like 20 years now that I know what the symptoms are. Just wanted to say hi. Mary :)
Read more : Hi | Views : 1341 | Replies : 1 | Forum : Introductions

My regimen

Hello all,

I was officially diagnosed in Sept. 05 but had my first symptom in April 2000 in the form of mild peripheral double vision. No further relapses until July 2005 when my leg went numb and I had some gait issues. After visiting several neuros and reading many books and articles I settled on the following treatment plan (for now anyway).

1. Swank diet - Although not scientificically proven to help MS, I figure ...
Read more : My regimen | Views : 2369 | Replies : 1 | Forum : Regimens

link between ectasy use and ms

is there or has there been any studies into the link between ectasy use and ms........can anyone help or point me in the right direction...cheers
Read more : link between ectasy use and ms | Views : 3055 | Replies : 4 | Forum : General Discussion

easy people

im a 33 year old guy livin in amsterdam and recently been diagnosed with ms.......just sayin hello
Read more : easy people | Views : 1439 | Replies : 1 | Forum : Introductions

Treatment end point?

This is more i guess out of interest, as it is getting a bit ahead of myself. I have failed to actually read anything explicit on it from the various protocols.

If CPn infection has a high chance of false negatives, how are you planning on deciding what the end point is for your treatment is? or do you see this as a treatment for the rest of your life?
Read more : Treatment end point? | Views : 2355 | Replies : 6 | Forum : Antibiotics

last relapse?

I was wondering, how long into this treatment are people experiencing that they are no longer having relapses of MS?

I understand it would be pretty hard with the reactions some are getting to flagyl.

I have been pretty lucky as my major cause/trigger of relapses are a cold/flu, of which I havnt had since march.

I am wondering how long (how many flagyl pulses etc) you have been on abx treatment before a trigger ...
Read more : last relapse? | Views : 1617 | Replies : 1 | Forum : Antibiotics


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