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Greetings from Tokyo

My 15-year-old daughter was recently diagnosed with MS. This was understandably heartbreaking for our family. She has started on Betaferon at the suggestion of our neurologist.

Let me point out that a) we are American and don't speak Japanese b) Betaferon is the only disease modifying drug on the market in Japan c) Japan doesn't have much MS. For these reasons, I am especially grateful for the information I am finding on your site. I ...
Read more : Greetings from Tokyo | Views : 1601 | Replies : 2 | Forum : Introductions

Don't miss this ...

BBC Radio 4 Friday 22 April 2005, 9pm BST

My MS and Me

Written and performed by Jim Sweeney

Actor, writer, and regular improviser with The Comedy Store Players, Jim Sweeney delivers a candid, lively account of his experiences of living with multiple sclerosis.

Producer Liz Webb.

And if you're not in UK you can tune in thru the web usually available from broadcast for two weeks after.

Enjoy - trailers sound as ...
Read more : Don't miss this ... | Views : 1318 | Replies : 1 | Forum : General Discussion

Long-term antibiotics do not cut heart attack risk

Thought this might be of tangential interest...

"Long-term antibiotic treatment designed to fight a common but stubborn bacterial infection does not reduce the risk of heart attack, according to two studies released on Wednesday.

Previous studies found that more than three-quarters of heart attack patients were infected with Chlamydia pneumonia, a bug present in the fatty plaques that clog arteries"
Read more : Long-term antibiotics do not cut heart attack risk | Views : 1716 | Replies : 4 | Forum : Antibiotics

SSA wants comments on neuro disability evaluation

The social security administration emailed the Accelerated Cure Project (among others) asking for comments on a proposed rule change regarding the evaluation of people with neurological disabilities (such as MS) for receiving disability support. I've got the links to the relevant pages set up here: ... ode=nested

Let your voice be heard!
Read more : SSA wants comments on neuro disability evaluation | Views : 1239 | Replies : 0 | Forum : General Discussion

Re-educating the immune system - research in diabetes


Has anyone looked into the research by Dr. Denise Faustman and her colleagues at Massachusetts General Hospital (MGH) regarding their new approach to diabetes?

I first found out about it here:

In short they are examining a method of re-training an immune system to stop attacking it's own cells.

Apparently, if proven correct, their findings may have huge implications for other autoimmune diseases such as MS. The research looks promising.

Kind regards.

Read more : Re-educating the immune system - research in diabetes | Views : 1218 | Replies : 0 | Forum : General Discussion

Low-sat fat diet, omega-3s, ALA, statin, Ginkgo, Copaxone

My first exacerbation was in 1996, so I have had MS now for 8 1/2 years. I have had a total of four exacerbations, each milder than the last. I have no disabilty, and no symptoms of MS, and my last exacerbation was three years ago.

However, I have no idea whether to credit my regimen for my good health thus far. I strongly suspect someone else with more aggressive disease might have followed my ...
Read more : Low-sat fat diet, omega-3s, ALA, statin, Ginkgo, Copaxone | Views : 4453 | Replies : 13 | Forum : Regimens

Press would like to talk to Tysabri users

Jeff Krasner from the Boston Globe is a reporter who has been covering the Tysabri story. He would like to get the patient side of the story and has asked if I know anyone who was on the drug who would be willing to talk to him. I thought I'd check with the folks at ThisIsMS.

He wrote a letter to patients that you can find here:

He ...
Read more : Press would like to talk to Tysabri users | Views : 1481 | Replies : 0 | Forum : Tysabri (Antegren or Natalizumab)

cannabis spray ... 9/wpot0419 Cannabis spray gets go-ahead
From the wow,man what a buzz dept.

anyone tried it?
Read more : cannabis spray | Views : 1497 | Replies : 2 | Forum : General Discussion

Aimspro - article from MS Trust

Dear all,

The following article from the UK MS Trust (a charity) website provides further details about the optic neurosis trial with Aimspro.

Aimspro trial results presented

Doctors in Oxford who conducted a small trial of Aimspro as a treatment for optic neuritis presented their results at a meeting of the Association of British Neurologists (ABN) in Belfast on 1 April.

This is the first randomised double blind placebo controlled trial of the drug. The ...
Read more : Aimspro - article from MS Trust | Views : 3403 | Replies : 1 | Forum : Aimspro

Bruising While Injecting with Avonex

I have been taking Avonex for over a year now. My boyfriend gives me my injections every Saturday night (usually in my upper thighs). He did the same this past weekend and the next morning I woke up with an enormous bruise at the injection site - this is the first time this ever happened. The injection did not hurt at all. Does anyone know what would cause this? Did I hit a vein or ...
Read more : Bruising While Injecting with Avonex | Views : 2808 | Replies : 4 | Forum : Avonex


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