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Getting appointments for Infusions

I know this has been going on with other posts in this forum. Just thought I would start a new thread so others may see. If you haven't been keeping up on the "Extremely Restless" thread, you are unaware that there are problems to actually getting your Tysabri appointments set up.
Here is Gary's latest update:
Nurse of Neuro called this morning. They are setting up MRI's of the brain for everyone trying for the ...
Read more : Getting appointments for Infusions | Views : 3322 | Replies : 9 | Forum : Tysabri (Antegren or Natalizumab)

NABs study

First Patient Enrolled in Study to Evaluate Impact of Regular Neutralizing Antibody (NAb) Testing on Multiple Sclerosis Treatment Patterns

Largest Study of Its Kind Will Examine Changes in Treatment Management of Tested and Non-Tested Patients Receiving a High-Dose Interferon.

Teva Neuroscience, Inc., announced today the initiation of the first-ever study designed to examine how the implementation of regularly scheduled interferon beta (IFN-(beta) ) neutralizing antibody (NAb) tests in multiple sclerosis (MS) patients receiving high-dose IFN-(beta) ...
Read more : NABs study | Views : 1124 | Replies : 0 | Forum : Drug Pipeline

BCP article

Article from the Boston Cure Project website on CPn

Hollie writes "Like many other areas of study in MS, research into whether Chlamydia pneumoniae (Cpn) is associated with the disease has generated many conflicting results. Some studies conclude that people with MS are more likely to be infected with Cpn while others report no differences between people with MS and controls. A team of scientists in Greece have taken steps to understand and resolve these ...
Read more : BCP article | Views : 1429 | Replies : 0 | Forum : Antibiotics


Dear all,

The ECTRIMS conference takes place at the end of September. The Boston Cure Project attends the conference and produces a summary which I will copy across to this site. The number of subjects covered in the conference is mind-boggling. Clicking on 'scientific programme' provides details of the presentations and posters. In terms of treatments, data will be presented on a range of drugs including new formula Rebif, FTY720 and Mitoxantrone.

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Just ...
Read more : ECTRIMS 2006 | Views : 1859 | Replies : 3 | Forum : General Discussion

Hi from a sad and frustrated MS mom

You all seem like such a helpful, friendly, well-informed group! My reluctantly diagnosed daughter and I have so many questions about alternative treatments! I'e been lurking here for a while now and I've finally worked up the courage to get my questions out there.

My now 24-year-old daughter was diagnosed (relapsing remitting) about a year ago now after a horrific bout of double vision that was initially misdiagnosed as stroke and then as a mass ...
Read more : Hi from a sad and frustrated MS mom | Views : 2251 | Replies : 9 | Forum : Introductions

vacay within adventure

ok cure i am now officially in sydney! arrived last night around 11pm and roamed the town with my friend til about 1:30 am then came home and gabbed til 3am, so tired today! but generally feeling fine. my C7/C8 hurt SO BAD on the plane but it wasn't intolerable with it just being a 3 hr flight. LA to auckland was 12 hours of hell! anyway beautiful day today, we are going to royal ...
Read more : vacay within adventure | Views : 2054 | Replies : 6 | Forum : Daily Life

Pregnancy and arthritis

A reader of the site Chris wanted me to post this article from the Seattle Times. It's very interesting and maybe will have some effect on the research of pregnancy and MS too.

Hutch experts discover why pregnancy curbs arthritis
By Warren King

Seattle Times medical reporter

Denise Swanson, a special-education teacher in Seattle, says all of the symptoms of her rheumatoid arthritis disappeared when she was pregnant.

Rheumatoid arthritis like Denise Swanson's can be ...
Read more : Pregnancy and arthritis | Views : 1719 | Replies : 13 | Forum : General Discussion

Ms specialist found in our state! :)

I used the MS society to see if we even had a specialtist in Arkansas, they have a 800 number to find out locations: (800) 344 4867 and they have you on hold forever! but I got through so here is what I found out:

The specialist in Arkansas is Dr. Archer at UAMS and VA in Little Rock
We are suppose to get a referral to UAMS hopefully Monday, but I don't know who ...
Read more : Ms specialist found in our state! :) | Views : 1403 | Replies : 1 | Forum : General Discussion

Edited.... what should I expect?

THis is what has been done, does anyone know if that's enough to be expected in this amount of time?( 2 1/2 months since we sought help) Or maybe he should have had more tests by now?

One brain MRI -clear
nerve conduction test- good
chest x-ray
ekg- good except for sinus tachycardia
blood work done, hematology, chemistry, checked for hepatitis, and checked tsh level.

Also I wanted to add, I think I understand why ...
Read more : Edited.... what should I expect? | Views : 1421 | Replies : 3 | Forum : General Discussion


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