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Where's Jimmylegs?

Hope all's ok with you in Oz Jimmy. You're usually so prolific.
Perhaps you've just snuck over to Cambridge to visit Ian and get your own back whilst he's in a vulnerable position!? (joke)
Read more : Where's Jimmylegs? | Views : 1401 | Replies : 3 | Forum : General Discussion

Rebif on Hold?


Appreciate the forum. Very informative. I'm legal guardian for my mentally challenged brother who is 4 years into his MS diagnosis.

Wondering if anyone has gone off Rebif cold turkey. Neuro has Tysabri infusion scheduled but wants my brother off Rebif for 30 days prior. Anything we need to watch for?

Again, thanks for so much information, much of it gleaned the hard way.

Read more : Rebif on Hold? | Views : 2098 | Replies : 7 | Forum : General Discussion

Fatigue – When am I going to learn!

Just me grumbling again.

I moved some stuff around yesterday. Nothing big or anything, and I went real slow. Today I’m really ill with fatigue. It’s days like this that scare me. I tell myself it’s OK to do this now and then. I want to stay as active as I can to retain some stamina but the price is getting high. I’ll probably be down for a couple of days now. Maybe I’ll catch ...
Read more : Fatigue – When am I going to learn! | Views : 2732 | Replies : 5 | Forum : Daily Life

Has the Phase III trail of fingolimod (FTY720) started ?


Does any one know if the phase III trail of fingolimod (FTY720) started ?

Last I read about the trail was that, it is to start in the last quater of 2006

Read more : Has the Phase III trail of fingolimod (FTY720) started ? | Views : 2168 | Replies : 6 | Forum : Drug Pipeline

Tysabri Patient Progress Reports

Here is a link to the website where some Tysabri patient progress reports have been posted:

and these reports will be made more prominent on the home page of the website over the next few days, more reports will be added, and these reports will be updated.

We ask that other Tysabri patients email their progress reports to the website, at, and that those who have already ...
Read more : Tysabri Patient Progress Reports | Views : 1986 | Replies : 0 | Forum : Tysabri (Antegren or Natalizumab)


Read more : Relapse/Remission/Why? | Views : 4184 | Replies : 27 | Forum : General Discussion

First shots for Loobie this morning

I had my first shots this morning and to tell you the truth it was a little uneventful. The nurse made me turn around and close my eyes as he was instructed not to let me see the syringe (I'm sure that's normal protocol in a double-blind) and gave me one shot in each tricep area. The injections are sub-q, but it took about 15 seconds to get each syringe emptied into me, so I ...
Read more : First shots for Loobie this morning | Views : 3668 | Replies : 16 | Forum : Drug Pipeline

Possible MS or Stress and Anxiety?

Hi there,

My name is Chris, i have been lurking on this forum for a while now but this is my first post. I am from London and 28 years old.

Approx 6 months ago i started experiencing sympoms that could possibly be due to MS. Initially i went to see my GP who suggested that i see a Neurologist for further investigation. He also did general bloodwork, all of which came back normal. I ...
Read more : Possible MS or Stress and Anxiety? | Views : 2829 | Replies : 10 | Forum : General Discussion

SPMS, what would you do?

I have been off of Avonex since early July. I was one of the first patients to take it in North America but after a couple of episodes and nine years later, it is clear that Avonex is not doing much for me now.

My MS progressed very slowly, affecting my right leg. It is my only problem now but it is a big problem. I walk funny and I put huge strain on my ...
Read more : SPMS, what would you do? | Views : 5307 | Replies : 38 | Forum : General Discussion

Drug Combo Shown to Reverse MS

Just came across this article. Am I the only one who missed it? I find the whole thing a bit scary!
Drug Combo Shown to Reverse Multiple Sclerosis
Monday, September 18, 2006

LONDON — Four years ago, 28-year-old multiple sclerosis patient Karen Ayres was wheelchair-bound and paralyzed.
"I was trapped in a body that wouldn't do anything," she says. Now, following an experimental drug treatment, she has regained mobility and is studying for a ...
Read more : Drug Combo Shown to Reverse MS | Views : 1964 | Replies : 3 | Forum : General Discussion


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