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Started betaseron

I'm taking betaseron now.
Using the autoinjector.
Started with a full does (docs orders) :(
But actually have had very little in the way of side effects, just a little stiffness all over.
I was expecting to get slammed by flu symptoms, didnt happen, I've had 7 doses now.
Read more : Started betaseron | Views : 3150 | Replies : 0 | Forum : Betaseron

New VP of Research for NMSS

Well, since I mentioned it in another thread, I might as well post it, I suppose.

The NMSS has found its new VP of Research to replace Dr. Stephen Reingold. The new VP will be Dr. John Richert, presently of Georgetown University. It appears he is a neurologist, researcher, volunteer etc etc. He starts in April.

Any comments? (Pro or con) I think, from what little I have found out about him, that he's a ...
Read more : New VP of Research for NMSS | Views : 1146 | Replies : 0 | Forum : General Discussion

Specific Marker For Disease Misdiagnosed as MS

Has anyone seen this yet? In a recent conversation with the NMSS Research Department a few days ago (last week sometime), in my frustration, I specifically ranted a little bit about the fact that MS needs to be more narrowly defined and the diagnosis of MS in people should stick to those boundaries, and why wasn't anyone DOING that, because it appeared to me that there were probably several similar "appearing" but very different diseases ...
Read more : Specific Marker For Disease Misdiagnosed as MS | Views : 1494 | Replies : 0 | Forum : General Discussion


hello all,

had a few questions, was wondering if all of you who have rrms, could let me know how often you have experienced exaserbations? do you find it difficult to do daily chores?

i am asking because i was dx'ed with rr and am wondering if misdx'ed, i am going to see a new neuro next week, as insurance forced me to change but i believe is for best, as my other neuro has ...
Read more : RRMS | Views : 1970 | Replies : 6 | Forum : General Discussion

Canadien MS/Stem Cell Research ... 779328_11/?

A Canadian woman is taking part in a remarkable study to help doctors learn how to stop multiple sclerosis in its tracks. But it's a dangerous and daring protocol that could risk her life.

Dyan Dixon has suffered from MS for more than 10 years. It's a cruel disease that appears to cause the immune system to go on the attack without warning.

Dyan suffers daily ...
Read more : Canadien MS/Stem Cell Research | Views : 1575 | Replies : 0 | Forum : Stem Cells

Professor George Ebers

Dear all,

The UK MS Society website has an interview with Professor George Ebers of Oxford University. In terms of what the future might hold he said that:

'At present we can prevent relapses, in the future we will be able to prevent disability and I think it very likely that there will be a plausible prevention strategy in the next 1-2 years'.

No detail on what this prevention strategy might include - I'm not ...
Read more : Professor George Ebers | Views : 5982 | Replies : 52 | Forum : General Discussion

Totally emotional

I am speechless!

My employer, and the intenational employees have just donated £1500 towards my Marathon attempt.

I have had to raise my total expected now to £5000!


To say that the "emotional lability" had kicked in would be an understatement! Stupid MS symptom in a man I think,,,,,,,,

squiffs :P
Read more : Totally emotional | Views : 1498 | Replies : 3 | Forum : General Discussion

be proactive - don' t wait for Biogen, they're swamped


After waiting almost 2 months for Biogen to get something set up, I took matters into my own hands.

1. 9 a.m. Called Blue Cross insurance - they said they'd cover it if the doctor would fax in info supporting the need for Tysabri. They also indicated that the infusion center (only one in the phone book) was in-network.
2. called the infusion center who said to have the doctor fax in the prescription ...

Daunted's antibiotic log

As you may recall, I am not diagnosed with MS but a "clinically isolated syndrome"; I have positive VEPs and unremitting symptoms consistent with mild MS. I have had two negative MRIs. I am undergoing antibiotic treatment with the Vanderbilt protocol (Amoxicillin, Doxcycyline, Rifampin, and pulses of Flagyl).

I am in the middle of my first pulse of Flagyl. I am keeping a symptom log and when I am several months into this, I will ...
Read more : Daunted's antibiotic log | Views : 25480 | Replies : 121 | Forum : Regimens


Beware of the "Marshall Protocol" of which you can find out more in the Antibiotics forum, so I won't repeat it here.

Read more : Warning | Views : 1308 | Replies : 0 | Forum : General Discussion


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