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LDN Conference Info (External)

Note: This is MS is not involved nor endorsing this conference. In the interest of pursuing our charter of being an unbiased source of information, we are posting it here for the benefit of those members that may be interested.

July 27, 2004

First Annual LDN Conference Planned

Possible Early December 2004 Meeting At The New York Academy of

** Please see below for your LDN-Yahoo Group Members' Survey and
Reply Form **

Plans ...
Read more : LDN Conference Info (External) | Views : 3488 | Replies : 3 | Forum : Low Dose Naltrexone

Question for Aaron

Hi Aaron....I posted information about the LDN Convention and I also sent you a private message regarding it but have not heard back as of yet. Private message was sent on August 2nd so I'm pretty sure that I should have heard something by now. Is there some other way that I am supposed to get the information regarding the convention to you? Would be nice to set the info on the convention as a ...
Read more : Question for Aaron | Views : 2068 | Replies : 3 | Forum : Low Dose Naltrexone

Endorphin role in MS

A friend posted me this link. It is not a new study, it dates back to 2003 but it is quite interesting on the possible link between the petide ß endorphin in MS.

A lot of this backs up the Lucchinetti argument (see my boring post on the annal of neurology article on response to Bartlett).

And of course it also relates to LDN. Maybe someone should show ...
Read more : Endorphin role in MS | Views : 2952 | Replies : 4 | Forum : General Discussion

To Aaron, re:forum for teens

Hi, Aaron! I'm beginning to think that maybe it is time to do as you suggested and start a forum for teens, and maybe even one for parents of teens. I'm noticing kids on all the boards I use, all of them looking for other kids to talk to, and one has a message board set up for kids, it isn't a very successful one.

I have had two teens to contact me this week ...
Read more : To Aaron, re:forum for teens | Views : 1871 | Replies : 1 | Forum : General Discussion

Switching from ABC to Rebif

Well... after being on Avonex for what seem like eons... The neuros have decided to switch me over to Rebif....

He said I could take either Beta or Rebif - Didn't matter to him, just needed something stronger than Avonex (I guess he's one of the ones who believes more is better)

Now my actual question.... Since Rebif and Avonex are both Interferonbeta -1a how will this transition be for me? Has anyone else done ...
Read more : Switching from ABC to Rebif | Views : 5459 | Replies : 14 | Forum : Rebif

Exacerbations while on LDN treatment

We would like to record people's experiences who have had exacerbations while on LDN.

Please copy and paste the following into your replies to this thread.

"I had an exacerbation(s) while on LDN treatment for Multiple Sclerosis. My details are as follows:"

I am ___ years old

I am ___ (male/female)

I have RR/SP/PP/PR MS for ___ years

My exacerbation(s) while on LDN affected my _____ (body part/function e.g., eyes, legs, cognitive, etc.)

It lasted ...
Read more : Exacerbations while on LDN treatment | Views : 18670 | Replies : 12 | Forum : Low Dose Naltrexone

Heya, folks.

Greetings, all. I just stumbled across this forum and thought I would say "hi". I'm a 36yo male, dx 12/99, on Copaxone now, but also using diet to do what I can. I've had a bit of a symptom flare-up recently with my stress skyrocketing. I'm trying to deal with getting disability insurance forms finished and looking at social security disability. I just can't keep the hours at work up to a managable level. I'm ...
Read more : Heya, folks. | Views : 2081 | Replies : 5 | Forum : Introductions

Anyone hear of transdermal LDN???

Someone in Southern Ontario recently told me that there was a transdermal LDN available. I had never heard of this, and thought maybe they had confused it with Prokarin. But, she did say that she spoke with Skip in Boca Raton and he advised her not to use it, so maybe she is right.

Just wondered if anyone else was familiar with it and using it.

My son continues to do really well at 3 ...
Read more : Anyone hear of transdermal LDN??? | Views : 2505 | Replies : 3 | Forum : Low Dose Naltrexone


Thimerosal has just been withdrawn in the UK because it may be linked to autism.

Thimerosal is a mercury preservative used in the whooping cough vaccine (among others since the 1930s). It is given to babies at 8 weeks old. Now, the UK is always extremely reluctant to withdraw a vaccine, for example despite the pressure from parents and some doctors about the risk of autism from MMR vaccine they have consistently refused to withdraw ...
Read more : Thimerosal | Views : 1990 | Replies : 0 | Forum : General Discussion

Air Bubble

This might seem like a silly question but that has never stopped me before.

There is an air bubble in every syringe of Rebif. As I am currently on reduced dose, I get rid of the bubble when I dump part of the syringe contents before injecting. Next week I go to 100% dose, therefore no dumping of serum. Now what about the air bubble?

The nurse Serrono sent to provide instructions said just to ...
Read more : Air Bubble | Views : 6101 | Replies : 10 | Forum : Rebif


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