I recall reading on here a year or so ago that taking Minocycline can help for CCSVI patients,

Am i correct with this memory?
Has other post balloon angio patients used this abx? how were the results?

I am considering the Wheldon abx protocol which includes doxycycline and i recalled people talking of potential benefits for CCSVI patients including ones who have had balloon angio already

The dose i will be taking is 200mg doxycycline ...

Hello,

I am currently undergoing HSCT (Hematopoietic Stem Cell Transplantation) with Dr Burt in Chicago which also involves large doses of chimo - cyclophosphomide like revimunne. I had my first dose of chimo on Monday and was discharged to the local hotel afterwards.I have posted in the HSCT section of the forum but my concern was not addressed. And since my question is related to the chimo I decided to post here too.

My concern ...

I really feel upset when I look online to see if there is any updates on research on MS that would help us understand the disease and try to treat it. It is even more shameful that our 'experts' have no idea about progressive MS at all.
If you have any glimmers of hope then please share..

Hi,

I have been having muscle fatigue or weakness and pain in my upper back from around midday each day. It appears to me that if I try and have a normal physical day, (no marathon, just house cleaning or normal work activities) all of my back muscles get sore and I must rest them. Unless I lie down for a few hours they continue to ache. Any use of my back muscles brings this ...

Related thread: general-discussion-f1/topic20777.html

related website: http://davidsmsstemcelljourney.blogspot.ca/

recent article: http://www.ccsviclinic.ca/?p=1337

Hello,

I am currently undergoing HSCT in Chicago. I had my first dose of chimo on Monday and was discharged to the local hotel afterwards. Today I started the neuropen shots and the antibiotics. My stem cells will be harvested on Thursday next week.

Here is the thing: My MS has flared up somewhat after the first dose of chimo - stiffer, numbness in hands and right foot. I am told that it's just because ...

Reading the CPn website there are only a few MS patient stories following the Wheldon protocol, and few that comment on mobility improvements, balance and/or legs strength.

So i wanted to know if anyone following the Wheldon antibiotic protocol has seen improvements in their walking/balance since starting the protocol? if so, how long did it take from starting the protocol was it till you saw mobility function improvements?
which abx did/do you/they take?
have they ...

has jack Osborne been treated for ccsvi?

Hi, I'm a 44 y.o. female without official diagnosis. My optho-neurologist is amazing, and has said she feels I do have MS but will not begin medication until she's absolutely certain. I am undecided as to whether I will ever take the meds or not. A dear friend of mine with MS recently passed away after a "mystery" illness effecting her immune system. She went to Mayo and while there, saw the MS specialist who ...

Back in April 17th, I had went to the ER due to squeezing in my waist really bad, like right under your stomach and above your private parts. It started tolerable on a Monday, but by Wednesday night I was hurting so bad that I couldn't get any relief. They gave me pain meds then, and sent me home. I talked to my neuro, which he said to come off of Rebif, but MS Lifelines ...