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Newly Diagnosed

Hi I have had problems with walking, balance and extreme tiredness since Feb up to that point was very healthy. I was on holiday in Turkey when symptoms first appeared and ended up in hospital out there. Since returning to the Uk I seem to have spent more time waiting for appointments than getting any nearer a diagnosis. I was finally diagnosed with Relapsing Remittent Multiple Sclerosis in the middle of September and at first ...
Read more : Newly Diagnosed | Views : 226 | Replies : 7 | Forum : Introductions

Working with MS


I am brand new to this forum, as I have not yet been formally diagnosed with MS. However, for the past six months I have been having symptoms that include: numbness, pain, excessive sweating and sensitivity to room temperature, fatigue, loss of vision and hearing, twitching, weakness, memory loss, and lack of my ability to focus. This past week, I have had six seizures, and have been in the ER twice. My doctors are ...
Read more : Working with MS | Views : 244 | Replies : 4 | Forum : General Discussion

Advise very much appreciated


I've suspected MS for a couple of years now, but when I mentioned it to my doctor last year he shrugged it off and said that my symptoms were caused by my under-active thyroid, so once that was stabilised he would look in to the MS possibility more. My thyroid has been under-active for a few years now and finally is on track with the correct amount of thyroxine.

My symptoms are: neurological issues, ...
Read more : Advise very much appreciated | Views : 255 | Replies : 3 | Forum : Undiagnosed

Possible MS would like input

Hi, All. My name is Anita, I am 45 years old. I just recently got referred to a neurosurgeon/neurologist due to my thoracic spine having 4 ruptured disc. It happened in an auto accident 5 years ago and has severely progressed. Some of my symptoms can be explained by this but many cannot. I am listing all of my symptoms below. The ones with * have been going on 4-5 years or longer. The rest ...
Read more : Possible MS would like input | Views : 268 | Replies : 2 | Forum : Introductions


HI Friends ... n-the-gut/
MS researchers are focusing on the Gut's micro biome as possible contributor to the bodies autoimmune attack on its nervous system Please read more from the attached
Read more : COULD M.S BEGIN IN THE GUT | Views : 521 | Replies : 4 | Forum : General Discussion

Gluten sensitivity

The People's Pharmacy has recently interviewed Dr. Alessio Fasano, director of the Center for Celiac Research and division chief of the Department of Pediatric Gastroenterology and Nutrition at Massachusetts General Hospital for Children, discussing celiac disease and gluten sensitivity. He states that gluten is a protein which we cannot completely digest and that it, for those who are sensitive to it, can cause inflammation anywhere in the body including the brain mimicking Multiple Sclerosis.

Read more : Gluten sensitivity | Views : 405 | Replies : 1 | Forum : Diet


This article speaks about groups of patients that have succesfully managed to set up a clinical trial via crowdfunding.

Interestingly, they did it for MS.

Maybe it could be a possibility for us to do it for CCSVI
Read more : Crowdfunding. | Views : 455 | Replies : 0 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Could Multiple Sclerosis begin in the gut?

MS researchers are focusing on the content of the gut’s microbiome as a possible contributor to the body’s autoimmune attack on its nervous system.

Multiple sclerosis (MS) is an electrical disorder, or rather one of impaired myelin, a fatty, insulating substance that better allows electric current to bolt down our neurons and release the neurotransmitters that help run our bodies and brains. Researchers have speculated for some time that the myelin degradation seen in MS ...
Read more : Could Multiple Sclerosis begin in the gut? | Views : 724 | Replies : 3 | Forum : General Discussion

MS Cannabis drug ‘too costly’ for England but not Wales

A drug derived from cannabis, which many people with multiple sclerosis say helps ease their symptoms, has been ruled too expensive to be used by the NHS in England even though it is approved for Wales.

In new guidelines for the diagnosis and treatment of people with the disabling disease, the National Institute for Health and Care Excellence (Nice) says the price set by the manufacturer of Sativex (nabiximols) is too high for the benefit ...
Read more : MS Cannabis drug ‘too costly’ for England but not Wales | Views : 487 | Replies : 0 | Forum : General Discussion


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