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Hello..New Here and Recently Diagnosed

Hello Everyone,

Though I have been "lurking" for quite some time, this is my first official post. You all share such great information and it has helped me tremendously. I have suspected for quite sometime that I have had MS, but just recently had it confirmed...finally..thank goodness by an MS Specialist. My first neurologist was a mess in that he misread my lumbar puncture. I had 9 oligoclonal bands and an elevated Igg Index and ...
Read more : Hello..New Here and Recently Diagnosed | Views : 184 | Replies : 3 | Forum : Introductions


i switched meds and now i have many boxes of copaxone

does anyone want them? i have one box that expires at the end of next month and the rest are all in 2015. i'm in the bay area and if you live somewhat close or are local that would be ideal, but mostly i just want someone to make good use of them. PM for more details.
Read more : i switched meds and now i have many boxes of copaxone | Views : 186 | Replies : 0 | Forum : Copaxone


Techfidera Vs Gilenya

I have been on Techfidera since May 2013. As I have had good MRI scans.....no new lesions....my walking has dramatically gone downhill. My legs are so weak, my balance is bad. The daily simple things have gotten increasingly harder. I am starting Gilenya in a couple of days. Just curious is anyone has experienced anything similar? Would also like to hear opinions on Gilenya.
Read more : Techfidera Vs Gilenya | Views : 168 | Replies : 0 | Forum : Undiagnosed


Gilenya approved for use in Scotland

SMC first to introduce oral Gilenya® as a first line treatment option for people with a severe form of MS

• Scottish people with a severe form of relapsing remitting multiple sclerosis are first in UK to get access to once daily pill fingolimod as a first line treatment option1
• Once daily pill fingolimod reduces the risk of relapses by 67% compared to placebo

Today, the Scottish Medicines Consortium (SMC) has accepted once daily ...
Read more : Gilenya approved for use in Scotland | Views : 152 | Replies : 0 | Forum : Gilenya


Has something happened to LDN?

http://www.emaxhealth.com/1275/low-dose-naltrexone-multiple-sclerosis-what-happened I have never used this medication but after reading the attached article I began to wonder if it has vanished?
Gymbuff
Read more : Has something happened to LDN? | Views : 303 | Replies : 1 | Forum : Low Dose Naltrexone


Positive data from multiple dose phase1 trial of CTP-354

Concert Pharmaceuticals Inc. announced Phase 1 data of CTP-354, a novel, potentially first-in-class, non-sedating, once-daily oral treatment for spasticity. In this multiple ascending dose trial, no sedation or ataxia was observed with CTP-354 and the drug was generally well tolerated across all dose cohorts.

Concert expects to initiate a Phase 2 clinical trial evaluating CTP-354 in patients with spasticity associated with spinal cord injury by the end of 2014..... Read More - http://www.ms-uk.org/emergingtherapies
Read more : Positive data from multiple dose phase1 trial of CTP-354 | Views : 264 | Replies : 0 | Forum : Drug Pipeline


Time to throw the ball out of the pram !

I'm looking at the Aubagio tablets wondering whether to take the plunge, shall I take it tonight or the morning, after 3 years of uncertainty and then a diagnosis I'm heading into yet more uncertain territory and quite frankly I'm ready to throw my ball out of the pram. My body seems to have its own agenda and not invited me to the party which I am finding very inconvenient and frustrating and now just ...
Read more : Time to throw the ball out of the pram ! | Views : 219 | Replies : 2 | Forum : Introductions


Thoughts on my symptoms

Not expecting a diagnosis here, but just if it sounds like things MS would cause:

I'm male and 37 years old.

Pain in the face, right side only. Mostly in the cheek area, sometimes in the jaw. It's like a charlie horse but sometimes burns. I thought it was a tooth issue at first but the dentist says everything looks OK. Tried brux gaurd just to make sure it wasn't a jaw clenching issue, but ...
Read more : Thoughts on my symptoms | Views : 335 | Replies : 15 | Forum : Undiagnosed


Gilenya in new therapeutic indication: Added benefit not...

Gilenya in new therapeutic indication: Added benefit not proven

The immunosuppressive drug fingolimod (trade name: Gilenya) was approved for an expanded therapeutic indication in May 2014: It is now also available for adults with highly active relapsing remitting multiple sclerosis (RRMS) who had received other pretreatment than interferon beta (IFN-β). In an early benefit assessment pursuant to the Act on the Reform of the Market for Medicinal Products (AMNOG), the German Institute for Quality and ...
Read more : Gilenya in new therapeutic indication: Added benefit not... | Views : 207 | Replies : 0 | Forum : Gilenya


Newly Diagnosed

Hi I have had problems with walking, balance and extreme tiredness since Feb up to that point was very healthy. I was on holiday in Turkey when symptoms first appeared and ended up in hospital out there. Since returning to the Uk I seem to have spent more time waiting for appointments than getting any nearer a diagnosis. I was finally diagnosed with Relapsing Remittent Multiple Sclerosis in the middle of September and at first ...
Read more : Newly Diagnosed | Views : 282 | Replies : 7 | Forum : Introductions


 

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